Post AdWoCqvrdffGhI6ikS by azrez@pleroma.8777.ch
 (DIR) More posts by azrez@pleroma.8777.ch
 (DIR) Post #AdWNElXbxMxVnGS1a4 by w@arachnid.town
       2024-01-05T02:04:28.454943Z
       
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       This post is dedicated to the doctors, fediverse users, teachers, family, and everyone else who thought a neuroimmune disease was just me being fat and lazy.
       
 (DIR) Post #AdWNNcsrVtADY9cFQO by nyx@social.xenofem.me
       2024-01-05T02:06:59.592319Z
       
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       @w just poking your head back into the hellnetwork?
       
 (DIR) Post #AdWOetYasOMG8avxho by w@arachnid.town
       2024-01-05T02:20:25.263002Z
       
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       @nyx I've been posting against the Fediverse over the past week or so criticising the structures that exist here, and talking about healing/growing. I have (or maybe had, can't ever be too sure) trauma that social structures and manipulative people here took advantage of to use me. The same conditions in the past that's scarred me into behaving a certain way was used to make me a part of the systems here that hurt people.The purpose of this post is to dab on shitheads, but also to point out a cycle of abuse that's happened in a variety of contexts. The advice given has only made me sicker both physically and mentally.This account is mostly write-only now. I want to speak about things that might help other people, or get them to stop contributing to the social exploitation of people. My views on the illnesses that plagues this place is very intertwined with my own story.
       
 (DIR) Post #AdWPvknWnOGJqgWQFM by nyx@social.xenofem.me
       2024-01-05T02:35:31.280765Z
       
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       @w oh yeah I didn't see that you had made some other posts recently
       
 (DIR) Post #AdWoCqvrdffGhI6ikS by azrez@pleroma.8777.ch
       2024-01-05T07:08:01.224427Z
       
       0 likes, 0 repeats
       
       @w o shit you were able toake progress on getting a diagnosis?
       
 (DIR) Post #AdXLrYgFhU8ERzp4Iy by w@arachnid.town
       2024-01-05T13:23:44.896321Z
       
       0 likes, 1 repeats
       
       @azrez I was given a provisionary diagnosis of ME/CFS in early 2023, and my doctor didn't tell me about it for months. It was only last summer that I found out.It's a disease with very specific criteria and symptoms I have. It's baaically a 1:1 match to what I experience and retroactively explained a lot of oddities I experienced. I've had a massive improvement in symptoms after identifying triggers for post-excertional malaise and avoiding them, which includes physical/mental/optical excertion.A lot of the advice I got from people (exercising more, get out of bed even if you feel bad, force yourself, slowly work yourself up, etc) was basically making me semi-permanently worse and sicker. I was basically in a perpetual flare-up.I'm waiting to see an optphomologist which will be a stepping stone to seeing a neurologist, who will go through the gauntlet of exclusionary diagnosis with me if we end up going down the ME/CFS path. But I would consider this to be an answer considering how specific of a fit it is.