Posts by ahimsa_pdx@disabled.social
(DIR) Post #B5BxHv9jmnFrd2Mfrs by ahimsa_pdx@disabled.social
0 likes, 0 repeats
Hello 👋I need your help! We need as many signatures on this community letter as possible! Anyone in the USA can sign! Allies needed!Solve ME & #MEAction are asking State Medical Boards to add ME/CFS questions to national licensing exams.Doctors need to learn about ME/CFS!Please sign here:https://docs.google.com/forms/d/e/1FAIpQLSdXIoHN1Ej7qadY4fhGF7BZB8dtX7zWul0jugb4sh75Ybl2RA/viewformThere are a few pages (scroll down to click next) but it doesn't take long.Boosts appreciated!Thank you ❤️@mecfs #MEcfs #LongCovid #MedMastodon #MedEd #Healthcare
(DIR) Post #B5BxHw9Q5SawiLDw0m by ahimsa_pdx@disabled.social
0 likes, 0 repeats
@mecfs Want to learn more about ME/CFS? (myalgic encephalomyelitis / chronic fatigue syndrome)Here are a few links.From #MEAction: https://www.meaction.net/what-is-meFrom Solve ME:https://solvecfs.org/me-cfs-long-covid/about-the-disease/From the CDC:https://www.cdc.gov/me-cfs/about/index.htmlFact sheet from Science for ME forum:https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527#MEcfs #SolveME #Science4ME
(DIR) Post #B5BxS0iPyHMNlaOhCC by ahimsa_pdx@disabled.social
1 likes, 0 repeats
@nova So cute, upside down with little "bunny paws" in the air! 😻
(DIR) Post #B5VLGEe8RLIOOuYCgq by ahimsa_pdx@disabled.social
1 likes, 0 repeats
@nova Facetime with Grandpa: "Wait, you're holding the phone too close, move back a bit!"
(DIR) Post #B5VLGHW5lhe1IpoK4O by ahimsa_pdx@disabled.social
0 likes, 0 repeats
🚨Urgent!You can help get more research funding for Long Covid, ME/CFS, and related illnesses! Use the link below to email your senators and ask them to sign on to a "Dear Colleague" letter for FY27 (fiscal year 2027) which calls for "$210 million in Long COVID research funding at NIH, ARPA-H, and AHRQ"The deadline for this action has been extended to Monday, April 20!https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27-1@longcovid @mecfs #LongCovid #MEcfs #POTS #Dysautonomia #FundLongCovid #MedMastodon #USPol #NIH
(DIR) Post #B5VLGIg3S9Cwu1TnEm by ahimsa_pdx@disabled.social
0 likes, 0 repeats
More info:- The number of US adults with Long COVID rivals cancer, with a disability burden comparable to Alzheimer's disease and half a million Americans forced to leave the labor force- Long COVID now surpasses asthma as the most prevalent chronic condition among U.S. children, with 5.8 million kids nationwide affected- Long COVID risk has not declined over time and reinfection doubles the risk of developing Long COVID@longcovid @mecfs #CovidIsNotOver #LongCovid #MEcfs #POTS
(DIR) Post #B5VLGKKVJF9q1lPbvM by ahimsa_pdx@disabled.social
0 likes, 0 repeats
If you'd rather call your U.S. senators instead of sending them email here's an automated tool for that:https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27You can always do both - send email and call - if you have the time and energy! Thank you for whatever action(s) you're able to do to get this research funding approved! ❤️@longcovid @mecfs #FundLongCovid #LongCovid #MEcfs #POTS #Dysautonomia #CovidIsNotOver #MedMastodon #USPol
(DIR) Post #B5pp8FS6RWDYN0EFXM by ahimsa_pdx@disabled.social
0 likes, 1 repeats
Hi folks 👋A friendly reminder: If your post includes an illustration, please credit the artist! When there's no credit I have to guess whether it's AI generated. That means I might just mute / block to avoid accidentally spreading AI images.I'm only a small account but this will reduce boosts & interaction. Others may be doing the same thing & just not telling you. So please, credit the artist! And don't use AI generated images!#NoAI #AIHype #FuckAI #Art #Illustration #TheMoreYouKnow
(DIR) Post #B5pp8I1csPoyLkreBU by ahimsa_pdx@disabled.social
0 likes, 0 repeats
May 12 is coming soon! #MEAction has this request:"Telling your story for Millions Missing this year is so important!There are MANY ways to tell your story & it all helps! Be yourself & know that if sharing your story brings up big feelings, you are not alone!"Tips for how to tell your story:https://www.meaction.net/millionsmissing-storytellingThis has a link to the Millions Missing toolkit and two videos.@mecfs #MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious #ChronicIllness #Medicaid
(DIR) Post #B5pp8J4UzDiHaxDSIi by ahimsa_pdx@disabled.social
0 likes, 0 repeats
@mecfs Source for the post above = https://bsky.app/profile/meactnet.bsky.social/post/3mkq7qtwvr62w Links with more information about ME/CFS:https://www.meaction.net/what-is-mehttps://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527https://www.cdc.gov/me-cfs/about/index.html#MEcfs #PwME #MillionsMissing
(DIR) Post #B60l4RrW6Blacebk4u by ahimsa_pdx@disabled.social
1 likes, 0 repeats
Yet another real headline that feels like it's from the Onion 🙃#USPol #TaxTheRich #Resist
(DIR) Post #B60l4TC795pwkpFhp2 by ahimsa_pdx@disabled.social
0 likes, 0 repeats
"Instead of being singled out and scorned in viral videos, Roth, CEO of Vornado Realty Trust, thinks the ultra-rich should be 'praised and thanked' and said calls to tax them more are akin to racial slurs."WTF? link to article:https://www.politico.com/news/2026/05/05/real-estate-titan-compares-tax-the-rich-slogan-to-racial-slurs-00907424#USPol #TaxTheRich #NYC #Resist
(DIR) Post #B60l4UXm82l2wIOWDw by ahimsa_pdx@disabled.social
0 likes, 0 repeats
RE: https://disabled.social/@ahimsa_pdx/116495749131742719Update from #MEAction: "How to Participate in #MillionsMissing 2026"https://www.meaction.net/post/your-story-can-change-everythingSome actions listed:- Share your story on social media from May 9 to 16- Submit your story to #MEAction's Story Bank- Help protect Medicaid by signing the letter sent to HHS Director- Register to join the event in Washington D.C. on May 12@mecfs #MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFuriousRT: https://disabled.social/users/ahimsa_pdx/statuses/116495749131742719
(DIR) Post #B60l4VZaInnc8CFTgO by ahimsa_pdx@disabled.social
0 likes, 0 repeats
@mecfs A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.https://www.youtube.com/watch?v=cPb9wOkRxMMNote: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)Direct link to toolkit:https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious
(DIR) Post #B6kBG8HQY9HTeJuG6S by ahimsa_pdx@disabled.social
0 likes, 1 repeats
RE: https://disabled.social/@tomkindlon/116640578558884764Quote:"Long COVID did not create medicine’s discomfort with invisible illness. It exposed a preexisting pattern that millions of patients had been navigating for decades.Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia, dysautonomia, POTS — these conditions share remarkable clinical overlap with Long COVID, and they share something else too: a history of being dismissed, minimized, and inadequately researched"@mecfs @longcovid #MEcfs #LongCovid #POTS #MedMastodonRT: https://disabled.social/users/tomkindlon/statuses/116640578558884764
(DIR) Post #B6kBGA2xystz839jqC by ahimsa_pdx@disabled.social
0 likes, 0 repeats
"What changed was not the existence of invisible illness.What changed was the number of people experiencing it all at once.Once millions of previously healthy people began experiencing chronic exhaustion, cognitive dysfunction, and functional instability simultaneously, the limitations of the healthcare system became far harder to dismiss."@mecfs @longcovid #MEcfs #LongCovid #CovidIsNotOver #ChronicIllness #InvisibleIllness #NEISvoid #Healthcare
(DIR) Post #B6w0Kls0WtaFzkXqc4 by ahimsa_pdx@disabled.social
0 likes, 1 repeats
"Oregon gets its first California condor visit in 122 years"https://www.opb.org/article/2026/06/02/oregon-first-california-condor-visit-122-years/"A California condor flew into Oregon last month, becoming the first free-flying condor documented in the state since 1904.Condor B9, a little more than two years old, was released into the wild last year by the Yurok Tribe’s condor restoration program. The tribe has been releasing condors since 2022."#Oregon #Environment #Wildlife #Birds #Yurok #Indigenous
(DIR) Post #BA6k9lMEFMOzg2gwPw by ahimsa_pdx@disabled.social
0 likes, 0 repeats
@eff I saw this last night and I'm still feeling bad about it. This is really a horrible take, @eff
(DIR) Post #BAAqPeWAow9zSH8v8S by ahimsa_pdx@disabled.social
0 likes, 0 repeats
@stux I also see people using nitter and xcancel (which are down temporarily due to legal issues) instead of direct links to X. I wonder, isn't reading posts on X, even if you're using a different interface, still helping to prop up X and keep it going? It seems like it but I don't know for sure, that's why I'm asking.
(DIR) Post #BAAqPi3FgPP0Pjdsbw by ahimsa_pdx@disabled.social
0 likes, 0 repeats
"Why Is No One Talking About Long COVID?— Attention has waned but patients are still suffering"https://www.medpagetoday.com/opinion/second-opinions/122902Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic. See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:https://batemanhornecenter.org/covid-19-triggers-me-cfs/@longcovid @mecfs #COVID #COVID19 #LongCovid #MEcfs #CovidIsNotOver