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<PRE>[DOCID: f:hc25enr.txt]
        H.Con.Res.25
                                     Agreed to December 12, 2001        

                      One Hundred Seventh Congress

                                 of the

                        United States of America


                          AT THE FIRST SESSION

         Begun and held at the City of Washington on Wednesday,
             the third day of January, two thousand and one


                          Concurrent Resolution

Whereas at least two children born each day will be affected with 
  tuberous sclerosis;

 Whereas nearly one million people worldwide are known to have tuberous 
  sclerosis;

 Whereas tuberous sclerosis affects all races and ethnic groups 
  equally;

 Whereas tuberous sclerosis is caused by either an inherited autosomal 
  disorder or by a spontaneous genetic mutation;

 Whereas when tuberous sclerosis is genetically transmitted as an 
  autosomal dominant disorder, a child with a parent with the gene will 
  have a 50-percent chance of inheriting the disease;

 Whereas two-thirds of the cases of tuberous sclerosis are believed to 
  be a result of spontaneous mutation, although the cause of such 
  mutations is a mystery;

 Whereas diagnosis takes an average of 90 days with consultation of at 
  least three specialists;

 Whereas tuberous sclerosis frequently goes undiagnosed because of the 
  obscurity of the disease and the mild form the symptoms may take; and

 Whereas the Congress as an institution, and Members of Congress as 
  individuals, are in unique positions to help raise public awareness 
  about the need for increased funding for research, detection, and 
  treatment of tuberous sclerosis and to support the fight against 
  tuberous sclerosis: Now, therefore, be it

    Resolved by the House of Representatives (the Senate concurring), 
That it is the sense of the Congress that--
        (1) all Americans should take an active role in the fight 
    against tuberous sclerosis by all means available to them, 
    including early and complete clinical testing and investigating 
    family histories;
        (2) the role played by national and community organizations and 
    health care providers in promoting awareness of the importance of 
    early diagnosis, testing, and ongoing screening should be 
    recognized and applauded;
        (3) the Federal Government has a responsibility to--
            (A) endeavor to raise awareness about the importance of the 
        early detection of, and proper treatment for, tuberous 
        sclerosis;
            (B) increase funding for research so that the causes of, 
        and improved treatment for, tuberous sclerosis may be 
        discovered; and
            (C) continue to consider ways to improve access to, and the 
        quality of, health care services for detecting and treating 
        tuberous sclerosis; and
        (4) the Director of the National Institutes of Health should 
    take a leadership role in the fight against tuberous sclerosis by 
    acting with appropriate offices within the National Institutes of 
    Health to provide to the Congress a five-year research plan for 
    tuberous sclerosis.
  Attest:

                                 Clerk of the House of Representatives.

  Attest:

                                               Secretary of the Senate.

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