Post AcXzFUDnUJawn6hSwS by VirginiaMurr@mastodon.social
(DIR) More posts by VirginiaMurr@mastodon.social
(DIR) Post #AcXvES5nWD1C58D3rc by tayfonay@beige.party
2023-12-06T16:28:27Z
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My friend developed migraines around her periods after a gynecological procedure. Prior to this she had like 1 migraine in her life (does have a family history) and after she's had pretty debilitating headaches with each cycle. Like can't function, but acupuncture seems to be helping.Went to the first neurologist who spent maybe 10 minutes with her, blew her off and said this wasn't a thing. Basically the "you're nuts/all in your head narrative."Saw a second neurologist who spent almost an hour with her, validated what happened, offered a range of treatment options, and came up with a plan.It's absolutely fucking insane how different your experience can be with the US healthcare system depending on the physician you sit in front of.
(DIR) Post #AcXvET57qC4h9Ku2SG by freemo@qoto.org
2023-12-06T22:09:18Z
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@tayfonay While I highly doubt the exam had anything to do with it and was clearly just coincidence I think its also obvious the migraines are real.I cant imagine why the first doctor wouldnt treat the migraines while politely pointing out the exam is unrelated.
(DIR) Post #AcXvEUDJdEDif1k5rM by tayfonay@beige.party
2023-12-06T16:32:08Z
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She works with me in my private mental health practice where we help folks with chronic medical issues, so she knows the drill and is a veteran of the healthcare system for other reasons. We decided to create a document on our Sharepoint drive "Doctors Who Don't Fucking Suck" so when our patients ask us for referrals, we can give them with some confidence that they won't be medically gaslighted. Because at least half of what we do these days is walk people off the ledge after really fucked up appointments.
(DIR) Post #AcXx9SqLV28As2jPk0 by tayfonay@beige.party
2023-12-06T22:30:51Z
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@freemo The onset is related to the procedure, not exam, per the 2nd neurologist.
(DIR) Post #AcXxGt926sP2TD0pjU by freemo@qoto.org
2023-12-06T22:32:12Z
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@tayfonay I suspect they just said that to placate the patient, but if I am wrong I would be curious to hear what disease they think the examination could have caused and how.
(DIR) Post #AcXzFUDnUJawn6hSwS by VirginiaMurr@mastodon.social
2023-12-06T22:49:04Z
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@tayfonay @freemo Yep. Not sure what the procedure was, but I had a gyno procedure which gave me debilitating migraines (the stroke-mimicking ones w/slurring of words, etc.).My experience: I had migraines early in life but they were periodic and not debilitating... but then at age 19 my gyno gave me a hormone-based shot to treat my endometriosis. Within hours, I had the most skull crushing migraine of my life. After that, all my migraines were skull-crushing and they became chronic.
(DIR) Post #AcXzFV3CPCiBMWkW3s by freemo@qoto.org
2023-12-06T22:54:21Z
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@VirginiaMurr Oh it wasnt just a visual exam but there was medication involved... in that case, yea, makes perfect sense.@tayfonay
(DIR) Post #AcXzuMGDzVC9yRKBX6 by tayfonay@beige.party
2023-12-06T23:01:44Z
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@freemo Placate the patient? Wow. https://jamanetwork.com/journals/jama/article-abstract/202685https://www.sciencedirect.com/science/article/pii/S1743919115010973The use of high dose estrogen prior to the hysteroscopy likely led to the onset of menstrual migraines. They're not blaming the surgeon for anything, it's more a matter of this was a good environmental trigger to be paired with her genetics and other risk factors leading to "shit happens."
(DIR) Post #AcY5pMClN2SG4shiBU by freemo@qoto.org
2023-12-07T00:08:04Z
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@tayfonay Yes as I said, if there is drugs involved then it makes perfect sense there is a link there. I thought they were talking about a visual inspection.