Post AdbwbQIr4dPbOmBLHc by EarlThePearls@social.quodverum.com
(DIR) More posts by EarlThePearls@social.quodverum.com
(DIR) Post #AdbqLkwKmQV9cvArj6 by Viking@noagendasocial.com
2024-01-07T17:25:37Z
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it is interesting how the mainstream media assumes poor people have no agency.https://www.cnn.com/2024/01/04/opinions/trump-replace-obamacare-health-care-2024-election-davidson/index.html[If the cost of an inhaler or insulin did not fit their budget that month, they might end up in the emergency room with completely preventable complications. Those same cash-strapped patients would often find themselves saddled with a massive bill because of that visit to the ER. ]There is cheap insulin available, but it might have slow response times that requires meal planning.
(DIR) Post #Adbr03oy02TDljwlgu by Sum_ID@noagendasocial.com
2024-01-07T17:32:54Z
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@Viking distrust is the main motivator now. It is true though. I have skipped getting inhaler refills to cover other costs.
(DIR) Post #AdbrEUQRsheSKsMKES by LydiaTerry2002@noagendasocial.com
2024-01-07T17:35:31Z
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@Viking It is obvious that you have never kept yourself alive with R and NPH. The newer insulins are affordable and non-prescription in most of the world and help you do things like work much better than R and NPH yes they will keep you out of DKA but they suck during puberty and you have to meal plan with the new stuff too it's when a growth spurt goes sideways that the fast acting stuff comes in handy as well as the odd fire drill. You know the average age of diagnosis for Type 1 is 8 right?
(DIR) Post #AdbwGmYX8vOqKjfn0q by KillerMule@noagendasocial.com
2024-01-07T18:25:14Z
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@EarlThePearls Same here. My T1D son uses the Novolog in his omnipod pump. Thats been so much better than pen, but the puberty trainwreck was rough seas. Monitors sugar with Dexcom G6 that communicates levels to the omnipod also. I love that basically the pod is micro-dosing insulin so the DKA risk is very low now. @Viking @LydiaTerry2002
(DIR) Post #AdbwGp0y0BKdxUzWbo by EarlThePearls@social.quodverum.com
2024-01-07T18:27:59Z
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@KillerMule Son's onset was rapid with little or no honeymoon periodMade it easier to controlPlus we had an excellent Pediatric Endocrinilogist@Viking @LydiaTerry2002
(DIR) Post #AdbwI8CS9neHkZzLG4 by Viking@noagendasocial.com
2024-01-07T18:08:55Z
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@LydiaTerry2002 It really sucks to get Type 1 diabetes, especially for kids.But if I have to choose between government paying $500 to $1000 per month, and the patients (their families) having to make stringent meal planning for $25 per month, I chose the latter.Also, things are improving, but the fearmongering think of the children stories will not give an honest account of best possible prices, because they don't like Walmart.
(DIR) Post #AdbwIA3fFRo5VttLpw by Viking@noagendasocial.com
2024-01-07T18:09:30Z
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@LydiaTerry2002 [Available exclusively through Walmart’s private ReliOn brand, the new offering includes analog insulin vials ($72.88) and FlexPen® ($85.88). ]https://corporate.walmart.com/news/2021/06/29/walmart-revolutionizes-insulin-access-affordability-for-patients-with-diabetes-with-the-launch-of-the-first-and-only-private-brand-analog-insulin
(DIR) Post #AdbwIWdDJxJbWWh3Im by KillerMule@noagendasocial.com
2024-01-07T18:32:16Z
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@EarlThePearls My son was diagnosed at 15, he's18 now. Honeymooned quite a bit, past 2 years were large fluctuations due to high/low natural hormone levels. He faced it amazingly, but one of the hardest days isnwhen he came up to me and said, "Dad, did you know on average diabetics live to 65?" I really hate WebMD...I told him, that's an average, and you need to focus on getting done whatnyou want to get done sooner than others. @Viking @LydiaTerry2002
(DIR) Post #AdbwR2nlb3U7c9gw3U by LydiaTerry2002@noagendasocial.com
2024-01-07T18:31:57Z
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@EarlThePearls @KillerMule @Viking A good pediatric endo is worth their weight in platinum.
(DIR) Post #AdbwR4eci1MLMNQf56 by KillerMule@noagendasocial.com
2024-01-07T18:33:48Z
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@LydiaTerry2002 @EarlThePearls @Viking We lived nesr Vanderbilt who has an endo department for pedes. It was very good. Adult endo, not so much now.
(DIR) Post #AdbwSpUS3kzMuOVZrM by LydiaTerry2002@noagendasocial.com
2024-01-07T18:34:08Z
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@KillerMule @EarlThePearls @Viking It was 40 when I was diagnosed my parents told me I was not average so I should ignore that; so far so good...
(DIR) Post #AdbwYsYfZ8BIA4Mjzs by EarlThePearls@social.quodverum.com
2024-01-07T18:11:29Z
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@Viking @LydiaTerry2002 Analog Insulin?is that like fake insulin?
(DIR) Post #AdbwbPOqQsbob3ybyq by LydiaTerry2002@noagendasocial.com
2024-01-07T18:20:28Z
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@EarlThePearls @Viking like this :)
(DIR) Post #AdbwbQIr4dPbOmBLHc by EarlThePearls@social.quodverum.com
2024-01-07T18:25:56Z
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@LydiaTerry2002 @Viking My son got the latest Medtronic model and does wonders for blood sugar controlFinger sticks almost eliminated with the sensor feedback loopGot Type 1 at age of 8 from an allergic reaction to Bactrim or Ceclor33 now
(DIR) Post #Adbwlxa8CQETVSHrN2 by LydiaTerry2002@noagendasocial.com
2024-01-07T18:37:35Z
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@KillerMule @EarlThePearls @Viking Multiple trainwrecks there's a bunch of other hormones carbonating and they all impact the blood sugar...
(DIR) Post #Adbwrcdoy6k4IXiGLw by Viking@noagendasocial.com
2024-01-07T18:38:36Z
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@KillerMule @EarlThePearls @LydiaTerry2002 [ "Dad, did you know on average diabetics live to 65?" I really hate WebMD...I told him, that's an average, and you need to focus on getting done whatnyou want to get done sooner than others. ]That sounds like a painful conversation for a dad.Sorry you had to go through that. I hope he can take that as a motivation to manage the disease as well as possible, rather than feeling defeated.
(DIR) Post #AdbwuH7FSJj8PIk4zQ by EarlThePearls@social.quodverum.com
2024-01-07T18:17:44Z
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@Viking @LydiaTerry2002 We use Walgreens with a discount card
(DIR) Post #AdbwvWUHn2uIN3745Y by EarlThePearls@social.quodverum.com
2024-01-07T18:16:32Z
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@Viking @LydiaTerry2002 Get a pump if possibleWorks greatSon uses Insulin Lispro (generic Humalog) ~ 30 / vialOn Disability so SSA covers almost all of the costsBetter treating diabetics instead of doing war
(DIR) Post #AdbwyhaSyhu9fGWHZY by KillerMule@noagendasocial.com
2024-01-07T18:39:53Z
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@LydiaTerry2002 When we had one of our first classes there was an 8yo kid in there, and they were all new, so taking shots of insulin, their new forever reality. It was really hard, and still is to think about for all those affected by this disease. Once again though, check this out, another amazing connection of people here on the Fedi. Thanks for listening. Keep up and the good fight. @EarlThePearls @Viking
(DIR) Post #Adbx2GlQeEzJdGLeqG by LydiaTerry2002@noagendasocial.com
2024-01-07T18:16:23Z
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@Viking Yes yes it does and yes they don't tell you about things like Reli On but you keep talking about meal planning You have to plan no matter what and the government does not have to pay for the stuff they have to get the market manipulations out of the way. And the average is 8 but it can happen sooner. Got any ideas on how to know what a 3 year old is going to eat in an hour? Or how to know how much activity they are going to get during the 6 hours the R lasts?
(DIR) Post #AdbxIuOP4rlZAhVqEK by KillerMule@noagendasocial.com
2024-01-07T18:43:32Z
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@Viking Went about 1.5 years then gotnhitbwith crippling anxiety when he thought he had some stage of Diabetic Kidney Disease. Another gift from reading WebMD. That was really rough, we did some counseling and I think he's managed a lot of it, but out of the blue he just will say, Im feeling anxious about, you know, whatever. He does really good though. Never experienced that before, very scary and all in his mind. @EarlThePearls @LydiaTerry2002
(DIR) Post #AdbxqcCHEbuKaJufUe by LydiaTerry2002@noagendasocial.com
2024-01-07T18:49:38Z
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@KillerMule @EarlThePearls @Viking it sucks but you have to be confident in your ability to win the argument with your own immune system which can make it tricky the pic is what I learned to inject with
(DIR) Post #Adbxrq7Gy73w2o9kFE by EarlThePearls@social.quodverum.com
2024-01-07T18:49:51Z
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@KillerMule @LydiaTerry2002 @Viking I have a 2 Liter soda bottle filled with the first syringes he used. Started with twice a day long acting and short acting for meals and correctionsUsed a pen some b4 pumpTest strip use is another hard to imagine thingWhen he was in HS we somehow managed to accumulate 3000 extraInsurance gap for a bit saw what we thought was excess get put to a good useSeems G-D is always giving just what we need as long as we do our part
(DIR) Post #AdbyCiBxctgVY4IlCi by EarlThePearls@social.quodverum.com
2024-01-07T18:53:37Z
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@KillerMule @Viking @LydiaTerry2002 One thing that helped son a lot was Diabetic Summer CampAll Campers were T1Camp Endres in the Arbuckles of OKHe went to another one just south of the Red River but they were like a military boot camp instead of a communityCamp Endres was a building and encouraging experience
(DIR) Post #AdbybdPsWDpTydhBtg by LydiaTerry2002@noagendasocial.com
2024-01-07T18:51:01Z
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@EarlThePearls @KillerMule @Viking Yerp good luck with your argument.
(DIR) Post #AdbybegZncmRuiW2Yy by EarlThePearls@social.quodverum.com
2024-01-07T18:58:07Z
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@LydiaTerry2002 One thing that help with the anxiety and doom is talking to those who have been through it, especially if they are near you age.That was one of the benefits of summer campThey even managed to have fun in the dead of summer with no AC in the cabins@KillerMule @Viking
(DIR) Post #AdbypTtei3SOVSE5Qm by LydiaTerry2002@noagendasocial.com
2024-01-07T19:00:38Z
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There are a number of pollutants that are endocrine disruptors and they seem to hit men worse than women it's more unfairness I'm glad he was able to find something that helped.