[HN Gopher] Cheap blood test detects pancreatic cancer before it...
       ___________________________________________________________________
        
       Cheap blood test detects pancreatic cancer before it spreads
        
       Author : rbanffy
       Score  : 301 points
       Date   : 2025-02-13 12:19 UTC (10 hours ago)
        
 (HTM) web link (www.nature.com)
 (TXT) w3m dump (www.nature.com)
        
       | mbreese wrote:
       | Here is the link to the actual paper.
       | 
       | https://www.science.org/doi/10.1126/scitranslmed.adq3110
        
       | duxup wrote:
       | So for a test like this, do you just give it to everyone without
       | symptoms?
       | 
       | For a very high mortality cancer is it even useful to test after
       | you have reason to test?
       | 
       | I read about these tests and breakthroughs that involve general
       | predictions and test, but I'm pretty sure when I go into the
       | doctor I'm not screened proactively for all that much.
        
         | allturtles wrote:
         | AFAIU, with pancreatic cancer usually by the time you have
         | symptoms you are already stage 4 and uncurable. So I'm assuming
         | the intent is to test non-symptomatic people.
        
           | duxup wrote:
           | That's what I was assuming as well. But then that leads to my
           | other question, do we really regularly screen people this
           | proactively for much at all?
        
             | The_Colonel wrote:
             | Measuring your blood pressure is an example of proactive
             | screening.
             | 
             | I assume we will start screening for things like cancer
             | when the test will be as simple / cheap as measuring your
             | blood pressure.
        
             | mwigdahl wrote:
             | In the US, asymptomatic people 50+ are routinely screened
             | for colon cancer with a much more expensive and invasive
             | process. A cheap blood test for another major killer seems
             | pretty reasonable to add in.
        
               | alistairSH wrote:
               | Are we still doing colonoscopies on "everybody", or are
               | we pivoting to the mail-in stool sample tests? FWIW, my
               | health plan sent my wife and I the mail-in kits last
               | year.
        
               | bluGill wrote:
               | There is still debate on that. Colonoscopies are
               | expensive and invasive, but they are the "gold standard".
               | A colonoscopy is every 10 years, the mail in sample is
               | every 3 (check with your doctor to see what is right for
               | you). The mail in sample is not as sensitive as well - I
               | used to know someone who died of colon cancer 1 year
               | after a negative mail in sample, a colonoscopy would have
               | saved her life. If the mail in sample finds anything they
               | send you to a colonoscopy anyway (but you get to the
               | front of the waiting list) to fix the problem.
               | 
               | For people at low risk the mail in sample is likely good
               | enough, and since a colonoscopy has other risks
               | (including kill you) may even be on balance be better for
               | those. However anyone with a higher risk should get
               | colonoscopies. Where the line between low and high risk
               | is though is very much up for debate.
               | 
               | The above is general discussion. For medical advice talk
               | to your doctor - who will know the right questions to ask
               | to figure out what is right for you.
        
               | unsupp0rted wrote:
               | How do the "mail-in" samples compare against the Amazon
               | "take a dab of stool and mix it in this bottle and look
               | for a color change" test kits?
        
             | absolutelastone wrote:
             | There's a long list of stuff people are supposed to be
             | screened for. Many people die of stuff that has high
             | survival rates when caught early.
             | 
             | Pap tests, mammograms, prostate exams, are other examples
             | for cancer.
        
               | moooo99 wrote:
               | Don't forget about skin cancers. Screening for it is
               | easily among the least invasive and least uncomfortable
               | screening procedures for any kind of cancer, yet many
               | people miss the opportunity for an early diagnosis
        
         | ethbr1 wrote:
         | The intent of non-invasive tests like this are that you give
         | them to _everyone_ , at scale, frequently.
         | 
         | And specifically tune them to minimize false negatives.
         | 
         | Worst case with a false positive? You're causing someone
         | anxiety and giving them an extra scan.
         | 
         | Best case? You just saved someone's life by detecting an
         | aggressive cancer early enough to do something about it.
         | 
         | At the end of the day aggressive, metastatic cancer is a time
         | game. If the cancer is given time, it becomes progressively
         | harder and harder to treat, and effective treatment options
         | become tougher on the rest of the body, until finally there's
         | nothing to be done.
         | 
         | So anything that gains time is critical.
        
           | giantg2 wrote:
           | They generally aren't going to give them to everyone. They
           | will give them to everyone within a certain group, such as
           | age 30+ since the under 30 group is very low risk (unless
           | family history, etc). Similar to how they don't test most
           | kids and younger people for cholesterol - it's just not a
           | significant problem for that age group.
        
             | ethbr1 wrote:
             | Traditionally, tests have been metered that way because of
             | costs (expensive reagents, preparation, processing) or side
             | effects (radiation from scans).
             | 
             | But the actual relevant equation is {cost of testing} vs
             | {cost of delayed treatment}
             | 
             | If the cost of testing, in economic and health senses,
             | decreases while the cost of delayed treatment holds
             | constant, a different mass deployment optimal point is
             | created.
             | 
             | Thankfully broader proactive testing is also in insurance
             | companies' financial interests, given the high costs of
             | late stage cancer treatment.
        
             | bluGill wrote:
             | Nearly everyone will reach 30 in their life, so it is safe
             | to say we give them to everyone. It isn't a one and done
             | test, cancer can form at any time in your life. To be
             | useful we need to give this to everyone over 30 (40,
             | 50....?) , on a regular schedule (yearly?). The article
             | doesn't specify those details (or at least not before I hit
             | the sign in wall)
        
             | absolutelastone wrote:
             | I think these days they do recommend screening all children
             | for cholesterol.
        
               | AlexErrant wrote:
               | Which is good because "ASCVD is a disease that begins in
               | childhood; hence, primordial prevention is an important
               | target for improving cardiovascular morbidity and
               | mortality later in life."
               | 
               | > Elevated LDL-C and triglyceride levels have a positive
               | correlation with atherosclerotic lesion prevalence that
               | persists from childhood through early adulthood...
               | Follow-up data from the Young Finns cohort after 12 and
               | 27 yr also demonstrated positive correlations between
               | elevated childhood serum cholesterol and triglycerides to
               | elevated levels in adulthood... Children from the i3C
               | cohort with high and borderline-high total cholesterol
               | have 1.5 to 2.13 times the risk of both fatal and
               | nonfatal cardiovascular events in adulthood than children
               | without. In addition, i3C children with high and
               | borderline-high triglycerides have 1.69 to 2.47 times the
               | risk than children with normal triglycerides.
               | 
               | https://journals.lww.com/jcrjournal/fulltext/2022/11000/p
               | rim...
        
             | litoE wrote:
             | One way to test lots of patients where a) there's a low
             | probability that an individual patient will have the
             | disease and b) the test is expensive is to first mix some
             | of the blood of each of N patients and do one test on the
             | mix. If the batch tests negative then all patients are
             | negative and you've only paid for one test. If the batch
             | tests positive then you have to repeat the test on the
             | remaining blood of each of the N patients to determine
             | which were positive. Thus, with a high probability you only
             | pay for 1 test, and with a low probability you have to pay
             | for N+1 tests. The value of N is easily computed to
             | minimize the overall cost, given the cost of each test and
             | the percentage of patients that have the disease.
        
           | nsxwolf wrote:
           | Worst case is the scan "sees something" which then puts them
           | on a diagnostic anxiety roller coaster for the rest of their
           | lives, "just to be safe". When in the alternate universe they
           | might not have gone another 60 years hardly ever seeing a
           | doctor.
        
             | smt88 wrote:
             | No, the worst case is death. Overdiagnosis of cancer leads
             | to overtreatment, which has a risk of harm.
        
               | modzu wrote:
               | how is information making that worse? you either have a
               | scan that shows a blip and you can use that information
               | to inform your decision making, or you have no scan and
               | go on without any kind of decision making. i know which
               | option id prefer
        
               | jghn wrote:
               | Because you can wind up in a situation where the "blip"
               | would have otherwise led to nothing problematic, but the
               | followup for the "blip" actually does cause harm. And at
               | an individual level it's impossible to tell which
               | category you're in.
        
               | daedrdev wrote:
               | Every medical procedure after a scan has danger. Biopsies
               | kill people. Colonospies kill people. The rate is
               | extremely low, but test enough people who aren't at risk
               | to have the disease and you will actively harm them.
        
           | jghn wrote:
           | > Worst case with a false positive? You're causing someone
           | anxiety and giving them an extra scan.
           | 
           | It is arguable that this as minor an issue as you make it out
           | to be. There has been work to try to assess this (google
           | "cancer overdiagnosis").
           | 
           | The counterargument to what you state is that a false
           | positive can not only lead to stress & unnecessary/more
           | invasive screening, but a treatment plan that's a net
           | negative. For instance: if a cancer were detected and it'd
           | wind up being a cancer that someone dies with instead of
           | from, and the treatment causes worse outcome than the cancer
           | itself, that's not good. The hard issue here is that these
           | things need to be determined at a population scale, and one
           | can always cherry pick personal anecdotes in either direction
           | to tug at heartstrings.
           | 
           | We seem to have found ourselves at a point where it's clear
           | there's a balance that needs to be struck, but it's unclear
           | what that balance is yet.
        
             | mattmaroon wrote:
             | He did say that you tune them to minimize false negatives.
             | 
             | I do find it interesting that in the early days of HIV
             | testing even most people who got a "positive" result were
             | in fact negative. The tests have since greatly improved and
             | the number of people taking a test due to hysteria rather
             | than likelihood of infection declined.
             | 
             | But I can imagine a world in which we get very many forms
             | of liquid biopsies like this every year, and false
             | positives become a thing we understand and are used to.
        
               | Goronmon wrote:
               | _He did say that you tune them to minimize false
               | negatives._
               | 
               | That's a bit hand-wavy for something that appears to be
               | the core issue with "test early, test often", isn't it?
        
               | ethbr1 wrote:
               | Whether one should bias to allow more false positives or
               | false negatives depends on the next steps after a false
               | positive vs the risks after a false negative.
               | 
               | False positive: more costly scans
               | 
               | False negative: untreatable terminal illness
        
             | mapt wrote:
             | The existing downsides of a might-be-cancer hit on a test
             | are real, for now - a statistically significant number of
             | people with a breast cancer diagnosis end up killing
             | themselves out of despair or doing radical surgery "to be
             | sure", which detracts from the social benefit of
             | mammograms. But there's no indication that they would
             | persist if false positives were more common because
             | proactive testing was more common. There would be a
             | pipeline of followup testing and risk evaluation, which
             | would be normalized by how common it was and how nonlethal
             | diagnostic hits would become.
             | 
             | It would become "Oh, yeah, my cousin got a hit, but
             | followup biopsy said it was a mutation that doesn't
             | metastasize. Guess we'll see next week." rather than "My
             | great-grandmother died of breast cancer, my mother died of
             | breast cancer, my friend's aunt died of breast cancer, this
             | feels like a death sentence", which is the information
             | people who receive hits on their mammogram testing are
             | acculturated with now.
        
               | jghn wrote:
               | Again, this is a well studied topic. Anyone claiming
               | they've identified the one true answer isn't someone who
               | should be believed. The topic is complex, at best. But
               | these are not hypothetical situations. There are data to
               | support the point to which you're countering.
               | 
               | You are correct that there exists a world where the
               | problem is minimized and at that point obviously the math
               | changes. But we're not there yet.
        
               | mapt wrote:
               | The argument is over whether we should seek to get there.
        
           | belmarca wrote:
           | I'm sorry but that is a very naive and honestly wrong take.
           | An "extra scan" is not just giving anxiety. It raises cancer
           | rates. It can discover underlying relatively bening
           | conditions which affect insurance coverage, for example. It
           | can cause anxiety. It takes away resources "just to make
           | sure". At the scale you are proposing, false positives are a
           | _massive_ issue that you simply cannot ignore. It is all but
           | trivial.
        
             | moooo99 wrote:
             | This is it, I am not sure how people can be so dismissive
             | about the risks of over diagnosis.
             | 
             | However, usually there are studies done to carefully weigh
             | the risks and benefits of testing likes this. I would
             | expect tests like these to become the norm for screening at
             | risk populations at some point (usually people beyond a
             | certain age or people with family history).
        
           | smt88 wrote:
           | This is incredibly wrong. This whole thread is.
           | 
           | Cancer testing is not benign. False-positive cancer diagnosis
           | has a >0 mortality rate, because further testing and
           | treatment is potentially fatal. Just a colonoscopy can be
           | fatal, as can a biopsy that requires anesthesia.
           | 
           | The medical world weighs these things against each other and
           | determines when the data shows that the risk of mortality
           | from testing is smaller than the risk of cancer.
        
             | blackeyeblitzar wrote:
             | > The medical world weighs these things against each other
             | and determines when the data shows that the risk of
             | mortality from testing is smaller than the risk of cancer.
             | 
             | Let the patient weigh the odds. Especially when they can
             | afford retesting or may be otherwise in good health or
             | whatever. Plus the test's algorithms can be tuned to
             | provide more or less false positives.
        
               | smt88 wrote:
               | > _Let the patient weigh the odds._
               | 
               | Patients are uninformed and emotional. Part of a doctor's
               | job is to make the best decision for the patient using
               | the information they have.
               | 
               | For example, if you tell people that daily aspirin
               | reduces the risk of heart disease, you might get a 25yo
               | with no heart issues starting to take it.
               | 
               | But if you look at actual data, all-cause mortality
               | _increases_ for people who have no risk of heart disease
               | if they take daily aspirin, because aspirin can cause
               | fatal internal bleeding.
               | 
               | That's the kind of thing doctors know and need to be firm
               | about.
        
               | blackeyeblitzar wrote:
               | I disagree. Doctors are frequently incompetent, don't
               | spend enough time with patients to understand them
               | deeply, and are not aware of the latest research or these
               | nuances.
               | 
               | But leaving that aside, this is about patient control.
               | Doctors should not be gatekeepers for diagnostics. I
               | don't even want them to be a gatekeeper for many
               | relatively safe prescriptions, which is clearly a way to
               | increase medical costs.
        
               | smt88 wrote:
               | > _Doctors should not be gatekeepers for diagnostics._
               | 
               | Doctors mostly aren't gatekeepers for risk-free
               | diagnostics, like a blood test for a vitamin deficiency.
               | Insurance companies are.
               | 
               | But for risky tests, doctors have a duty to "do no harm"
               | and can't/shouldn't order something that they know causes
               | an increase in all-cause mortality for their patients.
               | 
               | The concept is the same with antibiotics or anything else
               | a patient might ask for without knowing the risks.
        
               | ethbr1 wrote:
               | > _Doctors mostly aren 't gatekeepers for risk-free
               | diagnostics_
               | 
               | That's not entirely true. There are more than a few
               | diagnostics in the US that the FDA explicitly discouraged
               | companies from offering without physician referral. E.g.
               | whole genome sequencing several years ago
        
             | modzu wrote:
             | the obvious answer is additional testing to reduce the
             | likelihood of a false positive -- if additional tests are
             | invasive _those_ tests can be weighed on the balance of
             | risk just the same. i think the real problem is cost, we
             | cant afford /manage to do that correctly currently, which
             | is exactly what improved non invasive tests could enable
             | and disrupt this reactionary approach forever
        
               | smt88 wrote:
               | > _if additional tests are invasive those tests can be
               | weighed on the balance of risk just the same_
               | 
               | So let's say you have an extremely safe test. Let's use
               | the "mail your poop to a lab" test for colon cancer as an
               | example.
               | 
               | If that test (regardless of its accuracy) comes back with
               | a positive, you're going to do one of two things: A)
               | order a colonoscopy, perhaps with biopsy, to confirm the
               | presence of a malignant tumor; B) start treatment
               | immediately (if you trust the initial test enough).
               | 
               | So that brings you back to square one: you shouldn't do
               | the test, regardless of the safety, if the math works out
               | to make it riskier (due to false positives and
               | unnecessary tests/treatment).
        
               | modzu wrote:
               | i think i agree about "if the math works out" -- but
               | thats the hard question isnt it? isnt the accuracy of the
               | poop test significant? if 2 or 3 poop tests increase our
               | confidence in the result it changes the risk:benefit
               | calculation for the colonoscopy or treatment. thats an
               | easy win. but even if it did not, is the result from the
               | (preventative) poop test less valid data than a patient
               | complaining of pain? so generally speaking i agree we
               | dont want to enable a path to risky procedures based on
               | dubious evidence, but i think overall we are presently
               | operating with a dearth of information (waiting for
               | symptoms) and the math itself improves by having more
               | proactive testing (information) in the first place
        
             | derektank wrote:
             | I feel like you're missing the point. Yes, false positives
             | have risks. But if blood tests (or in the case of bowel
             | cancer, fecal tests like cologuard) are effective, we can
             | replace more invasive screening options with them. People
             | have historically been encouraged to get colonoscopies once
             | they reach a certain age because, for the general
             | population, the risks of cancer are higher than the risks
             | associated with a colonoscopy above the age of 50.
             | Developing less invasive tests lets us lower that age,
             | catching more cancers, while at the same time making
             | screening safer for people already in the recommended
             | screening window.
             | 
             | Also, pancreatic cancer, which is what the original article
             | is about, has no alternate form of screening. Most people
             | only find out they have it once it's already symptomatic,
             | which is usually stage 3 or 4
        
               | jghn wrote:
               | I'd argue that you are the one missing the point.
               | 
               | These things are already taken into account via
               | population scale statistics. In most cases, it's at best
               | debatable whether more or less screening leads to an
               | overall better outcome across the entire population
               | aggregate. The argument against more screening is that it
               | can (and the claim is it does) lead to overall worse
               | outcomes in aggregate. For any individual case however,
               | the story may be totally different.
               | 
               | What we need are better mechanisms to bin positive
               | results to steer people towards a finer grained course of
               | action. That'd change the math to be more of an overall
               | net benefit.
        
               | smt88 wrote:
               | > _But if blood tests (or in the case of bowel cancer,
               | fecal tests like cologuard) are effective, we can replace
               | more invasive screening options with them._
               | 
               | That is not what I'm arguing against. People in this
               | thread are talking about testing earlier and more often
               | because we have these new tests, not "just" replacing
               | existing tests.
               | 
               | The math is very unlikely to work out that we should do
               | that.
        
               | ethbr1 wrote:
               | Howso? Existing solutions vs more widely deployed and
               | frequent blood+fecal tests followed up by existing
               | solutions in the case of a potential positive?
        
             | cameronh90 wrote:
             | The emphasis there is on "further treatment". The test
             | itself is broadly benign (except the general risks
             | associated with phlebotomy and any risk of psychological
             | harm).
             | 
             | The issue is that doctors often over-react to adverse
             | results due to the risk of being sued if it did turn out to
             | be a true positive.
             | 
             | I have two examples of this. One was during a routine blood
             | test I had a liver enzyme flag up, which was then further
             | investigated non-invasively with ultrasound and it was
             | determined that I might either have moderately developed
             | NAFLD (non-alcoholic fatty liver disease, I'm obese) or
             | very early stage NASH (non-alcoholic steatohepatitis)
             | associated fibrosis. The doctor wanted to perform a liver
             | biopsy to confirm which is obviously an invasive procedure
             | with a 1%-ish risk of complications.
             | 
             | My response was to ask how the treatment would differ
             | between diagnoses, and he said in either case the treatment
             | would be the same: lifestyle change. He agreed that from a
             | risk perspective the biopsy was just inviting additional
             | risk for no benefit, but that policy is to recommend the
             | test and if I refuse it I'll need to sign an
             | indemnification document saying I was refusing further
             | diagnostics against medical advice. A few years go by, I've
             | made efforts to improve my lifestyle, lost weight, and now
             | my liver tests are all normal proving it was just NAFLD
             | after all.
             | 
             | In another case, I had a suspicious finding in an eye test
             | which (long story short) led to me getting two head CT
             | scans which showed no problems. In hindsight, I think a
             | double dose of brain radiation over a common minor finding
             | with no other symptoms was a crazy over-reaction and I
             | would have refused if I had all the facts, but it could
             | have been a life threatening situation in some ridiculously
             | tiny percentage of cases so it was all rush rush and I
             | didn't have time to weigh it up.
             | 
             | Often the correct thing to do may be a combination of
             | further non-invasive testing, repeating the test (possibly
             | after a period of time), and "watchful waiting". Doctors
             | often don't feel comfortable with the level of personal
             | risk that could expose them to, and for good reason. That
             | is the issue, not the test.
        
               | smt88 wrote:
               | > _The issue is that doctors often over-react to adverse
               | results due to the risk of being sued if it did turn out
               | to be a true positive._
               | 
               | Do you think a patient is going to receive a false
               | positive and accept a response from a doctor of, "Oh,
               | might be a false positive. Let's ignore it and not do any
               | more risky testing."?
               | 
               | That scenario makes no sense from either perspective. If
               | you get a positive, you do more testing (or skip to
               | treatment).
               | 
               | Your examples are well-taken and I understand them, but
               | they don't apply to cancer. When you detect cancer with
               | any test, you immediately do something risky: either a
               | further test that involves risk, or treatment that
               | involves a lot of risk.
        
               | toast0 wrote:
               | > Do you think a patient is going to receive a false
               | positive and accept a response from a doctor of, "Oh,
               | might be a false positive. Let's ignore it and not do any
               | more risky testing."?
               | 
               | I mean, it depends on the test; a reasonable answer could
               | be this is likely a false positive and confirmation tests
               | have risks, here are some symptoms to look out for, and
               | we'll test on a regular basis and see if anything
               | changes. That's not appropriate for all positive results
               | from screenings, but it is for some.
        
         | jillesvangurp wrote:
         | Depends, colon cancer, breast cancer, prostrate cancer, etc.
         | are pretty commonly tested/screened for in certain age groups
         | and that definitely saves lives.
         | 
         | My aunt died of pancreatic cancer last year. It's a pretty
         | common and aggressive form of cancer. She only had a few months
         | from diagnosis to the grave. By the time she got diagnosed,
         | there was nothing that they could do except provide pain
         | relief.
        
           | bluGill wrote:
           | My dad got lucky to get his detected relatively early (they
           | happened to be doing an unrelated test and "saw something",
           | but that just meant two years of chemo and all those side
           | effects before he died. If they hadn't found it when they did
           | it would have been 1 year of side effect free life followed
           | by 6 months of pain for something untreatable - in short
           | overall a better end of life though he would have lost 6
           | months. If they had found it 6 months sooner though odds are
           | it would have been treated and he would still be with us.
        
             | blindriver wrote:
             | If we don't detect more people early and try to cure them,
             | it will never be solved. The more people that get detected
             | early, the better chance everyone has of surviving,
             | especially those in the future.
        
         | chasebank wrote:
         | Isn't this fundamentally a statistical issue? With a test
         | sensitivity of 99%, meaning a 1% false positive rate,
         | administering it universally to individuals would generate a
         | significant number of false positives. This influx could
         | overwhelm the system, potentially limiting access for those who
         | genuinely require medical attention.
        
           | duxup wrote:
           | That's what I'm wondering too. Even if 1%, if the follow up
           | is very expensive, the initial test might be cheap but
           | overall cost might be very expensive / prohibitive.
        
             | bluGill wrote:
             | So you are arguing we should just let people die?
             | 
             | This is a cancer that is typically detected only after it
             | advances far enough that you will be dead in 6 months (not
             | treatment possible). If we could detect it 2 years sooner
             | it would be treatable and most people could life for many
             | more years. Sure the total cost of a positive will be much
             | higher - between whatever tests to verify it isn't a false
             | positive, and all the treatment it will be a lot more
             | money. However by spending that money many people will live
             | a lot longer.
             | 
             | Maybe you don't like any old people, but I often wish I
             | could show my dad my latest project. This test could have
             | saved his life if we had it 15 years ago.
        
               | cameronh90 wrote:
               | Technically we just "let people die" all the time.
               | 
               | We could spend more money on road safety (or say, reduce
               | the speed limit to 10 mph) but we don't because the costs
               | are too high.
               | 
               | Now, given the relatively common but almost universally
               | fatal nature of pancreatic cancer, any sort of moderately
               | effective screening is probably worth doing, but the
               | argument that if we don't then some people will die isn't
               | very strong.
        
               | daedrdev wrote:
               | If you test enough people, you can reach a point where
               | given you have a positive test, there is say a 90% chance
               | it's a false positive. Taking further action can
               | potentially harm you. Given the danger of further
               | testing, and that many time people see no benefit from
               | treatment, its is completely possible on average it can
               | make die more often to get tested.
        
           | thinkingtoilet wrote:
           | If the test is cheap, you could run it 2 or 3 times. Then the
           | false positive rate would be pretty low and you could proceed
           | with more intense treatments/diagnostics.
        
             | rflrob wrote:
             | That assumes that what causes the false positive is some
             | kind of analytical noise in the test. The bigger concern is
             | biological noise that would persist if you tested the
             | patient again.
             | 
             | It might still be useful to know you have weird protease
             | activity that isn't cancer derived, but the more of these
             | tests we do, the more likely it is that for every person,
             | there'll be at least one non-cancer oddity that looks like
             | cancer signal for at least some test.
        
           | onlyrealcuzzo wrote:
           | Isn't this problem fixed by just doing another blood test?
           | 
           | I thought that's how HIV rapid testing works.
        
           | crhulls wrote:
           | Sensitivity is the false negative rate.
           | 
           | Although it is the opposite of what the doctors want, I would
           | prefer a less sensitive but highly specific test.
           | 
           | If I had 80% sensitivity I'd miss out on 20% of cancers, but
           | if I could match that with a 99.9% specificity I'd have very
           | few false positives.
           | 
           | I hope this type of test can tune that direction.
        
           | absolutelastone wrote:
           | Screening recommendations are based on statistical arguments
           | that take false positives (plus the risk of the test itself)
           | into account and calculate whether more people would be
           | helped than harmed.
        
       | pfdietz wrote:
       | > The nanosensor correctly identified healthy individuals 98% of
       | the time,
       | 
       | Since pancreatic cancer would have to be detected before any
       | symptoms occur for this to be useful, the test would have to be
       | applied to everyone. The incidence of PC is 1 per 10,000 per
       | year. If the test is applied once per year, then for every true
       | positive result there would be 200 false positives (actually
       | worse, since it only detects PC 3/4 of the time.)
        
         | newsclues wrote:
         | If you can cheaply test everyone, and narrow down the number of
         | people requiring more expensive testing, you can potentially,
         | at scale, detect and limit negative health outcomes. There is
         | both an economic and societal benefit to testing and treating
         | people.
        
           | pfdietz wrote:
           | If the more expensive testing is at all invasive (for
           | example, biopsies) or still has false positives (benign
           | tumors, say) then it could end up being a net negative. This
           | effect has bedeviled screening for other cancers, like breast
           | and prostate cancers.
        
             | steveBK123 wrote:
             | Sure but the current state of affairs is clearly not
             | optimal from an individual patients perspective. You notice
             | this as you hit 40, 50 years old.
             | 
             | I know multiple "woops we don't screen
             | often/early/proactively for that" cancer deaths in mid 30s
             | to mid 50s.
             | 
             | I even know a few "wow good thing you had that CT scan for
             | xyz, we just found some unrelated Stage 2 cancer elsewhere"
             | people.
             | 
             | I know ZERO "oops false positive, we killed you with an
             | invasive procedure" deaths. I know they happen, just clear
             | to me its less often than the above.
        
               | jf22 wrote:
               | From now on we should probably make all medical decisions
               | treatment decisions based upon your steveBK's personal
               | experiences.
        
               | steveBK123 wrote:
               | Maybe you are young and/or lucky, but you'll find over
               | time an increasingly disconcerting amount of
               | friends&family dying preventable/otherwise treatable
               | (with screening) deaths from cancer.
               | 
               | Note I said "from an individuals perspective". It is
               | possible for the system to be optimized from a
               | cost/benefit system level perspective without it
               | providing the best possible outcome for each individual.
               | Given that its run by the government & for-profit
               | insurance, this is probably the case.
               | 
               | I think it is a bit hard to argue that the US medical
               | system in general is perfect, and beyond reproach. Let
               | alone the gaps in our pro-active cancer screening. Places
               | like South Korea and China do far more, with less.
        
         | steveBK123 wrote:
         | Most of these symptom-less-until-you-are-dead cancers are very
         | very slow moving and mostly hit above certain ages.
         | 
         | It's all in tuning the population & frequency.
         | 
         | You could test those aged 30+ or 40+ every 5, maybe even every
         | 10 years.
        
           | pfdietz wrote:
           | I understand the recommendation for breast cancer screening
           | is that women should stop doing it above age (I think) 70,
           | even though the incidence of BC continues to increase with
           | age, due to declining benefit/risk.
        
             | steveBK123 wrote:
             | Correct a lot of stuff can stop being screened for because
             | of incidence of disease, how slowly it moves, expected
             | remaining lifespan, and ability of elderly to endure
             | whatever treatment they would receive anyway.
        
       | bloomingkales wrote:
       | Elizabeth Holmes: I was too early!
       | 
       | Speaking of the banality of evil in another thread, Elizabeth
       | Holmes really just made a poorly timed stock pick. Lying and
       | stuff, that's a constant amongst that type, so let's factor that
       | out.
       | 
       | She might have been right all along though, weird.
        
         | jghn wrote:
         | There is an enormous gulf between what Theranos was doing and
         | these sorts of tests. For starters, one was just making crap
         | up. The other actually has some potential merit.
        
         | blackeyeblitzar wrote:
         | Her notion of frequent and cheap diagnostics was correct. But
         | the main difference with their solution was being able to just
         | do a finger prick, which was maybe a nice idea but definitely
         | did not work. And their claims, knowing it didn't work, were
         | fraudulent and harmed thousands of people who got bad test
         | results.
        
       | proee wrote:
       | There seems to be a ton of benefits to doing all kinds of blood
       | work - from vitamin deficiencies, hormonal changes, cancer signs,
       | etc. Our system is very reactionary in that we order all these
       | tests AFTER we get sick.
       | 
       | Why is there not a more proactive approach to getting bloodwork
       | done with as many tests as possible? We should see this type of
       | service like going to the dentist.
       | 
       | Seems like a good industry to disrupt.
        
         | NotYourLawyer wrote:
         | I mean, you're supposed to get a yearly checkup. They do blood
         | work.
        
           | plasticsoprano wrote:
           | Yes but that blood work checks things like cholesterol and
           | vitamin deficiencies. They aren't checking for these types of
           | markers that point toward cancers. They may notice something
           | is out of whack that may lead to more specific testing but I
           | think the overall question is why aren't we just checking for
           | everything more frequently with these blood draws?
        
             | 6LLvveMx2koXfwn wrote:
             | I had to explicitly ask for Vit D and Iron/Ferritin to be
             | added to the default bunch of tests on my _decennial_
             | check-up as I was constantly tired. They eventually found
             | out I had iron-deficient anaemia caused by undiagnosed
             | Coeliac disease.
        
               | OptionOfT wrote:
               | It's very important to advocate for yourself at the
               | doctor.
               | 
               | My wife went to the doctor many times complaining about
               | fatigue. Response: "Oh, you're unemployed, you must be
               | just bored...".
               | 
               | We moved, new doctor, new yearly checkup, and one
               | attentive doctor noticed something on her. 6 months and a
               | whole battery of tests later she got a diagnosis of EDS.
               | A genetic disease that causes issues with connective
               | tissue.
               | 
               | She was always tired because her muscles were
               | compensating in places where people who have normal
               | connective tissue can rely on this tissue as a
               | stabilizer.
               | 
               | I'm very glad that you were able to get your diagnosis.
        
             | kodt wrote:
             | The amount of blood drawn isn't enough to run all of these
             | tests at once. They would need to multiple blood draws for
             | tests that in most cases will end up being unnecessary.
        
               | plasticsoprano wrote:
               | It's unnecessary until it finds something. My doctor is
               | pretty thorough and I will give 3 vials with my yearly
               | physical bloodwork. I get a pretty comprehensive set of
               | results but my grandfather died of pancreatic cancer and
               | I'd love for this to be included in that testing.
        
               | mapt wrote:
               | I had a wide panel at one point after a statistically
               | unlikely health event.
               | 
               | It was something like 300ml of blood spread over ~40
               | vials. They tried to charge me $7500.
               | 
               | It did lead to a diagnosis.
        
             | davikr wrote:
             | It's complicated - for screening to be done, the mortality
             | reduction must outweigh the overtreatment and overdiagnosis
             | risks.
        
           | leetrout wrote:
           | Yes, but insurance does not cover large amounts of screening
           | tests. Last year my A1C check was not covered. In North
           | Carolina my wife's vitamin D test is not covered by her
           | primary or gyno for routine checks.
        
           | Sloowms wrote:
           | Depends on the country you live in. There are countries that
           | don't do them with similar health results as countries that
           | do them.
           | 
           | There is a stereotype that Dutch doctors will prescribe
           | paracetamol for anything because they are really defensive
           | with medication and doctor visits and the result is generally
           | the same as countries that do check ups.
        
         | axus wrote:
         | Theranos tried the "move fast and test blood" approach. Maybe
         | one of the existing testing companies can find a more balanced
         | approach in the current environment.
        
           | mapt wrote:
           | Widespread pre-emptive testing was not what Theranos tried.
           | Defrauding investors that the technology existed for
           | widespread, inexpensive pre-emptive testing even at small
           | scale is what Theranos tried.
           | 
           | There is almost certainly gold in them hills if you dig deep
           | enough and survey systematically enough, but Theranos started
           | with precise coordinates, claiming they'd "found it", and
           | demanded investors for a mine, while privately they were
           | thinking "If we don't find it on the surface, who cares, we
           | got paid, this is how VC works".
        
           | snowwrestler wrote:
           | Theranos' specific claim was that they could do existing
           | tests with way less blood and way less cost. One of the ways
           | they kept their fraud under wraps was to simply do the tests
           | the old way behind the scenes.
           | 
           | So, blood tests in general were not the controversial part of
           | Theranos.
           | 
           | As others have pointed out, the obstacles to large scale
           | prophylactic blood testing are false positives, and general
           | resistance of health insurers to fund anything not strictly
           | reacting to disease or injury.
        
           | rsynnott wrote:
           | Theranos's issue was that their tests simply didn't work. It
           | was more "move fast and pretend to test blood".
        
         | anonzzzies wrote:
         | For me (eu) the dentist is pricy but these tests are included
         | in public and private; i can ask my doctor any time and i get
         | them, including for markers. Dentist costs, I do it every 6
         | months, but most people i know maybe once every few years.
        
         | 10729287 wrote:
         | The issue is that too much tests could also lead to false
         | negatives and all the impacts that follow, especially on the
         | patient's mind.
        
         | blackeyeblitzar wrote:
         | I find that doctors are very resistant to ordering blood tests.
         | I often get responses saying it isn't necessary or whatever. I
         | feel patients should be entitled to whatever diagnostics they
         | demand. I don't know why doctors are even needed to get that
         | done. Other than the scam of insurance coverage of course.
        
         | jpeizer wrote:
         | Despite how much we know in medicine we still know too little.
         | Bloodwork will give you a snapshot of that persons blood
         | chemistry. It's still up to the doctor and lab to put together
         | what that composition means. In other words, if there is too
         | much iron in the blood there could be x number of reasons for
         | that. Most might be benign, and a small handful could be life
         | threatening.
         | 
         | (Not a doctor just surrounded by them)
        
         | mlyle wrote:
         | You have to be careful with screening tests.
         | 
         | Say that this test has a false positive 1 in 1000 times. If you
         | test 100,000 people, you'll get 100 positives that need
         | invasive further testing and followup, and 5 real pancreatic
         | cancer cases.
         | 
         | Society will pay for 100,000 tests, and 105 cases of followup.
         | You may cause lasting harm to some of those 105 people. And
         | then it's not clear if you can improve the survival of the 5
         | pancreatic cancer cases much. They'll live longer after
         | diagnosis (because you diagnosed earlier) but not necessarily
         | longer overall.
         | 
         | (One other screening effect: You'll find more "real cancer"
         | that is so slow growing that it may have always remained
         | subclinical before the more sensitive testing; And the most
         | serious cancers, you won't find so much sooner, because they
         | grow so much in the interval between tests.)
        
           | caesil wrote:
           | Then let's take those things into account when calculating
           | what tests to do. Surely, though, we can do better as a
           | society than solving this with "no preemptive testing except
           | for extreme risks".
        
             | lm28469 wrote:
             | > Surely, though, we can do better as a society
             | 
             | We haven't even solved the most basic shit like shelter,
             | food, education, &c for millions of people in the west, as
             | a society we're faaaaaaaaar from universal yearly full
             | health checkups. As an individual feel free to get private
             | checks, they'll gladly take your money
        
               | aurizon wrote:
               | The fact that there are huge costs in the USA to even
               | periodic medical checkups has severely impacted longevity
               | in the USA to the point it ranks close to Cuba in
               | longevity. Those with a health plan are close to the
               | highest ranked nations. The poor without a plan at all
               | are around ~4-5 less long lived. There is a nice rabbit
               | hole in this data. https://www.google.com/search?q=longev
               | ity+charts&rlz=1C1CHZN...
               | 
               | This has a huge GDP cost in the USA, that needs to be
               | addressed. The causes are big
               | pharma/hospo/AMA/insuro/lobbyo.... One wonders why the
               | AMA is there? - they limit the numbers of doctors trained
               | in Universities/training hospitals to forestall price
               | competition among doctors by various means. Dentists do
               | the same.
        
               | toast0 wrote:
               | Cost of a yearly checkup should be "taken care of",
               | because Obamacare mandated free annual checkups, as long
               | as you don't accidentally trigger any other billing codes
               | while you're there. But, regardless of cost, there's a
               | shortage of providers, so it's hard to schedule the
               | checkup. And there's still a lot of uninsured people out
               | there.
        
             | vharuck wrote:
             | The US Preventive Services Task Force (USPSTF) is the body
             | doing that meta-analysis and writing recommendations. The
             | recommendations are for general patients (high-risk
             | patients should be identified and guided by their doctors),
             | and are based on how much the screening/prevention will
             | extend or improve patients' lives. The USPSTF explicitly
             | does not consider monetary cost.
             | 
             | https://www.uspreventiveservicestaskforce.org/uspstf/recomm
             | e...
        
             | mlyle wrote:
             | There's a ton of research and regulatory oversight in this
             | area, and the choices made generally make sense. You can
             | safely assume that the testing recommendations are 3-5
             | years behind the research, though.
        
             | okaram wrote:
             | We do, it's not as if we aren't doing any testing. I've
             | been getting a yearly prostatic antigen test for several
             | years now.
             | 
             | The recommendations tend to take these into account, and
             | then you and your doctor adjust.
             | 
             | Sometimes politics gets into it, like with the recent
             | changes to breast cancer recommendations, but, overall, it
             | works well for many people.
        
           | GeekyBear wrote:
           | You would need to take into account how aggressive a given
           | cancer is and our ability to treat it.
           | 
           | For instance, prostate cancer blood screening often led to
           | radical treatments that are no longer thought to be worth it
           | for most people.
           | 
           | > most prostate cancer grows so slowly, if it grows at all,
           | that other illnesses are likely to prove lethal first
           | 
           | https://www.nytimes.com/2023/05/08/health/prostate-cancer-
           | sc...
           | 
           | In the case of pancreatic cancer, it is much more aggressive
           | and you need to catch it early.
        
             | mlyle wrote:
             | > In the case of pancreatic cancer, it is much more
             | aggressive and you need to catch it early.
             | 
             | It's not clear that the cancers that you would find early
             | with a more sensitive test are those more aggressive
             | cancers.
             | 
             | The pancreatic cancers we find with our current detection
             | (generally after becoming symptomatic) are typically quite
             | aggressive. But are they _all_ the cancers? Likewise, if
             | the cancer is aggressive, it can grow quite a bit between
             | screening intervals and not be found all that early.
             | 
             | (Part of why we think that "finding cancer early" is such a
             | benefit is that because the smaller/earlier cancers we find
             | are less aggressive than the cancers that we first find
             | when they're huge and spread. There is definitely an effect
             | from earlier detection but our estimate of it has been
             | confused by this effect.)
             | 
             | As we've increased cancer screening, we've found that
             | survival rates have gone up, as have survival times after
             | detection... but unfortunately we've often also found that
             | the screening doesn't always reduce the number of people
             | dying of that cancer at a certain age. Instead, you find
             | more cancers, and you find them earlier so more people live
             | to 5 years, even if you've changed nothing. Cancer
             | treatment has gotten better, but most of the benefits we
             | have expected from better cancer screening have not
             | materialized.
             | 
             | Finding pancreatic cancer early sounds good. And it _may_
             | be able to reduce mortality from pancreatic cancer, but it
             | 's not a sure thing.
        
             | slashdev wrote:
             | My grandfather (a doctor) always used to say this. There's
             | also an aggressive fast growing kind of prostate cancer,
             | but treatment basically does nothing for survival rates (or
             | at least that was the case decades ago when he was
             | practicing.)
             | 
             | So his advice was, don't look, don't treat. Either you have
             | the slow one and treatment is harmful, or you have the fast
             | one and you're going to die soon anyway.
        
               | GeekyBear wrote:
               | Your grandfather's take has become increasingly accepted
               | for prostate cancer. There is more of a watch and see
               | attitude to make sure that the patient doesn't have a
               | rare case of aggressive growth.
               | 
               | As you mentioned, the outcomes aren't significantly
               | different, regardless of how you treat it.
               | 
               | From the article linked above:
               | 
               | > Researchers followed more than 1,600 men with localized
               | prostate cancer who, from 1999 to 2009, received what
               | they called active monitoring, a prostatectomy or
               | radiation with hormone therapy.
               | 
               | Over an exceptionally long follow-up averaging 15 years,
               | fewer than 3 percent of the men, whose average age at
               | diagnosis was 62, had died of prostate cancer. The
               | differences between the three treatment groups were not
               | statistically significant.
        
               | slashdev wrote:
               | The irony is he died of prostate cancer. He ignored his
               | own advice and treated it. It did not change the outcome
               | or buy him much time, if any.
        
             | hsuduebc2 wrote:
             | You can just run test multiple times to eradicate this
             | possibility or you can confirm it with another method.
        
               | mlyle wrote:
               | > You can just run test multiple times to eradicate this
               | possibility
               | 
               | The measurements are not independent and the quality of
               | the measurement is not improved by this.
               | 
               | > you can confirm it with another method.
               | 
               | Yes. And usually the other method is invasive and
               | expensive and bears some risk.
               | 
               | And then you get results like the blood test saying "very
               | likely cancer" and the biopsy saying "uh, _probably_ not?
               | " that you need to decide what to do with.
        
           | Redoubts wrote:
           | > You may cause lasting harm to some of those 105 people.
           | 
           | Could you elaborate on this?
        
             | jtc331 wrote:
             | For example you might do surgery on people who wouldn't
             | benefit.
        
             | daedrdev wrote:
             | you will do surgery on some of the 105 people. Some of them
             | might die from complications, infections, etc or at least
             | have lasting damage. Since several of the 5 people will not
             | be any better off with treatment it's entirely possible
             | that the screening produces palpably worse outcome.
             | 
             | The earlier you screen, the worse this is, since the ratio
             | of false positives vs true positives gets higher and
             | higher, for example 1000 vs 5 or 10000 vs 5.
        
               | tptacek wrote:
               | It's also psychologically harmful to have the positive
               | test hanging over your head. I'm nearing the age where
               | doctors start harassing about colonoscopies. You can do
               | an at-home test instead of the full procedure, and it has
               | a very good chance of ruling out the need for a
               | colonoscopy. But it also has a high false positive rate;
               | there's a decent chance that you'll end up in a state of
               | "need a colonoscopy, also a colon cancer screener flagged
               | you". I'm dreading the colonoscopy prep, but I'm not
               | doing the at-home thing.
        
               | jeswin wrote:
               | I've had colonoscopies twice. Was just half a day of
               | inconvenience if you schedule it for the morning.
        
               | tptacek wrote:
               | The scope, right? Not the at-home test? The only thing
               | about the scope that bugs me is the prep.
        
               | kelseyfrog wrote:
               | I've been scoped twice and the prep sucks. It's shitting
               | your ass out for half a day. On the positive side,
               | getting sedated isn't half bad and you get the day off
               | work.
        
           | AustinDev wrote:
           | Can't you just run the test again instead of doing a full
           | follow up? 1/1000 * 1/1000 = 1/1,000,000
        
             | okaram wrote:
             | You only get that probability if the test results are
             | completely uncorrelated, chances are, they're not.
             | 
             | I'd assume the chances of getting a second false positive
             | if you already got one are much higher.
        
           | tptacek wrote:
           | For people surprised by this argument, the phenomenon he's
           | invoking here has a name: the Bayesian Base Rate Fallacy.
        
           | fragmede wrote:
           | > Society will pay for 100,000 tests
           | 
           | For better or worse, under the American healthcare system,
           | the patient pays for those tests, sometimes covered by
           | insurance. If the tests are paid for out of pocket by the
           | patient, is there still such issue?
        
             | s1artibartfast wrote:
             | I think the issue is exactly the same no matter who pays.
             | 
             | To reframe it from the individual patient's perspective,
             | when you take a test simply for the sake of screening,
             | there is the chance you'll learn something true that helps
             | you, and the chance you will learn something false that
             | hurts you
        
             | mlyle wrote:
             | The economic argument doesn't change whether it's a private
             | cost or purely a social cost (private costs are included in
             | social costs, since private expenditures are part of
             | society's expenditures).
        
           | fallingknife wrote:
           | You are assuming that those false positive rates are fixed,
           | but they aren't. The "positive" criteria are done by an
           | analysis exactly as sophisticated as a human scanning a list
           | of numbers. The process is a joke and it needs to be improved
           | by more data and better analysis, not this nonsensical "don't
           | test people because they might be positive" argument.
        
             | mlyle wrote:
             | No, I'm assuming there's a tradeoff between sensitivity
             | (spotting cancers) and specificity (having your positive
             | results actually be cancer).
             | 
             | ANOVA to pick variables and then reasonably selecting
             | thresholds is a fine process that avoids overfit.
             | 
             | The big problem is, biology is messy and measuring lots of
             | people to find correct thresholds is really expensive and
             | time consuming. It's not really a technological problem,
             | though technology has helped a little.
        
         | lm28469 wrote:
         | It probably all comes down to cost. I remember reading studies
         | about widespread melanoma screening and they were writing
         | things that basically amounted to: "overall it adds ~0.5 day of
         | life expectancy to the average Joe, based on costs &co it's
         | worth it if you consider 1 year of human life worth $30k"
        
         | stuartjohnson12 wrote:
         | I was the tech lead at a YC company doing exactly this (Spot
         | Health, W22) until a little while ago. There's a ton of very
         | hopeful things happening in the industry behind the scenes.
         | Insurance via employee benefit schemes is the lever to drive
         | this into people's lives.
         | 
         | The industry refers to this as gap closure - care gaps are
         | instances of a patient not receiving care when they should
         | have. For example, not getting treatment for stage 1 cancer
         | because you didn't have a checkup is a care gap.
         | 
         | Insurance companies are very incentivised to close care gaps
         | because it results in cheaper premiums. Incentives between
         | health insurance and patients are often not aligned (as we've
         | seen in the news recently), but this is one case where they are
         | radically incentivised to offer additional diagnostics if it
         | results in fewer costly payouts for severe illnesses that come
         | later.
         | 
         | In the medium term, the cost of full genome sequencing is
         | quietly experiencing a 10x decrease in cost. Within a decade, I
         | expect it to be the norm that all people are fully genetically
         | sequenced and for the correlations enabled by that dataset to
         | have made the value of being sequenced 10x. So probably a 100x
         | increase or so in the value of genome sequencing over the next
         | few years.
         | 
         | (Also, before anyone says it, yes 23&Me should feel very very
         | ashamed for the deanonymised patient record data breaches
         | they've experienced. The whole industry needs a slap in the
         | face when it comes to privacy)
        
           | hn_acc1 wrote:
           | I guess after ~30 years past grad school in the software
           | industry, having had high hopes for the internet and
           | everything back in the 90s, I'm way too cynical.
           | 
           | This won't be used to "close the care gap", unless they can
           | charge more $$ for the additional checkups than they'll
           | expect to have to give out in care as a result.
           | 
           | And they'll drop anyone suspected of needing too much care in
           | the future based on their genome, even if they aren't sick.
           | Pre-existing conditions times 100 (you know they'll be re-
           | instated by the current administration soon enough).
           | 
           | e.g. 17% of the people with that gene had cancer, and you
           | have it, so raise your rates 151%. Oh wait, 37% of the people
           | with this other gene had dementia - you're no longer covered.
           | 
           | Eventually, they'll only accept those people with a genomic
           | lifetime 90% profit profile. That's the way this sort of
           | thing works in the "real" world.
        
         | MPSimmons wrote:
         | I believe the answer is the false discovery rate -
         | https://en.wikipedia.org/wiki/False_discovery_rate
        
         | mattmcknight wrote:
         | I just order them myself every year at LabCorp.
         | https://www.ondemand.labcorp.com/products
         | 
         | I definitely prefer doing the testing myself instead of begging
         | the doctor to order things.
         | 
         | About the only time I go to doctors is to beg for antibiotics-
         | which they often refuse to give me. They say, "oh, it's
         | probably a virus." Okay, but all of the virus tests I can find
         | came back negative. I have a CBC showing elevated WBC. Coughing
         | up yellow-green slime. Can you order a sputum culture for me?
         | "no, come back if you are still sick after 10 days". Great,
         | $200 and 30 minutes in the waiting room getting exposed to
         | other sickos for nothing, miss another week of work. The
         | gatekeeping of medical care infuriates me. I have plenty of
         | money, let me use it to get better faster.
        
           | nanomonkey wrote:
           | At this point you just order the same antibiotics off of
           | Amazon for your "fish" and self administer?
        
       | StevenNunez wrote:
       | Is this the test offered by https://www.functionhealth.com/? I
       | know they have an early cancer blood screening as a part of their
       | tests.
        
         | fosterfriends wrote:
         | Has anyone tried function? I'm curious how legit it is.
        
           | devin wrote:
           | I have wondered about it as well. I worry that I'll get a few
           | results that are slightly outside of normal range and then
           | sit around wondering if I'm dying, which seems like more
           | stress than it's worth.
        
           | Symmetry wrote:
           | My parents got it for me. A lot of dark pattern upselling on
           | the website you can't correct there but relatively painless
           | to correct that on the phone. All the labwork seems to be
           | done via CLIA labs in the standard way, they grab as many
           | vials of blood as you'd expect and the numbers for one test
           | were close to the ones from a test my doctor ran. Lots of
           | hogwash interpretation in addition.
           | 
           | So: they're predatory but play by the rules.
        
           | kylesnc wrote:
           | i have, feel it's reasonably priced, and i've been pleased
           | with what i've gotten for the money. i wanted it for exactly
           | the reason of "don't wait until after you've got a serious
           | problem".
        
       | pharaohgeek wrote:
       | Aspiring pancreatic cancer survivor here. This is excellent news.
       | Part of the reason this is such a deadly form of cancer is that
       | there are often no symptoms until it's far too late. I know that
       | there is a blood marker - CA19 - can indicate issues with the
       | pancreas. I don't know if this blood test is related to that or
       | anything, but any advancements on this disease are great and
       | sorely needed.
        
       | e40 wrote:
       | I've known > 10 people who have died from this cancer. It is my
       | #1 fear (cancer wise). My best friend died 3 months to the day
       | after being diagnosed. It is both a blessing and a curse how
       | quickly this kills you. The day before he found out we went on a
       | long walk. Within a couple of weeks we'd walk around the block,
       | then just sit in his living room and talk for hours. The bad
       | times lasted about 1 week and the last 2-3 days he was not really
       | there.
       | 
       | I really hope this test becomes a reality and is OTC and not too
       | expensive.
        
         | croissants wrote:
         | I was going to ask about this number, because it seems high
         | enough to be statistically improbable, but back-of-the-envelope
         | arithmetic says otherwise: there are about 10 cases of
         | pancreatic cancer per 100,000 people per year [1], so let's say
         | each person has a 1 in 10,000 chance of a diagnosis each year.
         | If you know somebody for 50 years, there's a 1 in 200 chance
         | they receive a diagnosis in that time, so you'd expect to need
         | to know 2000 people to eventually know 10 diagnosed people.
         | 2000 is a lot, but "knowing" a person is a pretty loose term,
         | and pancreatic cancer has a miserably high death rate within 5
         | years, so it's unfortunately plausible.
         | 
         | [1] https://seer.cancer.gov/statfacts/html/pancreas.html
        
           | steveBK123 wrote:
           | The number of people you know who have or die of cancer grows
           | exponentially with age once you are an adult.
           | 
           | In 20s-early 30s, maybe 0 if your parents/uncles/aunts are
           | lucky. You can be completely oblivious to it if your older
           | relatives manage to escape it.
           | 
           | By 40 you start hearing about friends having it pretty
           | routinely. We seem to have hit a one close friend per year
           | pace at the moment.
           | 
           | Every time I talk to my 70+ parents, they are telling me
           | about a funeral they've been to recently, often caused by
           | either cancer or heart disease.
        
           | Teever wrote:
           | Keep in mind that there could be clusters of cases related to
           | environmental contamination so it's very possible that some
           | people know more people who get a particular form of cancer.
        
           | s1artibartfast wrote:
           | if you take the 1/200 chance over 50 years, here is the
           | percent chance you know 10 diagnoses depending on your number
           | of friends/acquaintances
           | 
           | 50 people: 8.36149e-12 %
           | 
           | 500 people: 0.026%
           | 
           | 1000 people 3.1%
           | 
           | 2000 people: 50%
        
           | e40 wrote:
           | This is people I know or my family knows. My mother knows 4-5
           | people. I've had 2 coworkers die of it. I've had 1 in-law die
           | of it. It's crazy how fast the numbers add up.
        
         | cyberlimerence wrote:
         | I'm so sorry for your loss. Could you share how old they were ?
         | I'm relatively young, but the fear of getting some form of
         | cancer is on my mind lately. And the timing of it always seems
         | to be so cruel.
        
           | e40 wrote:
           | He was 76 and in really good health. Worked out regularly.
           | Ate well.
        
         | kaidon wrote:
         | Just lost my father to pancreatic cancer as well a couple weeks
         | ago. They caught it very early with a CT scan, performed a
         | significant surgery followed by radiation and chemo. The chemo
         | nearly killed him. Had a couple ok months after chemo, but then
         | it spread and the last couple weeks were awful. Even catching
         | this stupid cancer really early often isn't enough - I hate it.
        
           | wolfi1 wrote:
           | just a hunch, but if you can detect it via CT or MRI isn't it
           | already too late? I guess these blood tests can detect it
           | even earlier an then the prognosis could be significally
           | better
        
             | jghn wrote:
             | Not necessarily but that's the idea. Tumors will start
             | shedding cells into the bloodstream as they start forming.
             | These types of tests are able to identify tumor cells in a
             | blood draw.
        
         | rilkeanheart wrote:
         | I signed in just to upvote this. I've lost friends and
         | relatives to this. I couldn't agree more that I fear this
         | cancer more than any other- because it is so untreatable by the
         | time it's caught. An inexpensive test would be incredibly
         | helpful towards improving the survivability.
        
         | saturn5k wrote:
         | My best friend died of pancreatic cancer at 41. By the time he
         | received the diagnosis, it was too late. The cancer had
         | metastasized so extensively that the surgeons could do nothing
         | when they attempted to operate. What began as mild lower back
         | pain led to a slow and agonizing death in just a few months.
        
           | busymom0 wrote:
           | That's exactly what happened to my friend's father. He had
           | been complaining about lower back pain for many months and
           | going to physio for it. During a family re-union during
           | Christmas, he had to be hospitalized and got diagnosed with
           | stage 4 pancreatic cancer. One week later, he died.
        
       | csours wrote:
       | > The nanosensor correctly identified healthy individuals 98% of
       | the time, and identified people with pancreatic cancer with 73%
       | accuracy.
       | 
       | ctrl+f specificity
        
       | ForOldHack wrote:
       | Steven P. Jobs.
        
       | daft_pink wrote:
       | How come we're always talking about new and amazing tests, but I
       | never am able to actually get these test at the doctor?
        
       | croes wrote:
       | Cheap for whom?
       | 
       | And it the part I can read without subscription it says simple
       | test not cheap. Did they mention they price further down.
        
       | ugh123 wrote:
       | Cue the doctors and industry saying "too many tests are bad for
       | you"
        
       | doctoring wrote:
       | Public service announcement: There are already blood tests for
       | detecting pancreatic cancer and other cancers on the market, and
       | more coming, depending on where you live. So get tested, if this
       | is something you are worried about.
       | 
       | I believe the only commercially available one in the US is
       | Grail's Galleri (https://www.galleri.com).
       | 
       | More info on this category of tests:
       | https://www.cancer.org/cancer/screening/multi-cancer-early-d...
       | 
       | There are many tests in the pipeline -- although the technology
       | is there, the regulatory and evidence process is slow. (Data
       | relating to detecting cancer early, by its nature, takes a long
       | time and a lot of people to prove out.)
        
         | e40 wrote:
         | The Galleri website says:
         | 
         |  _> Assumes screening is available for all prostate, breast,
         | cervical, and colorectal cancer cases and 43% of lung cancer
         | cases (based on the estimated proportion of lung cancers that
         | occur in screen-eligible individuals older than 40 years)._
         | 
         | Doesn't list pancreatic.
         | 
         | EDIT: never mind, I found a more complete list.
         | 
         | https://www.galleri.com/what-is-galleri/types-of-cancer-dete...
        
         | Someone1234 wrote:
         | If Grail's Galleri is that great, why isn't it part of an
         | annual checkup?
        
           | raffraffraff wrote:
           | Annual might not be any good. I knew a guy who had a history
           | of colon cancer in his family. He got checked annually from
           | his mid 30s on. At 46, a few months after a clear checkup, he
           | visited his doctor who sent him for another check, and bam:
           | he had cancer.
        
           | nradov wrote:
           | It's expensive, accuracy isn't very high, and no one has done
           | the studies to demonstrate that it actually improves subject
           | outcomes. By its very nature that type of research takes a
           | long time because the investigators have to wait years to
           | detect a difference in subject survival rates or other
           | significant endpoints.
           | 
           | There's a huge amount of funding going into the liquid biopsy
           | space so things will improve. But don't expect rapid changes
           | in clinical practice.
        
         | fallingknife wrote:
         | Sounds great.
         | 
         | > The Galleri test is available by prescription only.
         | 
         | But JFC I can't stand being required to get permission from one
         | of those glorified bureaucrats just to collect data on my own
         | body.
        
       | caycep wrote:
       | https://europepmc.org/article/MED/39937880
       | 
       | Sadly, the group lists funding sources as: National Cancer
       | Institute: P30CA069533 National Cancer Institute: P30CA069533
       | 
       | So the group's activities likely on pause, and with a good
       | likelihood of closure due to the lack of NIH indirects from the
       | current administration.
        
         | daedrdev wrote:
         | If I expressed my thoughts on this it would break a lot of HN
         | guidelines.
        
           | phony-account wrote:
           | Aw come on - the money is obviously much better spent on some
           | armored Cybertrucks.
        
           | pstuart wrote:
           | It's a pity that even discussing policy/objectives/outcomes
           | is fraught with danger here. Partisan sniping obviously
           | doesn't belong, but we now live in a world where vaccines,
           | energy production and efficiency of use, climate science et
           | al, are all "politicized".
           | 
           | For those wielding power, that's a feature, not a bug.
        
         | boplicity wrote:
         | Please remember this next time there's an election.
        
           | pstuart wrote:
           | This and so much more.
        
           | breadwinner wrote:
           | HN crowd remembering it is not enough. The problem in the
           | U.S. is that the electorate is divided into two camps: the
           | educated and the uneducated. The uneducated camp votes
           | without a deep understanding of important issues, and they
           | can easily be influenced using "culture wars" topics such as
           | DEI and trans kids. Consider that 53% of Americans approve of
           | the administration's performance so far--why is that? How can
           | we effectively explain things to that 53%? That's the
           | challenge.
        
         | baxtr wrote:
         | Can someone build an agent that identifies groups that will
         | have to stop activities and then match them with groups outside
         | the US?
         | 
         | This could potentially help to sustain their work if the other
         | groups/labs agree to take over.
        
           | baxtr wrote:
           | Genuinely curious: why downvote this idea?
        
         | nradov wrote:
         | What is the correct amount of indirect for NIH grants? I'm not
         | informed enough to have an opinion on this, but based on seeing
         | the luxurious facilities and high administrative staffing
         | levels at many research universities it seems like there might
         | be some fat we could cut? I've read claims by other prominent
         | researchers that this change is a net positive since it will
         | free up funding for more actual research. So, I don't know who
         | to believe?
        
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