[HN Gopher] AstraZeneca unveils successes in treatment of lung c...
       ___________________________________________________________________
        
       AstraZeneca unveils successes in treatment of lung cancer
        
       Author : cebert
       Score  : 295 points
       Date   : 2024-02-19 14:31 UTC (8 hours ago)
        
 (HTM) web link (www.ft.com)
 (TXT) w3m dump (www.ft.com)
        
       | cebert wrote:
       | https://archive.ph/eNqky
        
       | genman wrote:
       | It is about Osimertinib, sold under the brand name Tagrisso.
       | 
       | It works (in "statistically significant and highly clinically
       | meaningful" manner) against certain types of lung cancer when
       | administered on early stage.
       | 
       | It was provisionally approved after success in phase 1 trial by
       | FDA in 2015 and by EMA in 2016.
       | 
       | Side effects:
       | 
       | Very common (greater than 10% of clinical trial subjects) adverse
       | effects include diarrhea, stomatitis, rashes, dry or itchy skin,
       | infections where finger or toenails abut skin, low platelet
       | counts, low leukocyte counts, and low neutrophil counts.
       | 
       | Common (between 1% and 10% of clinical trial subjects) adverse
       | effects include interstitial lung disease.
        
         | GenerWork wrote:
         | That doesn't sound too bad if it can cause lung cancer to
         | regress.
        
         | hef19898 wrote:
         | Side effects do not realy sound bad so, as someone who went
         | through a light, comparatively, chemo I saw a lot worse with
         | other patients. Plus, the alternative is lung cancer in late
         | stages. And you sure as hell don't want that!
         | 
         | It is really good to see progress in cancer treatment so!
        
         | hanniabu wrote:
         | > It works (in "statistically significant and highly clinically
         | meaningful" manner) against certain types of lung cancer when
         | administered on early stage.
         | 
         | What is considered early stage? Pre symptoms?
         | 
         | And what type of success rate are we talking here?
        
         | e40 wrote:
         | The side effect you didn't mention: mouth sores. It's the only
         | one that my wife had (in the first month). So far, no other
         | problems, though the chemo started last week (see my comment
         | about it, if curious).
        
           | quantumwoke wrote:
           | That would probably be from the chemo your wife is on rather
           | than the osimertinib. Chemo tends to cause mouth ulcers along
           | with hair loss etc.
        
             | e40 wrote:
             | No, the chemo started a month after the osimertinib and the
             | sores appeared in that first month. The oncologist
             | confirmed it was a side effect of it.
        
       | 1letterunixname wrote:
       | Hey onco-nosology nerds: Is there a cell-typed unambiguous
       | classification system, research, and clinical treatment protocol
       | nexus attempting to capture and disseminate information on all
       | cancer types in a more precise and organized effort?
        
         | eber wrote:
         | I don't know if this is what you mean, but Foundation Medicine
         | has a biobank of genomic data (HIPAA) with cancer patients'
         | genomic profiles.[1] It's pan-tumor and pan-cancer.
         | 
         | EDIT: if you're looking for more of a "what is the current best
         | known treatment plan for xyz" then this might not be what
         | you're looking for. The standard of care is very much changing
         | very often, I don't know if anyone has a solution for
         | disseminating that. foundation medicine also has a patient-
         | focused side where you can get your own test and get pointed to
         | the treatment for your cancer genomic profile [2]. The
         | societies are probably trying the most to get all of that data
         | available/up-to-date (for example: the American Cancer Society)
         | 
         | [1] https://www.foundationmedicine.com/service/genomic-data-
         | solu...
         | 
         | [2] https://www.foundationmedicine.com/patient/start-with-
         | step-o...
        
         | badcppdev wrote:
         | More precise and organised than what?
        
         | thallada wrote:
         | NCI has the current treatment guidelines for each cancer and is
         | updated when new treatment options become available:
         | https://www.nccn.org/guidelines/category_1
         | 
         | Unfortunately, these are very clinician-focused and are very
         | hard to understand without a medical background. They also
         | don't usually cover experimental treatments that are still in
         | trials, but in some cases can be extremely helpful. I work on
         | an app at Outcomes4Me (https://outcomes4me.com/) that is trying
         | to convert the NCI guidelines into an algorithm so that we can
         | tell patients in simpler terms what their treatment options are
         | based on their specific diagnosis. We also try to find clinical
         | trials recruiting for their specific diagnosis. We've done this
         | for breast and lung cancer so far.
        
       | someonehere wrote:
       | Didn't Cuba have a vaccine for lung cancer? I seem to recall
       | seeing one in a documentary (maybe a Michael Moore film?)
        
         | alexnewman wrote:
         | My father died of lung cancer. I also ran a failed medical
         | tourism company which sent people to get this treatment in
         | Cuba. More modern versions of the Cuban treatment are now few
         | approved in the USA as immunotherapy. Didn't save my dad
        
           | herculity275 wrote:
           | So sorry to hear about your dad!
           | 
           | > I also ran a failed medical tourism company which sent
           | people to get this treatment in Cuba
           | 
           | Why did the company fail? How effective was the treatment?
        
           | badcppdev wrote:
           | Sorry about your Dad but did it help other people? How many
           | did you send and how many had positive outcomes in terms of
           | prolonged life above the expected outcome?
        
         | overstay8930 wrote:
         | Still in trials in the US/EU, but it's not useful for anyone
         | over 60 because the immune system is too weak.
        
         | sva_ wrote:
         | For those curious, https://en.wikipedia.org/wiki/CimaVax-EGF
        
       | pauln99 wrote:
       | "Statistically significant and highly clinically meaningful"
       | perhaps, but not so much that they can say what that actually
       | means.
       | 
       | My understanding is that of all cancer drugs approved by the FDA
       | between 2000-2016 (around 90 drugs), the median life extension
       | was just over 2 months...
        
         | jncfhnb wrote:
         | The distribution skews right on these things. Median probably
         | is not the right way to think about it
        
           | pauln99 wrote:
           | Maybe I've misunderstood, but for the average person that's
           | even worse news, right?
           | 
           | Two months was from clinical trials where there's no doubt
           | that the "thumb is on the scale" in a host of ways, creating
           | an exaggerated estimate of efficacy that would be realised in
           | the real world.
           | 
           | The reality is closer to no life extension, with the
           | remaining lifespan is spent sicker than you'd have been
           | without the drugs.
        
             | icegreentea2 wrote:
             | Imagine a toy scenario where a cancer will kill 80% of
             | people with it at exactly 3 years, and all 20% remaining
             | will uh live full lives (so say another 20 years).
             | 
             | If you created a drug that shifted the ratio to 60/40, and
             | measured right at the 5 year mark. In a population of 100
             | untreated people, you'd get like 4080 total months lived
             | (80x36 + 20x60). In a population of 100 treated people,
             | you'd get like 4560 months lived (60x36+40x60).
             | 
             | That's only generating an extra 4.8 months of life per
             | person treated. However, you've doubled the number of
             | people alive at the end of trial.
             | 
             | Now obviously this is a toy example that's probably a bit
             | exaggerated, but this type of behavior is exactly why
             | median/average life extension is an inadequate measure
             | alone.
        
             | s1artibartfast wrote:
             | >The reality is closer to no life extension, with the
             | remaining lifespan is spent sicker than you'd have been
             | without the drugs.
             | 
             | I dont think that is true at all. The data is pretty clear
             | that lifespan is significantly increasing.
             | 
             | >Over time, the mean overall survival has improved from two
             | months in 1973 to five months in 2015. Regarding long-term
             | survival, a clear rise in 2yS is noted, increasing from
             | 2.6% in 1973 to 12.9% in 2013 (latest year of which 2yS
             | data can be calculated; Figure 1 and Tables 1 and 2),
             | occurring mostly after the mid-1990s. A more modest
             | increase is seen in the 5yS, from 0.7% in 1973 to 3.2% in
             | 2010.
             | 
             | >https://www.researchgate.net/publication/348455938_Long-
             | Term...
        
               | pauln99 wrote:
               | I'm sorry, but two months to five months after 50 years
               | and hundreds of billions of dollars. That was hardly the
               | promise of the "war on cancer"!
        
               | s1artibartfast wrote:
               | To be fair, there are other cancers that are essentially
               | cured. Lung cancer is a particularly nasty one for a
               | number of reasons. It's hard to fight with the laws of
               | physics or biology, so I'm curious who promised you
               | something else.
               | 
               | In general though, I tend to agree that in the US we
               | spend far too much on what essentially boils down to
               | performative end of Life Care. If you ask someone if they
               | would rather spend $200k for 2 months or leave it to
               | their family, I think most people would pick the second
               | option. When someone else is paying, they choose the
               | first option.
        
               | pauln99 wrote:
               | "This year marks the 50th anniversary of the "War on
               | Cancer" declared by Richard Nixon, a former President of
               | the United States of America. By signing into law the
               | National Cancer Act on December 23, 1971, Nixon hoped
               | this action to be the landmark legislation taken by his
               | administration. Nixon apparently had confidence that
               | cancer would be conquered in 5 years."
               | 
               | You're right, there are a small handful of unusual
               | cancers that we have cures for, and that's great. And
               | some small progress has been made overall. But a lot of
               | money has been spent, and it has been half a century or
               | more, and we don't have much to show for our efforts.
        
               | JumpCrisscross wrote:
               | > _we don 't have much to show for our efforts_
               | 
               | This is mind-bogglingly wrong for most cancers. Several
               | death sentences have been turned into treatable diseases.
        
               | s1artibartfast wrote:
               | Nixon hyped up some legislation 53 years ago, few
               | believed the hype, and the hype was clear to the rest
               | very shortly thereafter.
               | 
               | You are right that progress is slow and expensive in a
               | lot of areas.
               | 
               | It seems you are frustrated or angry about it. What do
               | you want people to do? Are we not spending enough on
               | research? Are we spending too much?
        
               | jncfhnb wrote:
               | You are, again, failing to note that it's a right skewed
               | distribution. The mean is not what you care about.
        
               | pauln99 wrote:
               | In fairness, I was responding to the first sentence in
               | the quote from the article.
               | 
               | It seems relevant, as a patient to ask, on average, how
               | much longer will I live if I take this drug?
        
               | s1artibartfast wrote:
               | To which, an average is a pretty poor way to convey non-
               | normal data.
               | 
               | If you run a year long trial where you flip a coin and
               | immediately kill or save people based on the results,
               | your average survival will be 6 months
        
               | s1artibartfast wrote:
               | To be fair, the Improvement for the tail is pretty Grim
               | too. We have 'only' seen 5 year survival improve from
               | 0.7% in 1973 to 3.2% in 2010.
               | 
               | I think the skewed distribution is less relevant than the
               | sample group. There are limits to what we can expect from
               | medicine. We don't have improved survival after
               | decapitation, but that doesn't mean surgery has been at a
               | standstill.
               | 
               | It would be interesting to look up survival rates for
               | earlier stages. I expect the difference would be more
               | substantial.
        
         | ndr wrote:
         | Sad stats truth: statistical significance does not say much
         | about effect size, and it's misinterpreted by ~half articles.
         | 
         | See https://www.nature.com/articles/d41586-019-00857-9 for more
        
           | losvedir wrote:
           | That's why the "highly clinically meaningful" part of the
           | quote is there.
        
         | AtlasBarfed wrote:
         | I think that is a perverse incentive of Medicare so it gets
         | covered in treatment.
         | 
         | The may work better, but the drugs only run the studies to that
         | threshold.
         | 
         | My mom died of lung cancer like 10 years ago and the
         | immunotherapy drugs like keytuda all has those disclaimers.
         | 
         | Her pd1 wasn't a good fit, but some like Jimmy Carter responded
         | really well
        
         | s1artibartfast wrote:
         | Yes, but this isnt as negative as it sounds.
         | 
         | That 2 months average is often driven by more people alive at
         | the end of a 2 year trial.
         | 
         | Also, 16 years of 2 month extensions ends up being quite
         | meaningful.
        
           | pauln99 wrote:
           | To be clear, those aren't 16 years of accumulating
           | improvements. The median life extension - across all 90-odd
           | drugs - was two months.
        
             | s1artibartfast wrote:
             | I understand that specifically is for stage 4 non small
             | cell lung cancer, but I don't think it's appropriate to
             | cherry pick a single example. There are other cancers and
             | stages we're much more progress has been made.
        
         | arrosenberg wrote:
         | Anecdotal, but Keytruda was approved in 2019 when my dad was
         | diagnosed. He got 4 extra years (3.8 of which were pretty high
         | quality) that I can assure you he would not have gotten without
         | it. The progress on lung cancers specifically has advanced
         | quite a bit in the last 10 years.
        
         | e40 wrote:
         | In this case, the extension is often far longer. See comment by
         | @kkio. Our oncologist has people that have been on it for
         | years, as well.
        
         | jseliger wrote:
         | _My understanding is that of all cancer drugs approved by the
         | FDA between 2000-2016 (around 90 drugs), the median life
         | extension was just over 2 months..._
         | 
         | An exciting, underrated possibility: therapies in conjunction
         | with each other, even if the therapies are initially studied in
         | isolation. Single-agent chemo doesn't work for many cancer
         | types, but multi-agent chemo often does. The same may be true
         | of the small molecules, antibody drug conjugates (ADCs), and
         | monoclonal or bispecific antibodies being tested now. I have
         | squamous cell carcinoma initially of the tongue, and now of the
         | head, neck, and lungs (https://jakeseliger.com/2023/07/22/i-am-
         | dying-of-squamous-ce...), and I'm on a clinical trial
         | monotherapy at UCSD called MCLA-158 / petosemtamab. But, if I
         | live long enough, which isn't super likely but isn't
         | impossible, there's a decent shot that the FDA will finally
         | approve Moderna's mRNA-4157 personalized vaccine for melanoma--
         | hopefully in 2025. If I can get mRNA-4157 off label and combine
         | it with pembrolizumab (Keytruda) and petosemtamab (assuming the
         | latter is approved, too), that combo may be much more potent
         | than any of the three in isolation, and I've already failed
         | pembro as a monotherapy and pembro + carboplatin + paclitaxel.
         | 
         | And if that combo doesn't work, or has some unexpected negative
         | effect (including death), well, I'm going to die anyway, and
         | the risk seems worthwhile.
         | 
         | As another commenter observed, the median can be skewed by the
         | number of people who don't respond; among those who respond to
         | a given drug, some don't respond, but some live surprisingly
         | long.
        
       | baq wrote:
       | A friend died of lung cancer. Went from mild cough to funeral in
       | about 5 weeks. 40 yo. 2 pre-teen kids.
       | 
       | Started to look after my own health a bit more.
       | 
       | This is a very welcome development.
        
         | superfunny wrote:
         | I'm really sorry to hear that - cancer is terrible.
        
         | graphe wrote:
         | Any more details? No history?
        
           | baq wrote:
           | Smoker, was always coughing a bit. His grandfather also died
           | of lung cancer, but he didn't make the connection until it
           | was too late.
        
         | lowercased wrote:
         | PSA: If you have dependents, or think you might, get some life
         | insurance in place now while you're relatively young. I've had
         | too many friends/colleagues pass away unexpectedly without any
         | (or not remotely enough) life insurance, leaving a spouse and
         | young children behind, inevitably turning to gofundme and
         | similar just to get by.
        
           | alexey-salmin wrote:
           | I actually tried that but the ones I've found had explicit
           | clauses against cancer and other diseases in fine print.
           | Apparently they only help if you get hit by a car and alike.
           | 
           | Probably need to make another pass. (I'm in Europe)
        
             | lowercased wrote:
             | Yeah, the comment may have been more US-oriented (where I'm
             | living). I do know a couple colleagues who can't get any
             | term life insurance because of some pre-existing medical
             | conditions. That's not good for them, obviously, but for
             | most others, it makes sense to get something early. Years
             | ago, at 35, I got an $800k 20 year term for about
             | $55/month. Close to 20 years later, we have more
             | savings/wealth, so my family would not be in hardship or
             | having to go begging if I died tomorrow. A 15 year $500k
             | policy now costs me $80/month. I recently got that, but may
             | let it lapse in a few years if we don't need that any more.
             | 
             | FWIW, my policies don't have any specific denials for
             | certain causes of death (particular disease, etc) but I did
             | have to provide medical records (and I'm not in perfect
             | health).
        
           | evantbyrne wrote:
           | Also to hijack this thread: if you or a loved one is/was a
           | long-term smoker, take yourself/pressure them to have routine
           | cancer testing. Right now, while our liquid biopsy has
           | limited availability, for most people that means getting CT
           | scans. Lung cancer is very fast moving and survivability is
           | directly related to how early it is detected. The
           | overwhelming majority of people who are eligible for routine
           | CT scans for lung cancer don't ever get them!
        
         | wing-_-nuts wrote:
         | Damn it man, here I am reading this at 41 with a mild cough.
         | Thanks for that!
        
       | formercoder wrote:
       | My aunt was diagnosed with stage 4 lung cancer and is only alive
       | because of this drug. It's a marvel of modern medicine.
        
         | declan_roberts wrote:
         | It feels so good to read a comment like this. Thank you for
         | sharing and I'm really happy for you and your family (and
         | modern medicine that makes it all possible).
        
         | jfengel wrote:
         | That is indeed remarkable. Stage 4 lung cancer usually makes
         | you seek out hospice care.
        
         | kthartic wrote:
         | Wow, that's incredible. So wholesome reading a comment like
         | this on HN, makes me more hopeful of the future. Thanks for
         | sharing
        
         | e40 wrote:
         | My wife was diagnosed in Nov '23. Stage 4. She had a mutation
         | that allowed Tagrisso/osimertinib. There are many mutations,
         | but this one is prevalent in Asian women who have never smoked.
         | 
         | There was a trial published just after her diagnosis that
         | showed progression free survival at 2 years of 57%
         | (chemo+osimertinib) vs 41% (osimertinib).
         | 
         | https://www.nejm.org/doi/full/10.1056/NEJMoa2306434
         | 
         | She's 6 days into the chemo. There are 4 rounds of
         | pemetrexed+carboplatin and then maintenance carboplatin
         | (forever). Every 21 days.
         | 
         | So far, it's been rough, but hopefully her body will adjust and
         | once she's just on carboplatin hopefully her quality of life
         | will be better.
         | 
         | She had few side effects from the osimertinib, but the main one
         | was mouth sores. They're gone now, thankfully.
         | 
         | Another thing people need to know about this: this diagnosis
         | often comes with regular thoracentesis (removal of fluid from
         | the chest). In this case, it's in the lining of her lung, not
         | lung itself.
         | 
         | Advice to anyone in this situation: make all future
         | appointments for thoracentesis, because you don't want to go
         | into the ER/ED to get it done. And, we've stopped allowing
         | residents to practice on her (once it was quite painful).
         | 
         | EDIT:
         | 
         | Forgot to add: carboplatin crosses the blood-brain barrier, as
         | do the cancer cells. The end state for this cancer, even with
         | the above treatments, is usually tumors in the brain.
        
           | LambdaComplex wrote:
           | > this one is prevalent in Asian women who have never smoked.
           | 
           | Does that mean the rate is lower for Asian women who _do_
           | smoke?
        
             | hgomersall wrote:
             | My understanding, though not by any means an expert, is
             | that lung cancer that non smokers tend to get is different
             | to that which smokers tend to get.
        
               | e40 wrote:
               | This is my understanding.
        
             | s1artibartfast wrote:
             | I think they just mean that the incidence is much higher in
             | that group than would otherwise be expected.
             | 
             | Not all lung cancers are related to smoking, but I'm not
             | aware of any where smoking decreases incidence or is
             | protective.
        
           | Balgair wrote:
           | Hey, best of luck to you both. I've been there with close
           | family members and cancer. It's no fun at all. Easily the
           | hardest thing I've ever had to do in my life was just to care
           | and watch.
           | 
           | Make sure to grab family and friends to help out. _The want
           | to help out_ , most of the time, at least. I know it's hard
           | to ask, but make sure to do it anyways.
           | 
           | And yeah, standard generic advice to take care of yourself
           | too. I hated that advice, as there just was never any time to
           | do so. One thing that helped was to schedule that 'me' time
           | in and make others aware of it. If you put it on the
           | schedule, you'll have a better chance of taking it.
           | 
           | Two tips with MDs:
           | 
           | 1) Carry and use a notebook in all MD interactions. Just a
           | simple journal is all. Time, medications given, dosages, MD
           | administering, etc. It's a good back up to have, sure, but
           | you'll likely never use it. The real power is when MDs see
           | you writing things down. They take you more seriously and
           | they take themselves more seriously. I think they think that
           | you'll sue now and have some proof. But who knows.
           | 
           | 2) If you're in for a long term treatment (1+ nights) put a
           | big bowl of candy outside the door. Nurses etc. will stop by
           | more often to check up on things and generally seem to like
           | you more. Consider putting cigarettes in there too, depending
           | on if your nurses smoke. Then they will _really_ like you and
           | go above and beyond.
           | 
           | Again, best of luck to you both.
           | 
           |  _FUCK cancer_.
        
             | e40 wrote:
             | Thanks. Appreciate the tips.
        
           | evaneykelen wrote:
           | I wish her and you all the strength in the world.
        
           | sizzle wrote:
           | Can you refuse allowing residents to practice on you or your
           | loved ones for better quality of care?
        
             | s1artibartfast wrote:
             | Sure, you can generally refuse any medical care in the US.
             | With respect to residents, It can be as simple as asking
             | and picking the right doctor for your procedure. Their
             | credentials are generally public.
        
             | e40 wrote:
             | Yes, you can, and the doctors we talked to said it would
             | not negatively impact them.
        
         | agumonkey wrote:
         | It's a great sight to see people outliving research protocols.
         | 
         | Best wishes.
        
         | hereme888 wrote:
         | Would you be willing to share a few more details for me to
         | understand? It would help me talk more concretely with my
         | colleagues.
         | 
         | So she had stage 4 lung cancer.
         | 
         | "Is alive only because of this drug":
         | 
         | - Was her life expectancy obviously prolonged? If so, by how
         | much has she exceeded it so far?
         | 
         | - Has the cancer progressed more slowly, halted, or regressed?
         | 
         | Thanks.
        
           | formercoder wrote:
           | I'm not completely read in to all the details but she told me
           | prior to this drug her diagnoses was a "death sentence." The
           | lung cancer had metastasized throughout her bones. The
           | indication was sudden lower body paralysis caused by a spinal
           | tumor. She had spinal fusion surgery as well. I understand
           | because it's stage 4 she will never be in "remission" but it
           | has regressed significantly.
        
             | hereme888 wrote:
             | Thanks for sharing. At such an advanced stage and
             | aggressive metastasis, for it to have regressed at all...
             | wow. She must have been in so much pain.
        
           | Spooky23 wrote:
           | My wife had stage 4 melanoma. Prior to the newish
           | immunotherapies about 5 years ago, it was a death sentence --
           | 6-9 months life expectancy from diagnosis. Now, it's 60-70% 5
           | year survival rate. Unfortunately my wife wasn't one of them.
           | 
           | In general, these types of cancers spew mets and spread
           | quickly. Many are resistant to chemo, go to the brain (chemo
           | cannot help there) and only respond to high focused radiation
           | like SRS or proton beam.
           | 
           | Immunotherapies essentially suppress checkpoints that cancer
           | cells use to avoid immune response and/or cause your body to
           | target specific checkpoints. I can't read FT.com, but I
           | believe it's talking about a targeted therapy that allows
           | your body to control the cancer.
           | 
           | There's alot of research happening around things like
           | immunotherapy combined with custom versions of Moderna and
           | other vaccines that will significantly improve treatment and
           | save people going through what my wife went through. It's a
           | good time.
        
             | hereme888 wrote:
             | Sorry to hear about your wife. Yes, once those melanomas go
             | deep enough in the skin, they spread everywhere like a
             | plague.
             | 
             | I know there's even researchers creating AI-assisted
             | treatment regimes that match specific mutations, other
             | aspects of people's DNA, and all the immunotherapy drugs,
             | in order to mix and match the best possible solution.
             | Ongoing research and not yet widely available.
             | 
             | I look forward to learning more about the newer
             | developments.
        
       | dghughes wrote:
       | I wish there had been something for IPF which is progressive
       | scarring of lung tissue. My Dad died of it after a long battle.
       | The doctor even said it's worse than lung cancer at least for
       | that there are treatments.
        
       | latchkey wrote:
       | My mom died from lung cancer. It was going to happen, life long
       | smoker.
       | 
       | Dying from LC is a terrible way to go. Your lungs fill with fluid
       | and you slowly drown in your own fluid. The pain meds make you
       | hallucinate terrible thoughts. I wouldn't wish it on anyone.
       | 
       | For the benefit of humanity, I hope this treatment works.
        
         | Scubabear68 wrote:
         | Same with my dad in the 80s. His descent was horrible to
         | witness, in my case at the age of 21. I'll never know the
         | truth, but I think his doctor took pity on him, dad died very
         | shortly after a push of morphine.
        
           | latchkey wrote:
           | Thanks for sharing and sorry to hear that.
           | 
           | My mom was only 56 (2004) and I got a call from the hospice
           | very early in the morning.
           | 
           | At her request, I had tried to take care of her myself for
           | the couple weeks after her diagnosis, but once the
           | hallucinations started, due to her increasing the pain meds,
           | she started screaming one night and the neighbors called the
           | police thinking I was abusing her.
           | 
           | Thankfully, they called a case worker and I was able to get
           | her into hospice pretty shortly after that and then it was
           | just a couple days more at that point.
           | 
           | It was pretty traumatic. One of those life events you never
           | forget. RIP mom.
        
             | Scubabear68 wrote:
             | My family tried home care in the terminal stage, but it was
             | too much for my mom and sister. My mom also had some
             | serious mental illnesses, compounding the difficulty we had
             | as a family. The trauma was so great I did not really hit a
             | normal state of emotional and mental stability until I was
             | about 30.
             | 
             | I was the only one there as he took his last breath, and it
             | still brings tears when I think about it.
        
               | arisAlexis wrote:
               | Have you gotten therapy for that trauma?
        
           | Xenoamorphous wrote:
           | I'll never understand how in this day and age we still allow
           | people to die suffering this way.
           | 
           | How come we are ok with euthanasia for pets but not people?
        
             | samus wrote:
             | It is allowed in some places. The problem is it's a
             | terrible slippery slope which has been used to get rid of
             | people whose lives were considered to not be worth living.
        
             | Mo3 wrote:
             | "We" don't. Here in NL euthanasia is freely available if
             | needed.
        
             | nicoburns wrote:
             | > How come we are ok with euthanasia for pets but not
             | people?
             | 
             | I think because:
             | 
             | - It mostly wasn't an issue we had to deal with until
             | recently because we didn't have the medical techniques to
             | preserve people's lives so long anyway.
             | 
             | - There are some concerns around people being forced into
             | it that require any laws enabling it to be carefully
             | designed.
             | 
             | - Religion providing it's usual function of inertia around
             | societal customs slowing the change.
             | 
             | Pretty much everyone I know under the age of 60 (and many
             | older) support euthanasia for people who have dementia or
             | some other unpleasant condition that affects their quality
             | of life (self-determined, not forced on people), so I'm
             | quietly confident that it will be happen soon.
             | 
             | I'll be pretty mad if it's not available for me if/when I
             | get to the point that I want it!
        
             | lr4444lr wrote:
             | Because pets are property. There is no concept of consent.
             | Human consent to die vs. pathological suicidal ideation is
             | a very tricky thing.
        
             | gosub100 wrote:
             | It doesn't need to be legal to do it. People commit suicide
             | all the time. The government doesn't need to be involved in
             | each and every section of our lives, from cradle to grave.
        
         | kevinmchugh wrote:
         | Watching my grandfather die with emphysema at age 12 was the
         | only anti-smoking message I ever needed
        
           | latchkey wrote:
           | Weirdly, my father who has smoked (and drank) daily his
           | entire life (now 78), is still alive and kicking. Camel
           | unfiltered and a lot of vodka.
           | 
           | I never smoked and I was never a big drinker. But, I stopped
           | drinking entirely a couple years ago cause it was just too
           | painful to look at him with his current health issues, and
           | think to myself that I'm going to end up like he is. No
           | thanks, I don't need that poison.
        
             | ianlevesque wrote:
             | About 20% of smokers escape that way. Enough for everyone
             | to know one, but the odds are still not in your favor.
        
       | instagraham wrote:
       | > Tagrisso earned $5.8bn in sales in 2023 -- 13 per cent of
       | AstraZeneca's total oncology sales -- making it the company's
       | highest earner.
       | 
       | The drug seems to have been approved in 2015-16. If that's the
       | case, why is this announcement of efficacy happening now? A long-
       | term outcome after a short-term tentative approval?
        
         | loeg wrote:
         | It was approved for certain types of cancers and has slowly
         | been approved for more and more types of cancer, basically.
         | 
         | > Dec 21, 2020 Approval Tagrisso Approved in the US for the
         | Adjuvant Treatment of Patients with Early-Stage EGFR-Mutated
         | Non-Small Cell Lung Cancer
         | 
         | > Apr 18, 2018 Approval FDA Approves Tagrisso (osimertinib) as
         | First-Line Treatment for EGFR-Mutated Non-Small Cell Lung
         | Cancer
         | 
         | > Jun 6, 2017 AstraZeneca Presents Tagrisso (osimertinib) Data
         | in Patients with EGFR T790M-Mutation Positive Lung Cancer and
         | Central Nervous System Metastases
         | 
         | > Mar 31, 2017 Approval Tagrisso (osimertinib) Receives FDA
         | Full Approval
         | 
         | > Nov 13, 2015 Approval FDA Approves Tagrisso (osimertinib) for
         | EGFR T790M Mutation-Positive Non-Small Cell Lung Cancer
         | 
         | https://www.drugs.com/history/tagrisso.html
        
         | yieldcrv wrote:
         | US approval follows the path of one treatment for one ailment.
         | 
         | so if something was useful for 100 ailments, it needs 100
         | different approvals, and a company willing to attempt doing
         | that
         | 
         | what more likely happens is one treatment is denied for the one
         | ailment the company thought they were tackling, and that one
         | treatment is never pursued again
         | 
         | so there's a lot of waste in this particular approach to
         | protecting the public. I'm not familiar with other approaches.
        
           | boppo1 wrote:
           | Seems like there's a lot of opportunity with those unused
           | treatments, if you can get the right arrangement of capital.
           | If the company gives up on pursuit, perhaps the'd sell it for
           | less than the R&D cost. Someone could go scoop up 'losers'
           | and find a better way to match them to ailments.
        
             | s1artibartfast wrote:
             | This happens. Drug companies sell off IP and technology
             | quite often.
             | 
             | The bottle neck is you need someone with a better use
             | hypothesis, and a billion dollars to test that. Drug Trials
             | and development are obscenely expensive.
        
           | ackbar03 wrote:
           | Why doesn't the company pursue it for other purposes? Sounds
           | extremely narrow, as per the comment above. There may be
           | related stuff where it works as a treatment depending on the
           | endpoint?
        
             | s1artibartfast wrote:
             | Because it is extremely expensive and complex to pursue
             | each each use. At some point of diminishing returns, it
             | makes sense to let the medical community lead the process
             | of finding and testing uses.
        
             | yieldcrv wrote:
             | because there is always lower hanging fruit at that point.
             | 
             | Even if this was the most altruistic, non-profit funded
             | goal to solve an obscure ailment, once that inevitably
             | fails - and statistically it is inevitably - all capital
             | has been expended, your team's reputation has been spent.
             | You go to something that has more consensus instead of your
             | alchemy concoction nobody's ever head of and wasn't good
             | for the one thing you made it for.
        
           | s1artibartfast wrote:
           | One other facet to consider is that it is already legal to
           | for doctors to the medicine for any of those 100 approvals.
           | those trials serve three purposes, 1) to generate high
           | quality data to support doctor choice, 2) provide defense for
           | medical malpractice suits against doctors, and 3) support
           | insurance reimbursement.
           | 
           | Doctors already have discretion to prescribe Tagrisso for the
           | common flu. However, a doctor that does so will struggle to
           | get insurance to cover it, and will have a harder defense if
           | the patient sues.
        
       | siva7 wrote:
       | Is there actually some kind of list which shows in a table what
       | kind of cancers are currently treatable by which experimental
       | medicine?
        
         | nradov wrote:
         | By definition no one knows for certain which types of cancer
         | are treatable by _experimental_ drugs. That 's why they're
         | still experimental and not yet approved. But this site has a
         | good list of resources for finding clinical trials that might
         | help.
         | 
         | https://www.cancer.net/research-and-advocacy/clinical-trials...
        
       | kkio wrote:
       | My father has been taking Tagrisso since he was diagnosed with
       | Stage IV lung cancer in January 2022. It's been able to give him
       | a relatively normal quality of life I don't think my family
       | would've seen otherwise if he'd gone through chemo and radiation.
       | 
       | Just chiming in that I'm super thankful to that these newer
       | treatments are so effective.
       | 
       | That said it's not cheap and he still has to work to keep his
       | insurance... otherwise it'd be ~10k/mo.
        
         | e40 wrote:
         | So glad to hear your father has made it 2 years. I have hopes
         | for my wife (see my recent comment).
        
         | phone8675309 wrote:
         | I'm glad that Tagrisso has helped your father.
         | 
         | Do we know how much public funding for Tagrisso that
         | AstraZeneca mugged from the respective citizens of the
         | countries where they operate and how much they're going to sell
         | it back to us for?
        
           | nradov wrote:
           | If you're honestly interested in the history of Osimertinib
           | (Tagrisso) then this article has a good overview. It
           | specifies the studies involved so that you can dig into
           | funding sources. Generally for drug development, public
           | funding only covers basic science and maybe early-stage
           | trials. The majority of the expense is in phase 3 clinical
           | trials which pharmaceutical companies pay for.
           | 
           | https://doi.org/10.1093/annonc/mdw129
        
         | wing-_-nuts wrote:
         | >he still has to work to keep his insurance... otherwise it'd
         | be ~10k/mo.
         | 
         | I mean, it'd be covered under the ACA or presumably medicare as
         | well?
        
       | adamredwoods wrote:
       | According to Wikipedia, it depends on a specific cancer cell
       | mutation, T790M, which could also be a forced mutation from using
       | other EGFR tyrosine kinase inhibitors. This alludes how tricky,
       | and how fast, cancer cells mutate and adapt.
       | 
       | >> In people treated with osimertinib, resistance usually
       | develops within approximately 10 months.
       | 
       | https://en.wikipedia.org/wiki/Osimertinib
        
         | zoratu wrote:
         | In my MIL's case it was L858R. T790M also present,
         | effectiveness of drug dramatically increased with presence of
         | both. Osimertinib shrunk the tumor from baseball to golfball,
         | and then her left most lung lobe was surgically removed. She
         | was stage 2 at intake and without metastastis. The drug was not
         | approved for that case in 2021 and she was admitted to an
         | ongoing case study for it.
        
       | icegreentea2 wrote:
       | I -think- this is the study referenced
       | https://ascopubs.org/doi/full/10.1200/JCO.22.02186
        
       | londons_explore wrote:
       | I predict that ~30 years from now, someone will take all these
       | drugs that have shown some success in treating some cancer, mix
       | them all together at a low dose, and find the combination works
       | better than any of the components.
        
         | bglazer wrote:
         | This is already done. There are many labs currently looking for
         | "synergistic" combinations of treatments.
        
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