Post AcXUxxZAeIgnxsQLPk by andyc@mastodon.sdf.org
 (DIR) More posts by andyc@mastodon.sdf.org
 (DIR) Post #AcXCa1ihktsCirJzzE by sullybiker@sully.site
       2023-12-06T13:49:00Z
       
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       @craigmaloney Been there. Best of luck with it.
       
 (DIR) Post #AcXIusjaxU5Yf048TQ by andyc@mastodon.sdf.org
       2023-12-06T14:59:59Z
       
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       @sullybiker @craigmaloney Same. Sorry you've been denied the PET scan. All the best Andy
       
 (DIR) Post #AcXJ7WXIno5vZuLO9w by sullybiker@sully.site
       2023-12-06T15:02:18Z
       
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       @craigmaloney @andyc It always felt ethically very dodgy to me that an insurer decides standards of care. You need the scan, you should get it.
       
 (DIR) Post #AcXUxxZAeIgnxsQLPk by andyc@mastodon.sdf.org
       2023-12-06T17:15:00Z
       
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       @sullybiker @craigmaloney Yes. In 2012, I needed experimental radiotherapy  treatment (Cyberknife - robot, highly targeted) that was not officially approved by the NHS in the UK (in clinical trials).The expensive request got questioned (not rejected) but my consultant reassured me,.'It's approved. I told them "If Mr. Brightside dies within the next 5 years due to his cancer diagnosis, you will be facing a sizeable law suit".
       
 (DIR) Post #AcXVko8eUQFuumJR6u by sullybiker@sully.site
       2023-12-06T17:23:51Z
       
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       @andyc @craigmaloney I had to have a tumour analysed by a specialist lab - I knew nothing about this - and my insurer classed this as 'experimental' and passed me a bill for $6000. I argued that the lab analysis dictated my treatment - to no avail - the lab themselves let me off the hook.
       
 (DIR) Post #AcXVrrGvEpWqeyXiAi by sullybiker@sully.site
       2023-12-06T17:25:07Z
       
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       @andyc @craigmaloney The bottom line is that I survived something with only about 20% survivability so I alway keep that in mind, and yet...