Post AtsTtsdm6FzKKCC9Me by vampirdaddy@chaos.social
(DIR) More posts by vampirdaddy@chaos.social
(DIR) Post #AtrLkz6fhEUEytzy6K by Nonilex@masto.ai
2025-05-07T18:51:48Z
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Very dangerousFederal #health agencies will create a #registry of #autism patients enrolled in #Medicare & #Medicaid that researchers will use to *study* the *causes* of autism spectrum disorder, #HHS Secy #RFKJr said on Wednesday.#law #privacy #HIPAA #Vaccines #science #medicine #ConspiracyTheories #eugenics #Trump #USpol https://www.reuters.com/business/healthcare-pharmaceuticals/nih-cms-partner-understand-autism-with-medicare-medicaid-data-2025-05-07/
(DIR) Post #AtrM1mcZN1XvBHvdqa by Nonilex@masto.ai
2025-05-07T18:54:50Z
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The dept said the #NIH & the Centers for #Medicare & #Medicaid Services will partner to build a real-world data platform enabling advanced research across #claims #data, electronic #MedicalRecords, & wearable health-monitoring #devices.The project is part of a wider $50M #research effort #RFKJr is launching to identify the causes of #autism, which he characterizes as an *epidemic* that can be prevented.#law #privacy #HIPAA #Vaccines #science #medicine #ConspiracyTheories #eugenics #Trump
(DIR) Post #AtrMBn0mlzJHHw1jfc by Nonilex@masto.ai
2025-05-07T18:56:38Z
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#Autism is a neurological & developmental condition marked by disruptions in #brain-signaling that cause people to behave, communicate, interact, & learn in atypical ways.Last month, #HHS had denied it was creating a new autism #registry following media reports that #NIH Director Jay Bhattacharya told staff the agency would create one.#law #privacy #HIPAA #Vaccines #science #medicine #ConspiracyTheories #eugenics #RFKJr #Trump
(DIR) Post #AtrMNIumUwklQ4i1RI by Nonilex@masto.ai
2025-05-07T18:58:43Z
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#HHS claims the new platform will first focus on #research around the root *causes* of #autism &, in the long term, link #data for research on other chronic conditions.The agencies claims the project will comply with #privacy laws but did not specify if the data will be anonymous. HHS, #NIH, & #CMS did not immediately respond to requests for comment.#law #HIPAA #Vaccines #science #medicine #ConspiracyTheories #eugenics #RFKJr #Trump
(DIR) Post #AtrMnGwCTIWQohktAu by Nonilex@masto.ai
2025-05-07T19:03:24Z
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*Researchers* will focus on #autism diagnosis over time, #health outcomes from #medical & behavioral interventions, access to care & disparities by demographics & geography + the economic burden on families & #healthcare systems.#RFKJr told FauxNews there would be a #registry. "Every other disease like this has a registry...& it's voluntary. It's not private information. It's not information that is going to go out to other agencies. It's a voluntary system where your #privacy is protected."
(DIR) Post #AtrMpUqHkHmuWK377A by MAJ1@beige.party
2025-05-07T19:03:46Z
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@Nonilex Oh Nuggan’s holey nuts! 🙄🤦♂️ Because a list of them all will help no end. I’m expecting the same in the UK of Remorse (sorry Reform) ever get into government.
(DIR) Post #AtrN63q7OUsbhCrywC by gooba42@mastodon.social
2025-05-07T19:06:45Z
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@Nonilex HHS is under the rule of a man who doesn't believe in germs and genuinely believes that all maladies are a product of character flaws and bad education.He won't accept any outcome that doesn't validate his beliefs, objective empirical science be damned.He's going to kill a lot of people out of willful and malicious ignorance.
(DIR) Post #AtrNcmqdabtKYNiXwW by nonproductive@mastodon.social
2025-05-07T19:12:41Z
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@Nonilex Hans Asperger would be proud...🙄
(DIR) Post #AtrOr4pnc3hiLVhfKC by Dtraslerwriting@mastodon.social
2025-05-07T19:26:29Z
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@Nonilex How long before folks with autism are told to wear a symbol that identifies them "for their own safety"?
(DIR) Post #AtrhvQoLkDgenCobUO by EugestShirley@m.ai6yr.org
2025-05-07T23:00:09Z
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@Nonilex The worms-for-brainz, drug dealer belongs somewhere other than in government, promoting his pet conspiracy theories.
(DIR) Post #AtsTtsdm6FzKKCC9Me by vampirdaddy@chaos.social
2025-05-08T07:57:42Z
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@Nonilex They are probably not searching for a cause, but for any correlation.Like: _“More than 80% of autistic have been vaccinated against measles!1!!"_(and be silent about the over 80% of "normal" people being too)
(DIR) Post #AtvMlk73nz4PM4wgIC by thatdamnweasel@mstdn.party
2025-05-09T17:21:57Z
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@Nonilex something makes me think it won't be voluntary. (Looks at USPol right now) yeah it definitely won't be voluntary