[HN Gopher] An exoskeleton let a paralyzed man walk, then its ma...
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       An exoskeleton let a paralyzed man walk, then its maker refused
       repairs
        
       Author : paulpauper
       Score  : 59 points
       Date   : 2024-10-11 21:03 UTC (1 hours ago)
        
 (HTM) web link (www.washingtonpost.com)
 (TXT) w3m dump (www.washingtonpost.com)
        
       | ChumpGPT wrote:
       | http://archive.today/cKeCi
        
       | wiskinator wrote:
       | And this is why right to repair laws are a thing.
       | 
       | Also, genuinely I'd be interested in helping this guy hack his
       | exoskeleton to let it work again.
        
         | kleiba wrote:
         | That depends on how exactly a right to repair law is going to
         | regulate things. Will a company have to provide parts for older
         | models forever? Because in the article it says that he was
         | going to fix it himself but couldn't find the part that
         | connects the battery to his controller watch.
        
           | jjk166 wrote:
           | They shouldn't be making such unnecessary proprietary
           | components. For cases where there really is no way around
           | using custom hardware, at end of life the specifications
           | should be made public so that a third party can manufacture
           | them.
           | 
           | In this specific case, the real issue is just the incredibly
           | short service lifetime. While different medical devices are
           | going to have different lifetimes, manufacturers need to
           | continue to provide support for at least 36 months after
           | reporting that they plan to discontinue support, which is 60%
           | of the lifetime of this product. Typically medical devices
           | are supported for much longer.
        
             | tedunangst wrote:
             | Isn't five years longer than 36 months?
        
               | jjk166 wrote:
               | 36 months is 60% of five years.
        
           | cptaj wrote:
           | Not sure about the US but in some countries this is regulated
           | for cars. Companies are required to provide parts for a
           | certain amount of years after discontinuation of the product.
           | 
           | It seems abundantly reasonable that a similar requirement be
           | imposed for prosthesis. And it would also be very reasonable
           | for the required period to be longer than that of cars.
           | 
           | So yeah, not forever, but definitely not a a short period
           | either.
        
             | rootusrootus wrote:
             | > Not sure about the US
             | 
             | I think this was something that used to be regulated but is
             | not now. There's plenty of financial justification for
             | supporting cars 10 or more years by making parts, since
             | most last longer than that. For niche products that are
             | practically one-offs, I can see where it might need to be
             | regulated because the economics won't encourage it.
        
         | ars wrote:
         | He's not being blocked from repairing it, and he doesn't need
         | to hack it.
         | 
         | He just needs a part. (They did eventually send it to him.) If
         | they had not, he doesn't need the _right_ to repair it, rather
         | would need someone to manufacture the part.
        
           | rkhassen9 wrote:
           | But is a compelling reason to have solid right to repair
           | laws.
        
             | financetechbro wrote:
             | One could imagine a solid industry of 3rd party parts
             | providers if devices are built under a right to repair
             | framework
        
               | yellers wrote:
               | Once again, that thing falls under FDA regulations.
               | You're telling us about a world with 3rd party mix and
               | match components, all FDA approved in any and all
               | combinations on 5 year plus old devices?
        
           | the_gorilla wrote:
           | >He just needs a part.
           | 
           | Right to repair, in a broad sense, also covers access to
           | parts. This is definitely an edge case and we might want to
           | just consider that if we're going to do experiments on
           | disabled with the aim of helping them, and they want to
           | continue using the tools, we might have to subsidize access
           | to the parts until they die.
        
             | mattmaroon wrote:
             | I don't think it's an edge case at all. Right to repair
             | doesn't require a manufacturer to continue making parts or
             | spend their own money on creating a large inventory of
             | them. It's one thing to require Apple to sell you a phone
             | screen they are still making, it's another to require them
             | to be able to sell any number of them at any time from ones
             | they do not.
             | 
             | Right to repair is a negative right. There's no reason to
             | turn it into a positive one.
        
               | the_gorilla wrote:
               | It's an edge case because the supply is so small and the
               | hardware is so specialized. If this were an iPhone screen
               | there's be a dozen companies in china capable of
               | producing and selling them near cost if apple didn't
               | interfere, and we'd have plenty of people willing to
               | repair and resell the screens if apple would stop abusing
               | US customs to seize repaired screens as they've done in
               | the past.
        
         | yellers wrote:
         | Hang on, what about the part where the FDA only approved the
         | thing for a 5 year use and essentially pushed the manufacturer
         | into liability if they worked on it after that period? Maybe
         | that's the issue that needs repairing first.
        
           | tomrod wrote:
           | Your point is valid, and is improved when we recognize it's
           | not an either/or blame game when acknowledging the parts of
           | the system that need improvement for failures like this
           | person experienced.
        
           | akira2501 wrote:
           | It doesn't sound like a hard and fast rule. It seems like
           | it's whatever the manufacturer asks for in terms of "intended
           | working life." This _seems_ to be the original FDA
           | certification for the device:
           | 
           | https://www.accessdata.fda.gov/cdrh_docs/reviews/den130034.p.
           | ..
           | 
           | The problem here, of course, is it's not the device itself,
           | but the simple remote control peripheral that is designed to
           | switch device operating modes.
           | 
           | The FDA should force manufacturers of "two piece" systems
           | like this to have backup controls on the device itself and to
           | exclude these non-medical components designed for control
           | from any regulation covering "intended design life."
           | 
           | It seems like a daffy middle ground that the FDA lets exist
           | and manufacturers take advantage of when they can.
        
       | seb1204 wrote:
       | So in the end it was a mix of bad company actions and regulations
       | that made this repair a struggle for him.
       | 
       | I heard from a mobility scooter technician that there is barely
       | any second market for the as typically the health insurance will
       | get you a new one every few years. So similar to the companies
       | response to just buy the newest model.
        
         | krisoft wrote:
         | > was a mix of bad company actions and regulations
         | 
         | We actually don't know the second part. What we know is that
         | the company claimed that regulations were involved. Might or
         | might not be true.
         | 
         | Wouldn't be the first time when a company didn't want to do
         | something for financial reasons and they decided to read the
         | regulations in a way which made them more money.
        
       | jkestner wrote:
       | As for needing to provide parts into the future, a friend's
       | company does aftermarket service for many expensive pieces of
       | government equipment. Presumably they're able to make what's
       | needed because the government requires it of the original
       | manufacturer.
       | 
       | The government could require that manufacturers either supply
       | replacement parts or specs for someone else to manufacture them.
       | I suppose the latter would be required to avoid gouging. It'd be
       | interesting to think about the secondary effects--if you can't
       | make a lot of money off of service, will you make longer-lasting
       | products and charge appropriately?
        
       | dataflow wrote:
       | Why in the world did the reporters not try to investigate the FDA
       | rules that supposedly prevents this, instead of trying to shame
       | the company? Either the company is wrong, or that's the real
       | story here.
        
         | Me000 wrote:
         | Why didn't people investigate the republicans who stole all the
         | FDA funds?
        
         | fakedang wrote:
         | My thoughts exactly. But then again, journalists have long
         | ceased to be investigative or technologically versed.
        
       | m3kw9 wrote:
       | I wonder if he posted the part on Reddit they could have helped
       | him
        
       | aucisson_masque wrote:
       | > Medicare said it would start paying for 80 percent of
       | exoskeletons, which at Lifeward cost about $100,000.
       | 
       | > And although that coverage doesn't extend to paraplegics who
       | have injuries to their spine as high up as Straight
       | 
       | Oh man, i feel for everyone who live in the USA and require any
       | sort of medical help. Either you spend all your hard earned money
       | or you got to get in a though fight with the medical
       | administration.
        
         | exolymph wrote:
         | While the US healthcare system does suck in numerous ways, is
         | this kind of thing even available elsewhere, via socialized
         | medicine? (Maybe the answer is yes, which would be great!)
        
       | from-nibly wrote:
       | Right to repair should cover things like putting locks on devices
       | that are illegal to unlock to repair. Making it illegal to do
       | whatever the Frick you want to something you bought. Making it
       | illegal to make parts yourself or have 3rd party companies make a
       | part.
       | 
       | It should not force companies to build parts for you. Forcing
       | people to do work they do not want to is insane. That kind of
       | talk would prevent me from building anything and letting my
       | neighbor borrow it.
       | 
       | And no, saying "it wouldnt apply to you just <insert
       | demographic>" doesn't make me feel any better about that.
        
       | throwaway48476 wrote:
       | In other news Microsoft abandoned the surface duo after 1 yearly
       | android update. If you don't control the software you don't
       | really own the device, whether it be a phone or an exoskeleton.
        
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       (page generated 2024-10-11 23:00 UTC)