Post AVY14OlaUeqMilrxWC by IanSudbery@genomic.social
 (DIR) More posts by IanSudbery@genomic.social
 (DIR) Post #AVXlSCdvcb86nucEbY by tiago@social.skewed.de
       2023-05-11T11:15:03Z
       
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       “Unveil” = “Keep behind a firewall”https://www.nytimes.com/2023/05/10/science/pangenome-human-dna-genetics.html
       
 (DIR) Post #AVXoaHRvw0KhtGY40W by IanSudbery@genomic.social
       2023-05-11T11:50:08Z
       
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       @tiago The pan-genome paper isn't behind a pay wall as far as I can see?
       
 (DIR) Post #AVXpWNGoS3gOjr32ky by tiago@social.skewed.de
       2023-05-11T12:00:36Z
       
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       @IanSudbery But the data will be. Read the article until the end.
       
 (DIR) Post #AVXvOMzQD5HZHETosC by IanSudbery@genomic.social
       2023-05-11T13:06:25Z
       
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       @tiago You mean the NYT article? Now that is behind a paywall, and I can't read it 😂 I couldn't see anything in the nature article that suggested the data will not be freely available. Indeed the paper states the data is available on INSDC.
       
 (DIR) Post #AVXwQbRRY5jQdGDQOG by tiago@social.skewed.de
       2023-05-11T13:18:02Z
       
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       @IanSudbery https://archive.is/NAwTP“In Australia, researchers are incorporating DNA sequences from various Aboriginal peoples into a similar depository that will be combined with the open-source pangenome, but then kept behind a firewall.”This is about the additions to pangenome, not pangenome itself.
       
 (DIR) Post #AVXxx3zH3IKGNz588e by IanSudbery@genomic.social
       2023-05-11T13:35:05Z
       
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       @tiago Well that sucks. Although a firewall is not quite the same as a pay wall. I don't know what the intention is here, but a lot of genomics data is kept behind privacy-walls where you have to pass ethical review to get access to it. Indeed, that seems to be what is happening here: " the scientists next plan to consult with community leaders about if or how to make the data accessible through request."
       
 (DIR) Post #AVXydpxB6aQBJSUu3s by tiago@social.skewed.de
       2023-05-11T13:42:50Z
       
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       @IanSudbery I never said it was a paywall. I said it was a firewall.Regardless of how you justify it, you cannot at the same time “unveil” something and keep it behind a firewall.
       
 (DIR) Post #AVY14OlaUeqMilrxWC by IanSudbery@genomic.social
       2023-05-11T14:10:00Z
       
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       @tiago Sorry, I misread your original toot. If the data is like other genomics data in controlled access repositories, gaining access to it will be fairly trivia. I have access to many controlled access datasets. Geneally its as simple as filling in a form saying "I am a real scientist. This is what I want to do with the data - you can see its not trying to identify people, nor is it eugenics. I'm not making money from it. I can guarentee my computer systems are secure".