[HN Gopher] The emotional trial of clinical trials: like online ...
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       The emotional trial of clinical trials: like online dating with
       death risk
        
       Author : jseliger
       Score  : 33 points
       Date   : 2024-04-22 14:25 UTC (8 hours ago)
        
 (HTM) web link (jakeseliger.com)
 (TXT) w3m dump (jakeseliger.com)
        
       | data_maan wrote:
       | What a depressing, yet enlightening read.
        
         | squigz wrote:
         | This sums up most of Jake's (and Bess') writing lately
        
       | data_maan wrote:
       | The issue with the medical system is similar to the issue with
       | prisons: It has no person that is motivated to care about it.
       | 
       | If you are an inmate, or a patient you're just happy once you're
       | out, and don't want to spend more of the time to fix.
       | 
       | And if you're a free or healthy person, why devote time to
       | something that will likely not concern you? (It might some day,
       | but few people are reflecting enough to realize this.)
       | 
       | Respect to the authors for writing this. It will, in time, make a
       | big difference as other people read - like compound interest that
       | accrues slowly but steadily.
       | 
       | I wish them all the best, hopefully one of the drug will work,
       | and there will be some kind good way forward!
        
         | faeriechangling wrote:
         | As somebody with my own grievances against the medical system,
         | it's not just that it's in my interest to dust my hands off and
         | walk away, it's that the medical system is a 9 headed gigantic
         | hydra that I feel impotent to do anything about it without
         | dedicating a huge swathe of my life to being a reformer and
         | even then I'll likely be shouting into the wind.
         | 
         | The amount of parties which can have some interest in keeping a
         | broken part of the medical system broken is staggering, it can
         | extend from researchers to doctors to insurers to the
         | government to institutions to businesses to the patients
         | themselves and their families AT THE SAME TIME just because of
         | the sheer amount of money that gets thrown around even if the
         | actual medicine is nonsense. Reforms risk fucking with the
         | money and you DO NOT fuck with the money!
        
         | readyman wrote:
         | > _The issue with the medical system is similar to the issue
         | with prisons: It has no person that is motivated to care about
         | it._
         | 
         | Why prisoners must be able to vote or you cannot claim to have
         | a democracy
        
       | K0balt wrote:
       | So, like online dating.
        
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       (page generated 2024-04-22 23:00 UTC)