[HN Gopher] Peter Buxtun, whistleblower who exposed Tuskegee syp...
       ___________________________________________________________________
        
       Peter Buxtun, whistleblower who exposed Tuskegee syphilis study,
       has died
        
       Author : racional
       Score  : 229 points
       Date   : 2024-07-16 03:17 UTC (19 hours ago)
        
 (HTM) web link (www.theguardian.com)
 (TXT) w3m dump (www.theguardian.com)
        
       | toomuchtodo wrote:
       | https://en.wikipedia.org/wiki/Peter_Buxtun
       | 
       | https://en.m.wikipedia.org/wiki/Tuskegee_syphilis_experiment
        
       | rectang wrote:
       | > _Buxton himself could be self-effacing about his actions,
       | saying he did not anticipate the vitriolic reaction of some
       | health officials when he started questioning the study's ethics._
       | 
       | Humans relentlessly believe themselves to be just and righteous.
       | To maintain that self-sense, they will gladly deceive themselves
       | -- and often much worse.
        
         | somenameforme wrote:
         | Yip, I think this is the main moral to be taken from this
         | incident, and many like it. It's not like the people carrying
         | out these experiments were just sadistic racists. They probably
         | saw themselves as being able to, in the long run, save far more
         | people and create a greater, safer, and healthier society for
         | everybody, being able to eventually treat not only syphilis but
         | any other disease which may manifest similarly.
         | 
         | About the time somebody starts arguing that the ends justifies
         | the means, something has probably gone wrong. Because the
         | "ends" people envision quite rarely come to pass, yet the means
         | of trying to pursue those ends _do_ , with 100% certainty,
         | happen. So most often you end up with all the evils, and none
         | of the utopian justifications at the end of the road.
        
           | kerkeslager wrote:
           | Sounds like a lot of startups.
        
           | max_ wrote:
           | I don't think a racist ever thought about themselves as
           | racists.
           | 
           | Racism is usually a notion of people having an explanation
           | for why they behave towards another race.
           | 
           | There are always explanations. I don't think there is any
           | racist that doesn't have an explanation.
           | 
           | For American slavery it was that "African Americans" are just
           | animals, not human. So it made sense to use/teat them like
           | donkeys or vermin.
           | 
           | In Nazi Germany, the explanation was that Jews are veramin
           | and so veramin needs to be exterminated.
           | 
           | In South Africa it was a "scientific" theory they had called
           | Holism [0] which basically described that everything should
           | be kept in its place hence apartheid policies.
           | 
           | In Gaza the explanation is religious i.e God have us land X,
           | and this we need to cleanse the land of it's "invaders".
           | 
           | Also, look at caste systems in India. They have explanations
           | of why they do that. They don't see themselves as racist.
           | 
           | The explanations still occur today using "statistics",
           | "data", & "science" with stuff like IQ "research" & "race
           | realism".
           | 
           | "Racist" is something we project on people.
           | 
           | But racists always think they actually have a Nobel or
           | logical cause for thier activities.
           | 
           | [0]: https://en.m.wikipedia.org/wiki/Holism_and_Evolution
        
             | echoangle wrote:
             | What's your definition of racism? White supremacists are
             | certainly racist and would probably tell you that they are
             | racist, too. That's their whole message. Nazi Germany
             | Leaders would probably have been ok with having been called
             | racist, too. They were talking about being superior than
             | other races all the time.
        
               | max_ wrote:
               | I think a black man declaring all white people evil
               | vampires is racist.
               | 
               | But we seldom call oppressed minorities racist.
               | 
               | My definition of racism is the application racial
               | stereotypes to individuals & groups
        
               | bbarnett wrote:
               | For me, it depends upon how the 'groups' part is applied.
               | 
               | An example that seems sexist: women love shoes.
               | 
               | However, this isn't sexist... it's simply statistically
               | true. Where *isms come into play, where sexism occurs, is
               | seeing the individual and then thinking "Ah, a woman...
               | clearly she _must_ love shoes ".
               | 
               | Applying group derived statistical fact to individuals is
               | where racism, sexism occurs.
               | 
               | Another example, black people in America show lower
               | outcomes on IQ tests. There is a lot of debate as to why,
               | whether it is genetic (an example, do Black people have
               | less incidents of autism? Autism is often correlated with
               | mental issues, but also conversely with higher test
               | scores in some areas.) But really, it doesn't matter
               | _why_. Whether it is genetic, whether it is cultural, or
               | what.
               | 
               | What matters is that we understand the group statistic
               | exists, but that no matter _what_ we do not simply apply
               | such thought processes to the individual. After all, a
               | few percentage in group testing has no basis for
               | determining if the person in front of me is capable or
               | not.
               | 
               | I've met (as an example) some very unintelligent white
               | people, and some very intelligent black people, a few
               | percentage difference as a group is not relevant here.
               | 
               | Yet if we pretend group differences don't exist, how can
               | we possible try to fix it.. if it is cultural? Or worse,
               | what if it is environmental, such as... poor nutrition
               | which hurts brain development during youth? Such things
               | can be fixed, yet if we pretend there is no difference,
               | how can we try to fix it?
               | 
               | So again, the primary must be to treat individuals as
               | just that, and treat groups as just that, otherwise.. how
               | are we being fair?
        
             | somenameforme wrote:
             | To me racism has a pretty simple litmus test - would you
             | treat an individual of another race, but in an otherwise
             | identical background situation differently? If yes, then
             | it's probably racist. If not, then it's probably not. So
             | Tuskegee has some interesting backstory. It was inspired by
             | a similar experiment that was carried out in Norway that
             | followed the progression of untreated syphilis in thousands
             | of people over decades. [1]
             | 
             | That study provided extensive data and information on the
             | progression of syphilis, but at the time it was believed
             | that syphilis affected different races in different ways.
             | And black Americans had (and still have) infection rates
             | dramatically higher than other major groups. So this meant
             | that studying this exact group could not only be overall
             | most impactful on a population basis, but was also the
             | least well understood group (as the Norwegian study
             | presumably lacked much of anybody of African ancestry) and
             | so the most most likely to yield novel/informative science.
             | 
             | So if these individuals had otherwise been just another
             | subgroup of whites (but one still had reason to think
             | syphilis might affect them differently than e.g.
             | Norwegians), would we still have carried out this
             | experiment? It's impossible to say for certain, but I think
             | the answer is probably yes. Not only was such
             | experimentation already happening across the globe,
             | including in relatively homogeneous societies, but there
             | have been all sorts of other US government driven
             | experiments on the population where white groups were just
             | as readily experimented on like MKUltra [2], Operation Sea
             | Spray [3], and so on endlessly.
             | 
             | [1] - https://www.sciencedirect.com/science/article/abs/pii
             | /002196... (note the date on the paper)
             | 
             | [2] - https://en.wikipedia.org/wiki/MKUltra
             | 
             | [3] - https://en.wikipedia.org/wiki/Operation_Sea-Spray
        
               | mandmandam wrote:
               | Did you ... Did you just try and. use MK Ultra and
               | Operation Sea-Spray to claim the Tuskegee experiments
               | weren't racist? :o
               | 
               | Systemic racism in medical research cannot be justified
               | by comparing it to other unethical experiments... Really
               | would have thought that was obvious?
               | 
               | Also, even the analogies are terribly flawed. The Oslo
               | experiments involved retrospective examination of medical
               | records and autopsies, not the withholding of treatment.
               | And Tuskegee victims were not informed of the real nature
               | of the study - a clear ethical violation which
               | disproportionately targeted a vulnerable racial group.
        
               | somenameforme wrote:
               | That is not what happened in Oslo. This is the lead
               | paragraph of the abstract of the paper from it:
               | 
               | ----
               | 
               | Nowhere in the world is there a more unique opportunity
               | to learn what happens when early syphilis goes untreated
               | than from the files of Boeck of Oslo, Norway. His
               | scientific conviction as to the inadequacies of the
               | specific treatment of the day led him to withhold
               | treatment from approximately 2,000 patients with primary
               | and secondary syphilis during the twenty-year period,
               | 1891-1910. Community protection from infection was aided
               | by the hospitalization of these patients until all traces
               | of the disease had disappeared (from 1 to 12 months,
               | average 3.6 months). In 1929, his successor, E.
               | Bruusgaard, reported on a follow-up study of 473 of these
               | patients and provided information on the outcome of
               | untreated syphilis, which has formed the basis for
               | prognostic statements on syphilis for more than twenty-
               | five years.
               | 
               | ----
               | 
               | In Oslo the patients were both hospitalized and then had
               | treatment withheld. His successor then carried out a
               | retrospective study on what happened. It's unclear what
               | the patients were told, but I suspect it was not 'We're
               | going to hospitalize you for months, but not treat you.'
        
               | mandmandam wrote:
               | This is a side-point, quite apart from the fact that you
               | claimed Tuskegee wasn't racist because MK-ULTRA also
               | affected white people. I really hope you think that one
               | over, because it's a truly horrid and utterly
               | indefensible take.
               | 
               | And you're still _very_ wrong on this side-point, because
               | from 1891 to 1910, _there was no known effective
               | treatment for syphilis_. Whereas during Tuskegee
               | (1932-1972), penicillin was both widely available for
               | most of that time and known to be effective.
               | 
               | I don't know why you're making these awful comparisons,
               | but I'm interested how you formed these views. Did you
               | hear these arguments on a podcast somewhere, or are they
               | your own? ... And why on Earth would you think Peter
               | Buxtun's death was the appropriate time to bring them
               | up??
        
               | somenameforme wrote:
               | When one looks at history, it's like we're on a loop. And
               | I think a big part of that is because we fail to ever
               | "really" learn from the past. And I think one part of
               | that is demonizing the past with labels, instead of
               | actually trying to understand what really happened and
               | why. Because when we overly demonize things it makes it
               | impossible to imagine any reasonable person, let alone
               | ourselves, ever engaging in anything even remotely awful
               | - 'it could never happen again.' But of course it will,
               | and it won't just be "evil" people doing it.
               | 
               | So to your post here - you're again factually mistaken.
               | There were indeed numerous treatments for syphilis in the
               | 19th century, as the paper specifically mentions
               | treatment being withheld should have clued you into.
               | These treatments had significant side effects, but such
               | is often the nature of medicine. What would you think of
               | a doctor that intentionally withheld chemo or other
               | similarly dangerous treatments to thousands of cancer
               | patients, to instead observe what happened to them absent
               | treatment? That is what happened in Norway, and again I'm
               | sure the doctor had the best of intentions, presumably he
               | was working to develop a more effective treatment.
               | 
               | If you have any factual or logical arguments I'm more
               | than happy to hear them, and indeed perhaps there is
               | something I am not considering. But I find the appeals to
               | emotion and bias mixed with a healthy helping of ad
               | hominem and straw man quite silly, and I will not engage
               | with that.
        
               | mandmandam wrote:
               | The guy claiming the Tuskegee experiments weren't racist
               | is also now claiming the moral high ground.
               | 
               | I'm out.
        
               | bbarnett wrote:
               | It's not clear to me if people in this thread are
               | differentiating between "certain categories of humans
               | have specific genetic vulnerabilities" and "we're going
               | to be racist without logical or researched cause".
               | 
               | It actually _hurts_ people to not take into account their
               | genetic background, an example is sickle cell anemia,
               | which originates primarily in black people, who have a
               | family tree from Africa.
               | 
               | Why? Well, even though it causes severe issues, it also
               | protects from malaria parasites! There was an
               | evolutionary derived pressure to spread this in that
               | population group. And, during covid this caused
               | additional problems for those with sickle cell. It also
               | highlighted how Italians, most specifically those in
               | Sicily have a strong likelihood of having sickle cell,
               | primarily due to the endless, centuries long Roman
               | occupation of Africa.
               | 
               | Women and men are physically different, and have
               | different issues to account for (osteoporosis a great
               | example here). Men often have too much iron, where as
               | women too little. Treating everyone the same would mean
               | not treating anyone correctly.
               | 
               | So, yes.. there are racial and sexual differences to take
               | into account during studies, and medical treatments. As
               | with everything, the true way to behave is often neither
               | extreme.
               | 
               | No one should be mistreated during treatment, and
               | treatments should not be racist... while understanding
               | that racism isn't "different genetic groups of humans are
               | predispositioned for certain conditions".
        
               | mandmandam wrote:
               | No one is saying that all people are genetically the
               | same. No one is arguing that sayig "different genetic
               | groups of humans are predispositioned for certain
               | conditions"is racist, or that medical treatment needs to
               | ignore biological differences.
               | 
               | What is being claimed by OP is that since atrocities were
               | _also_ inflicted on white people during unethical medical
               | experiments such as MK ULTRA, withholding known treatment
               | from a specific racial group in Tuskegee without their
               | consent can 't be called racism (which is so absurd that
               | maybe that's where you got confused?).
               | 
               | Hope that clears things up for you.
        
               | bobthepanda wrote:
               | That's not really why the study was conducted on African
               | Americans.
               | 
               | > The conception which lay behind the U.S. Public Health
               | Service Syphilis Study at Tuskegee in 1932, in which 100%
               | of its participants were poor, rural African-American men
               | with very limited access to health information, reflects
               | the racial attitudes in the U.S. at that time. The
               | clinicians who led the study assumed that African-
               | Americans were particularly susceptible to venereal
               | diseases because of their race, and they assumed that the
               | study's participants were not interested in receiving
               | medical treatment.[4][45]
               | 
               | > Taliaferro Clark said, "The rather low intelligence of
               | the Negro population, depressed economic conditions, and
               | the common promiscuous sex relations not only contribute
               | to the spread of syphilis but the prevailing indifference
               | with regards to treatment."[45] In reality, the promise
               | of medical treatment, usually reserved only for
               | emergencies among the rural black population of Macon
               | County, Alabama, was what secured subjects' cooperation
               | in the study.[4]
               | 
               | I mean the other racist part was the fact that
               | penicillin, which is still a standard treatment of
               | syphilis today, was developed while the study was ongoing
               | and yet there were still three more decades that it ran.
        
               | WarOnPrivacy wrote:
               | >> Taliaferro Clark said, "The rather low intelligence of
               | the Negro population, depressed economic conditions, and
               | the common promiscuous sex relations not only contribute
               | to the spread of syphilis but the prevailing indifference
               | with regards to treatment."...
               | 
               | This is a fairly sickening mindset. I hope I am never not
               | sickened by it.
        
               | s1artibartfast wrote:
               | Strange. I have no problem reading it as a literal
               | description with no bigotry or racism implied.
        
               | wizzwizz4 wrote:
               | If it were about J.R.R. Tolkien's orcs, then I might
               | agree. When _basic observation_ disproves 3/4 of your
               | "literal description" about a racially-defined
               | population... those "facts" probably didn't originate
               | from honest mistakes.
               | 
               | It's possible to be racist while using objective
               | language: there's an entire Wikipedia article on
               | scientific racism.
        
               | s1artibartfast wrote:
               | What was the basic observation that disproves it?
               | 
               | It was a statement about a specific group of people in a
               | specific situation. I assume most of it was based in
               | contemporary reality.
               | 
               | You could probably say the same thing about other places
               | today and be correct.
               | 
               | I think the part that you're missing is that it wasn't a
               | statement about blacks in general, but a particular
               | community of incredibly poor people with zero education.
               | syphilis was in fact rampant in that community, and I
               | imagine that with zero access to healthcare or even
               | detection, they were fairly fatalistic about it. People
               | were more likely to have it than not have it by a huge
               | margin.
        
               | wizzwizz4 wrote:
               | You're asking me to provide a recorded observation, as
               | evidence that the people recording "facts" didn't make
               | observations. My theory (as stated) doesn't expect that
               | evidence to exist! If this were debate club, that would
               | be a foul.
               | 
               | Fortunately for my ELO rating, they did make observations
               | that contradicted their bigotry. Per the great-
               | grandparent:
               | 
               | >> _In reality, the promise of medical treatment, usually
               | reserved only for emergencies among the rural black
               | population of Macon County, Alabama, was what secured
               | subjects ' cooperation in the study._
               | 
               | (Racists always do this. Such comorbidities are part of
               | why we have a special name for this special category of
               | "being wrong".)
        
               | s1artibartfast wrote:
               | >You're asking me to provide a recorded observation, as
               | evidence that the people recording "facts" didn't make
               | observations. My theory doesn't expect that evidence to
               | exist!
               | 
               | I Don't understand either if your statements. You said
               | the characterization of Marcon County was obviously
               | wrong, but say there's no possible evidence way they
               | could have known this.
               | 
               | >reality, the promise of medical treatment, usually
               | reserved only for emergencies among the rural black
               | population of Macon County, Alabama, was what secured
               | subjects' cooperation in the study
               | 
               | What are you trying to say here? Is this bad? They gave
               | medical care to people who wouldn't have it otherwise.
               | 
               | Getting Medical Care is a reason people of all Races
               | enroll in clinical trials and it's still true today
        
               | bobthepanda wrote:
               | Normally you need to confirm a stereotype with data, not
               | verify it after the fact.
               | 
               | The treatment funding ran out during the study period, so
               | this stopped being a benefit but the study continued
               | anyways.
        
               | wizzwizz4 wrote:
               | They had a positive belief. Conventionally, people come
               | to positive beliefs after observing evidence*. I'm
               | accusing them of _not doing this_. They _absolutely could
               | have_ known better; they simply chose not to look.
               | 
               | *: Exception: beliefs about Other Groups of People, which
               | are conventionally formed by looking at Our Group of
               | People, then inventing ways that Other Groups of People
               | are different and/or worse.
        
               | s1artibartfast wrote:
               | OK, I see what is going on. I believe they were likely
               | correct and basing their opinion directly from
               | observational data. Syphilis was rampant and education
               | was extremely low.
               | 
               | You think they were wrong, and assume observational data
               | would refute it.
        
               | somenameforme wrote:
               | In looking up more information on this topic in general.
               | I came upon this [1] paper on the Tuskegee Study. It's an
               | absolutely encyclopedic work that covers the historical
               | context, parallel programs, and much more with an absurd
               | level of detail and sources galore. So for instance I
               | also thought that no subjects in Tuskegee received
               | penicillin. It turns out this is incorrect and by 1952
               | 27.5% had! [2]
               | 
               | Another really interesting datum is that Georgia in 1945
               | started carrying out widespread syphilis testing, on the
               | scale of hundreds of thousands of people, reaching 89%
               | testing coverage in one local jurisdiction (which is
               | where I _assume_ Tuskegee was located). The interesting
               | thing is that 30% of black individuals and 3% of white
               | individuals tested positive for syphilis. People wouldn
               | 't have known the exact numbers back when this the
               | Tuskegee study started (in 1932), but with such
               | ridiculously high rates of infection, they'd have had a
               | general idea.
               | 
               | How do you think that would shape your views of a people
               | when the Overton Window was wide open? Do you honestly
               | think you'd still have been standing on a moral pedestal?
               | _This_ is why I think it 's important to try to do more
               | than just demonize the people involved. Because
               | demonizing them isn't hard. They deserve it, and worse.
               | But at the same time when we demonize them, it's so easy
               | to miss the lessons to be learned because, after all, we
               | aren't demons so surely we couldn't go down the same path
               | again. Yet we almost certainly will if the only lesson we
               | take away is 'don't be evil', because what we see as evil
               | after the fact is not what people, good normal and
               | "moral" people, perceive to be evil in the present.
               | That's history in a nutshell after all.
               | 
               | [1] - https://jamanetwork.com/journals/jamainternalmedici
               | ne/fullar...
               | 
               | [2] - https://sci-
               | hub.ru/https://www.sciencedirect.com/science/art...
               | (gotta love 70 year old papers being paywalled...)
        
             | SuperNinKenDo wrote:
             | Probably like 2/3 of the people I know that I would
             | consider to be racist or hold racist beliefs would call
             | themselves racist, or at least say that they have some
             | racist beliefs.
             | 
             | Probably half the other 3rd are predominantly those that
             | are racist specifically toward white people.
             | 
             | When you create a space where people can be sincere, you
             | would be surprised how self-aware they can be. At least I
             | am.
        
               | xenadu02 wrote:
               | I take that as part of the point they were making: white
               | supremecists, for example, claim white people are
               | superior. Their actions are logical in some sense if you
               | accept their premises that a) race is a useful
               | classification akin to species and b) there is some
               | inherent difference between races.
               | 
               | To be clear personally I think the science has
               | definitively debunked not only supremacy of any race but
               | even race as a concept which is really all about skin
               | tone and facial features... many people's DNA doesn't
               | even match their supposed "race" because the
               | categorization of race is akin to color of coat in dogs:
               | a very superficial trait useful as a visual descriptor
               | but not useful for segmenting individuals into groups.
               | 
               | Not to mention the whole story of homosapiens is freeing
               | us from biological evolution. The idea that someone's
               | biology inherently limits their worth or makes them not
               | an equal member of humanity is in some sense the most
               | perverse denial of our very nature.
        
               | somenameforme wrote:
               | I think when trying to debate something, the idea should
               | be to try to convince the other person. That sounds
               | stupidly obvious, but it's really not. Imagine you're
               | debating somebody over something and resorted to an
               | argument over the exact meaning of terms that, to people
               | who might not share your worldview, would be completely
               | obvious. It's unlikely you'd really be persuading them of
               | anything.
               | 
               | I think the more salient point is that _even if_ you
               | assume clear racial distinctions, and even substantial
               | racial differences, that still does not justify any sort
               | of racial ideology. The movie Gattaca works as an oddly
               | perfect metaphor for racial ideologies and its problems.
               | Gattaca was about genetics, but it 's not a coincidence
               | that it fits perfectly with race, as it's literally the
               | exact same problem.
               | 
               | Just because somebody is a part of a group with some sort
               | of a negative correlation, does not mean that person will
               | _inherently_ let that trait dominate them. Incidentally
               | the reverse is also true - just because somebody may e.g.
               | have a high IQ does not mean they will inherently be
               | knowledgeable or wise. It 's okay to consider group
               | tendencies, but at the end of the day individuals are
               | able to rise far above or fall far below their
               | "expectation", and so it's important to judge each person
               | not by the makeup of their genetics, but by the content
               | of their character.
        
               | Izkata wrote:
               | Supremacy sure, but not its existence, more like the
               | opposite: Ancestry DNA tests wouldn't work if there was
               | no basis for it.
        
           | LanceH wrote:
           | > They probably saw themselves as being able to, in the long
           | run, save far more people and create a greater, safer, and
           | healthier society for everybody
           | 
           | It's easy to view this as bad in this article's case, but
           | nobody views their version of getting to play god when it
           | comes to politics so long as their side is in charge. And the
           | funny thing about this statement is how volatile a reaction
           | it will get from both sides who think assume I'm supporting
           | one or the other.
        
             | lupusreal wrote:
             | > _It 's easy to view this as bad in this article's case,
             | but nobody views their version of getting to play god when
             | it comes to politics so long as their side is in charge_
             | 
             | This is just lazy rhetoric. Some political groups go murder
             | crazy as soon as they gain power, while others don't.
             | Obviously not everybody is equally bad as everybody else.
        
               | DFHippie wrote:
               | Yes, and the more you convince people that everyone is
               | equally bad, the more you empower bad actors. If there is
               | no profit in being good and there is profit in being bad,
               | being good is for suckers.
               | 
               | If everyone's a thief, you'd better start stealing.
               | Otherwise you're just a victim.
        
               | jonathanlydall wrote:
               | In fantasy arguments I have in my head about someone
               | justifying their bad behaviour with "but everyone does
               | it", my reply would be, "most people I know don't do it,
               | so it's definitely not everyone, just people like you".
        
               | DFHippie wrote:
               | "Everyone does it" translates to "I don't think I will
               | suffer consequences from doing it". It's a justification
               | based on self-interest, not ethics.
               | 
               | It looks like they are applying a version of Kant's
               | Categorical Imperative, which is roughly "what if
               | everyone did it?" The justifier is saying everyone _does_
               | do it and everything is fine. The proof is in the
               | pudding. But as you say, if literally everyone did it,
               | they wouldn 't be having this conversation with you. So
               | what they mean by "everyone" is "enough people that I'm
               | safe".
        
           | anal_reactor wrote:
           | > Because the "ends" people envision quite rarely come to
           | pass, yet the means of trying to pursue those ends do, with
           | 100% certainty, happen. So most often you end up with all the
           | evils, and none of the utopian justifications at the end of
           | the road.
           | 
           | So what you basically say is that we should always follow the
           | path of least evil _at the current moment_. It 's strange to
           | me to think that someone would say that this is indeed the
           | optimal way to minimize evil.
        
         | thephyber wrote:
         | In _Beyond the Curve_ a writer put it succinctly:
         | 
         | > Nobody thinks they are the Ursula of their story.
         | 
         | I think it is the human condition that our ego protects itself
         | by denying truth in order to "protect" our psyche from
         | acknowledging that we may have done something extremely morally
         | compromising.
        
           | ImHereToVote wrote:
           | I wonder if Ursula von der Leyen thinks she is the Ursula of
           | her story?
        
         | neilv wrote:
         | That might be too generous. What if the vitriolic reaction was
         | due to the threat of _external_ repercussions from that
         | information being revealed, rather than threat to _internal_
         | self-image?
        
         | ImHereToVote wrote:
         | It's a good thing we don't have labs that do these amoral
         | experiments currently. It's always by sheer luck that such
         | atrocities always happen in the past.
        
         | hiatus wrote:
         | We have known this for ages, hence the adage, "The road to Hell
         | is paved with good intentions."
        
       | anitil wrote:
       | For some context on the Tuskegee "experiment" I'd recommend the
       | two-part series from "You're Wrong About" [0] [1]. Buxtun shows
       | up in the second episode. What I hadn't remembered is that it was
       | 6 years from when he first raised his concerns until they were
       | taken seriously.
       | 
       | [0] Part 1
       | https://open.spotify.com/episode/1CSuf2U9vM5sYru8RwsqFB [1] Part
       | 2 https://open.spotify.com/episode/6GveYHXn6CdkHoGOZTYv0j
       | 
       | Apologies for the spotify links, I couldn't find their hosted
       | version
        
         | astura wrote:
         | >Apologies for the spotify links, I couldn't find their hosted
         | version
         | 
         | They are right here:
         | 
         | https://yourewrongabout.buzzsprout.com/1112270/5330092-tuske...
         | 
         | https://yourewrongabout.buzzsprout.com/1112270/5418709-tuske...
        
           | anitil wrote:
           | Thankyou! I'm not sure how I missed them, I got to their
           | website, clicked 'Episodes' expecting to see them, but missed
           | the link to buzzsprout
        
         | prettyStandard wrote:
         | I can second these episodes, and the podcast series in general.
         | It's very informative about things that have been
         | "misremembered". Other good series were the OJ Simpson trial,
         | Monica Lewinsky, the Satanic Panic, and of course the
         | McDonald's hot coffee lawsuit.
         | 
         | Just recently on Hacker News I saw someone making jokes about
         | this lawsuit being spurious.
         | 
         | Oh gosh, now I'm on a tangent.
         | 
         | Rather than defend "this was not spurious" I'll just say that's
         | how our legal system is set up. The legislative branch is not
         | interested in making reasonable laws, and/or creating capable
         | regulating bodies like most other modern countries. Your
         | recourse here is to sue, hopefully there is an appropriate
         | decision, and it's taken as precedent. Of course we've gone
         | further in that direction in recent history.
        
           | dfxm12 wrote:
           | I don't know if it is fair to say people "misremembered" the
           | details of the McDonald's coffee lawsuit. As the news media
           | and pop culture weirdly seemed to go out of their way to
           | paint McDonald's as the victim and the woman as negligent,
           | people never knew the correct details at the time to begin
           | with.
        
             | burningChrome wrote:
             | I was a college student at the time and never saw it that
             | way.
             | 
             | I remember in the media there were vigorous debates over
             | this as being "frivolous" but I remember all my friends
             | were on the victims side. Spending days in the hospital to
             | get skin grafting because their coffee was too hot I think
             | far exceeded what someone would classify as "frivolous". I
             | also remember several news reports about how they found out
             | through court documents McDonald's had over 700 reports of
             | burns between 1982-1992 which to me was completely shocking
             | and proved they knew their coffee was way too hot.
             | 
             | Now you see all the warnings on the labels, most of the
             | bigger chains have cardboard sleeves so your hands don't
             | get too hot holding it. McDonald's has since reduced the
             | temperature of their coffee as well.
             | 
             | The only thing I didn't accurately remember was several
             | people told me that the lady initially won her lawsuit, but
             | lost on appeal and McDonald's didn't have to pay her
             | anything. In actuality, she won a sizeable award from the
             | jury, but it was greatly reduced by the judge and then
             | before an appeal, McDonald's finally settled out of court.
             | 
             | https://en.wikipedia.org/wiki/Liebeck_v._McDonald%27s_Resta
             | u...
        
             | gosub100 wrote:
             | The media also follow trends. I remember all through the
             | '90s there was a trend of reporting frivolous cases as
             | news, probably for sensationalist purposes. The ones I
             | remembered were "prisoner sues because his ice cream
             | melted", burglar sues after falling out of rafters". These
             | type of stories were popular on morning radio programs.
             | 
             | What I want to know is if Ms Liebeck just got lumped into
             | that fad, or if there was economic pressure from McD's to
             | weaken her case. McDonald's advertising spend was HUGE back
             | then, of course on the same media channels that reported
             | about her.
        
           | ksenzee wrote:
           | > he legislative branch is not interested in making
           | reasonable laws, and/or creating capable regulating bodies
           | like most other modern countries
           | 
           | That's the point of a common-law system. Not that I'm
           | defending Congress and how little they get done--I'm not,
           | they're terrible right now--but we don't have case law
           | because Congress is terrible. We have case law because that's
           | how our legal system is meant to work. The legislation lays
           | out the theory, and the details get worked out by judges
           | after theory meets practice. It's not somehow inferior to
           | civil law, just different.
        
             | Retric wrote:
             | Common law doesn't require lawsuits to cover issues like
             | this.
             | 
             | It's hard to sue a company when they follow quantitative
             | guidelines. However terms like 'due caution' punt issues to
             | the courts who then come up with a meaningful standard.
        
           | dbspin wrote:
           | Unfortunately 'creating capable regulating bodies' is no
           | longer possible, in the binding opinion of the Supreme Court.
           | 
           | https://www.scientificamerican.com/article/the-supreme-
           | court...
        
           | mercutio2 wrote:
           | I loved the first 20-30 episodes, but at a certain point I
           | got the feeling they had a very significant axe to grind on
           | their supposedly impartial revisiting of some of the events
           | they were looking at.
           | 
           | When they started talking about health outcomes, especially,
           | their tone of "we know what's obviously true, our outgroup is
           | stupid" got too strong for me and I stopped listening.
           | 
           | I'd be interested to know if they've toned that down, at all.
        
             | anitil wrote:
             | I had some hesitation about recommending them because of
             | this, but going from memory I think it was a good couple of
             | episodes
        
       | hannob wrote:
       | I had learned about this in the Pandemia podcast last year,
       | unfortunately only available in German. But I thought for all the
       | German-speaking HN readers I could share, it's worth listening
       | to: https://superelektrik.de/pandemia/syphilis-geschichte-
       | eines-...
       | 
       | Pandemia is a podcast started during the Covid pandemic, but
       | regularly covering all kinds of diseases and health issues.
        
       | anal_reactor wrote:
       | As non-American, it's a strange feeling to see all these
       | discussions about racism. It took me a while to understand that
       | the whole perception of the issue is just completely different.
        
         | Swizec wrote:
         | I've lived here for ~10 years and I'm still learning. The base
         | realization is that if you come from a mostly homogenous (or
         | openly racist a la apartheid) background, you simply can't
         | understand how American style racism works.
         | 
         | In my home country we have so few black and asian people that
         | exact numbers can't be reported in the census because it would
         | be considered personal information. Sure we have racism but
         | it's purely of the "fear of new/unknown" kind. Anything more
         | than that we learned from american media.
         | 
         | A better analogy, if you come from such a background, might be
         | to replace racism with ethnicism. We're really good at
         | ethnicism in Europe in a way that's a lot more similar to how
         | america does racism.
        
           | graemep wrote:
           | Its not quite that. The US is also different from other
           | countries with large non-white minorities. I think you are
           | right that race, ethnicity and other things (such as caste)
           | are much the same thing: you are classified by some group you
           | are born into, and you and your descendants cannot move out
           | of. However it is also different in every culture.
           | 
           | It look me a long time to understand how the US is different
           | from countries I know (which are definitely not homogenous,
           | though some are fairly openly racist). I could see race was
           | much more ingrained in the culture compared to the UK, but
           | did not understand why. The insight for me (mostly thanks to
           | Isabel Wilkerson's book Caste) is that race in American is a
           | caste distinction: it is a hierarchy rather than just
           | hostility to the outsider.
           | 
           | I wrote a blog post on this:
           | https://pietersz.co.uk/2023/08/racism-culture-different
        
             | iftheshoefitss wrote:
             | I would posit it's not a caste system similar to India's
             | caste system or old school feudalism. Being an outsider
             | definitely plays a part for instance the treatment of
             | Italian immigrants. In my experience if you're part of a
             | certain group you might or will get mistreated but if
             | you're part of that group and also an outsider oof you're
             | in for one tortured existence. Which is kind of
             | contradictory because the USA is one of the few places that
             | openly welcomes outsiders (like you don't see migrants
             | trying to go to China or Russia) but at the same time if
             | you're deemed persona non grata like for whatever reason
             | the land will mess with your life, health and so on unlike
             | any other place
        
               | graemep wrote:
               | How is it not a caste system? A caste system can ALSO be
               | hostile to outsiders on an ethnic or religious basis
               | (plenty of examples of both in South Asia!) in addition
               | to the caste system.
               | 
               | Feudalism is not a caste system. In a feudal system
               | people can move up and down to some extent, and over
               | generations people can move a lot. It was possible for
               | people to marry to at least some extent. There is no
               | notion of pure blood or pollution.
               | 
               | https://www.researchgate.net/publication/228717335_Was_th
               | ere...
        
               | gamblor956 wrote:
               | In a caste system, your "worth" is decided at birth based
               | on what caste system you are born into, and your
               | opportunities and relationships are determined by that.
               | 
               | The US has some of the highest rates of interracial
               | marriages, relationships, etc. in the world. Mobility in
               | America is driven by socioeconomic class, not race, and
               | gender plays a heavy role in educational success in some
               | races (more than race itself), but not others, for
               | various historical reasons.
               | 
               | In order to cast U.S. racial relations into a type
               | "caste" system, you'd have to stretch the definition of
               | caste so thin that it wouldn't have any meaning.
        
               | alan-hn wrote:
               | Rich African Americans are still looked down on by some
               | in comparison to rich whites. There is not as much
               | mobility as you would think
        
               | graemep wrote:
               | It was historically a caste system though, especially in
               | the South up to the sixties, and there are remnants of
               | that. No doubt it is a weakened caste system, and
               | hopefully dying one, but it still seems present.
               | 
               | Americans seem to still, at the least, attach a lot of
               | importance to race, and to classifying people by race. It
               | is seen as fundamental to who people are: a lot of
               | Americans who seem fine with someone self-identifying
               | their gender find it far harder to accept someone self-
               | identifying their race. Why not? A lot of people report
               | assumptions are made on the basis of race. In a lot of
               | conversations I have with Americans about race seem to
               | assume that people are likely to be overtly treated
               | differently on the basis of their appearance.
               | 
               | I do not know the US so maybe I am out of date or have
               | read the wrong things but I find it a lot harder to
               | understand the importance Americans (not just racists,
               | but people trying to be anti-racist too) attach to race
               | if I am wrong.
        
               | ksenzee wrote:
               | > maybe I am out of date or have read the wrong things
               | 
               | No, I think you have a better grasp on it than most
               | people outside the US. Americans really want to believe
               | we don't have a caste system, because it's antithetical
               | to our origin story and what we feel is true about
               | ourselves, but we absolutely do. So if you listen to us
               | talk, you'll think we don't have a caste system. If you
               | watch our actions, you'll see we still do.
        
               | rincebrain wrote:
               | If I were to wildly speculate, I might guess that many
               | Americans think of gender as being about presentation and
               | experience, while "race" is almost entirely about shared
               | experience - which, yes, is often informed by reactions
               | to one's appearance, or lack thereof, but that's not the
               | identifying characteristic.
               | 
               | So it comes across as similarly distasteful to someone
               | claiming to be "long lost Uncle Eddie", because they saw
               | your family through the glass at a holiday and liked what
               | they saw - since you weren't here for a billion shared
               | little experiences, and there's no claim that you were
               | from the same grandparents or similar, it rings hollow
               | and like you want something from it.
        
               | sangnoir wrote:
               | > The US has some of the highest rates of interracial
               | marriages, relationships, etc. in the world
               | 
               | This is a fairly recent development. As recently as 1995
               | (1 generation ago), the majority of Americans disapproved
               | of interracial marriages.
        
               | iftheshoefitss wrote:
               | I think this is still the case opinions regarding stuff
               | like this isn't just voiced in public anymore so it gives
               | the appearance of shifting stats
        
           | jajko wrote:
           | Oh we have quite a bit of racism in Europe too, just go to
           | eastern part. People are not so vocal about it, unless in
           | 'their' circles.
           | 
           | Sure, its all mixed together with fear of different
           | religions, xenophobia which I would say is still dominant
           | force, and its targeted way more on black people rather than
           | east asians, but these days its there, even on places that
           | had 0 of it due to literally 0 exposure to other races few
           | decades ago. I personally saw first black person in person as
           | a teenager for example.
           | 
           | Big parts of societies are quite radicalized if you care to
           | look closely enough, which many don't and consider Europe
           | some form of uniform hippie paradise. But then you can't
           | escape the reality of ie string of victories of more or less
           | extreme right winders all getting the vote 'to stop
           | immigration'. Whole Brexit was fueled mainly by such
           | xenophobia, it would be insignificant fart in the wind
           | without this.
           | 
           | My personal opinion is that before countries like Germany
           | decided to allow unregulated immigration en masse and try to
           | push rest of EU in same direction without asking, serious
           | discussions should have taken place for a long time and
           | explained to common folks why, in what form, for how long,
           | how will it affect them, how will state protect them etc.
           | Instead, at least eastern part went through shock therapy and
           | hence often seen kneejerk reaction of refusing everything.
        
             | mrguyorama wrote:
             | >Oh we have quite a bit of racism in Europe too,
             | 
             | Just mention Romanians and Europeans can pretty quickly get
             | a sense of how racism works in the US
        
           | renewiltord wrote:
           | For European racism, just bring up the Roma and wait for a
           | European to say things that no one in any American city would
           | say.
        
             | anal_reactor wrote:
             | It's different.
             | 
             | Europeans are proud of hating gypsies, we just don't bring
             | this up around Americans because of how poorly they react
             | when we show them our point of view. Racism and pedophilia
             | are two most sensitive topics for Americans, who feel like
             | they're on the holy mission to free the world from these
             | two evils.
        
               | archagon wrote:
               | If you're ever "proud" of hating someone, you should go
               | see a therapist. (Or a priest.)
        
               | anal_reactor wrote:
               | Of course any exercise in explaining our point of view is
               | futile, because, again, the idea that there might be some
               | truth to racism is literally the most taboo topic of your
               | culture, so there's no way you'd ever agree with me to
               | any degree, and any consensus is non-negotiable.
               | 
               | It's like trying to explain to an Arab shepherd that his
               | religion might be wrong. Or to a Japanese that smoking
               | weed isn't much of a deal. These ideas simply go against
               | core values of their cultures, and no argument will make
               | them change their mind.
               | 
               | So we just nod and smile "ah yes amerika good racism bad
               | what else do you want to hear"
        
               | archagon wrote:
               | It's possible to criticize culture without being racist
               | or resorting to virulent, gleeful hate. Have you met any
               | actual Romani aside from the occasional panhandler? You'd
               | think Europeans would welcome the ones that try to escape
               | their culture, and yet they face roadblocks and
               | discrimination along every step of the way. Instead of
               | hate, why not try a little empathy or even pity for
               | people born into unfortunate circumstances? Your
               | mentality is despicable, period, even without the
               | American racial lens. (And for what it's worth, I was
               | born in Europe and am very much familiar with this
               | bullshit first hand.)
               | 
               | So feel free to continue nodding and smiling. We can see
               | right through it. Rest assured that it reflects far more
               | poorly on you than the Romani, whatever their flaws may
               | be.
        
               | anal_reactor wrote:
               | > why not try a little empathy or even pity for people
               | born into unfortunate circumstances?
               | 
               | Because this comes at a societal cost we cannot afford.
               | Simple.
        
               | archagon wrote:
               | This kind of thinking is how we got the Holocaust.
        
               | AnimalMuppet wrote:
               | So you just smile and nod, but inside you think "American
               | racism may be bad, but _our_ racism is true and based on
               | evidence "?
               | 
               | I mean, look, if you want to condemn Romani _culture_ ,
               | sure, I can at least listen. (There are some in the US
               | who think "all cultures are equally good"; I am not among
               | them.) But if you want to condemn Romani because of their
               | race or ethnicity, and say there's "some truth to the
               | racism", then I'm going to condemn _you_ as a racist. And
               | to the degree that 's part of your culture, I'm going to
               | condemn your culture.
               | 
               | And yes, that's not negotiable.
        
               | anal_reactor wrote:
               | > And yes, that's not negotiable.
               | 
               | This is also why I'm very skeptical of modern
               | progressivism. It's not like people became more aware,
               | because they still have a set of beliefs they don't
               | question, it's just that those beliefs changed. Which
               | means that they might, and probably will, change again in
               | the future. If it took 60 years to go from "racism is
               | best" to "racism is the worst" without any fundamental
               | change to how we create our social norms, then it's not
               | outrageous to claim that within another 60 years we might
               | go back to "racism is best".
        
               | spacechild1 wrote:
               | > Europeans are proud of hating gypsies
               | 
               | What are even talking about? Please don't extrapolate
               | your own views on the population of a whole continent.
        
               | renewiltord wrote:
               | You know, PG said you can disagree with downvotes but if
               | someone says something that they honestly believe and not
               | just to make controversy I think I'd rather upvote them
               | so I can see the post.
               | 
               | So up you go.
        
       | tokai wrote:
       | Wonder why the US thought they needed to continue this experiment
       | when they had access to the results and researchers of Unit
       | 731[0], that did extensive research on syphilis. Kinda makes one
       | think that the racial aspect was the point.
       | 
       | [0]
       | https://en.wikipedia.org/wiki/Unit_731#American_grant_of_imm...
        
         | s1artibartfast wrote:
         | As discussed elsewhere, one reason is that at the time Syphilis
         | response was significantly different in Africans. Trials like
         | this had been previously run on Europeans, and 731 would
         | presumably include east Asians and ran for a handful of years,
         | not decades.
         | 
         | Unlike Unit 731, they didn't infect anyone and it was an
         | observational study.
        
         | burningChrome wrote:
         | >> Kinda makes one think that the racial aspect was the point.
         | 
         | Interesting to note that the lowest C19 vaccine rates were in
         | the African American communities. A lot of media outlets have
         | speculated the primary reason for their vaccine hesitancy was
         | this experiment and not trusting the government.
         | 
         | In Tuskegee, Painful History Shadows Efforts To Vaccinate
         | African Americans https://www.npr.org/2021/02/16/967011614/in-
         | tuskegee-painful...
        
           | throwup238 wrote:
           | _> A lot of media outlets have speculated the primary reason
           | for their vaccine hesitancy was this experiment and not
           | trusting the government._
           | 
           | Combined with the much more recent incident in Pakistan where
           | the CIA staged a fake hepatitis vaccine program to help
           | locate Osama Bin Laden, leading to the resurgence of polio in
           | the country.
           | 
           | The US government just can't help itself in abusing vaccine
           | programs for shady purposes.
        
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