[HN Gopher] Can autoimmune diseases be cured? Scientists see hop...
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       Can autoimmune diseases be cured? Scientists see hope at last
        
       Author : gumby
       Score  : 103 points
       Date   : 2024-01-24 12:16 UTC (10 hours ago)
        
 (HTM) web link (www.nature.com)
 (TXT) w3m dump (www.nature.com)
        
       | jbm wrote:
       | My first thought was whether this could help with allergies; this
       | seems to be a much, much bigger group of people. Sadly it didn't
       | seem to come up in the article.
       | 
       | Oh and yay University of Calgary!
        
         | kelnos wrote:
         | It seems like one of the approaches they are looking into is
         | very similar to an existing treatment for allergies, at least
         | on the surface:
         | 
         | > _In some cases, that means administering the very antigens
         | that the rogue cells are trained to attack, a strategy that can
         | deprogram the cells and dampen the autoimmune response._
         | 
         | I go to my allergist every month to get three shots under my
         | skin, which are cocktails of concentrated versions of the
         | various things I'm allergic to. It's been almost 3.5 years
         | since I started, and while my allergies are certainly better
         | than they used to be, they're far from "cured". I don't really
         | expect further improvement; I'm supposed to do another year and
         | a half in order to increase the chances of it "sticking" for
         | longer. But even then, some patients report their allergies
         | come back in full force in anywhere between 5 and 20 years.
         | 
         | But they are also looking into:
         | 
         | > _Other researchers are trying to selectively wipe out the
         | problematic cells, or to introduce suppressive immune cells
         | that have been engineered to target them._
         | 
         | ... which I personally think is much more promising, if
         | possibly much more difficult to accomplish.
        
       | mieubrisse wrote:
       | Fascinating and informative article. I'm wrestling with an
       | unknown something that looks like it might be autoimmune, and
       | this reads like the difference between "you're destined to a
       | lifetime of palliative treatments" vs "there might be a something
       | you can do to actually cure yourself". And I don't even have
       | anything confirmed; I can't imagine what folks who actually have
       | a confirmed autoimmune disorder must be feeling.
        
         | josefresco wrote:
         | I'm 6ish years into my RA diagnosis. The first 2 years were
         | very rough both physically but more so mentally. I manage the
         | mental aspect better now, and my symptoms have stabilized which
         | certainly helps the former. However it's easy to dip into
         | despair when you know what the long term prospects are for life
         | quality and expectancy.
        
       | parrellel wrote:
       | Type 1 and RA in the family here and they are life re-defining
       | conditions. Everyone of us is watching this research like a hawk.
        
         | josefresco wrote:
         | Same here, I have RA, my dad had RA (remission now) and I have
         | two sisters with still mysterious auto-immune disorders. This
         | news and all news on treatments that aren't _blunt immune
         | response hammers_ gives us hope.
         | 
         | Tip for those watching prescription TC commercials: When they
         | say "you may be more prone to infection" take it very, very
         | seriously.
        
           | hirvi74 wrote:
           | > When they say "you may be more prone to infection" take it
           | very, very seriously.
           | 
           | I suppose it depends on the disease. I have read rather
           | conflicting research about whether certain DMARDs/Biologics
           | actually increase cancer rates, infections, etc..
           | 
           | I'm about the furthest thing from a expert one can be in
           | regards to this topic, but I will say that I have always
           | purposely tried to stay away from those medications "just in
           | case." I am also in a fortunate enough situation that I am
           | not required to go on such medications despite having the
           | option in order to live a mostly normal life.
           | 
           | I'm not some "big pharma bad" person, but something about
           | those medications have never sat well with me. I suppose for
           | many, the risk of the cure outweighs the risk of the disease.
           | But in regards to something as integral as the human immune
           | system, I real do not want to "fuck around & find out" as
           | people say these days. Until there is a legitimate cure or
           | safer medicines, I suppose I am (dis)content with the level
           | of disease activity I currently have.
        
             | parrellel wrote:
             | This is great if your particular immune disorder doesn't
             | kill your ability to walk or eat or type, but the increased
             | cancer risk definitely seems worth not having to comparison
             | shop foot-pedal mice.
             | 
             | I've read that the increased cancer risk isn't so much an
             | increase in cancer rate as a reduction in bodily policing
             | of early cancers?
        
       | voisin wrote:
       | What's the best way to track research, RSS-style, rather than
       | manually doing searches and hoping you see follow ups?
        
         | fabian2k wrote:
         | Pubmed is the database you'd typically want to look at for
         | medical and natural sciences. You can configure email alerts
         | for specific keywords there, though it's been ages that I've
         | done that.
        
           | wcarss wrote:
           | This is the specific kind of thing I want to use LLMs for. I
           | want to describe "what I'm looking for" to an LLM and have it
           | go out each week and digest the most recent 100 papers, and
           | occasionally pop up to tell me when there's something
           | potentially relevant to read.
        
       | kelnos wrote:
       | Absolute layperson here, but:
       | 
       | > _In some cases, that means administering the very antigens that
       | the rogue cells are trained to attack, a strategy that can
       | deprogram the cells and dampen the autoimmune response._
       | 
       | This sounds exactly like the strategy my allergy doc uses to
       | suppress my allergies. Regularly expose my immune system to
       | concentrated amounts of the allergens in order to deprogram the
       | immune system's erroneous response. If it really is similar and
       | analogous, I'm not really holding out much hope for this. Results
       | from allergy shots seem to be all over the map. Yes, definitely
       | positive results on average, that make it worth it for many
       | people (myself included), but if it is indeed similar, I don't
       | think this can be a general solution to these autoimmune
       | diseases, that will work for everyone, or even most people.
       | 
       | (Notably, the practice I go to is an "Immunology & Allergy"
       | practice.)
       | 
       | > _Other researchers are trying to selectively wipe out the
       | problematic cells, or to introduce suppressive immune cells that
       | have been engineered to target them._
       | 
       | This seems much more promising? Probably much more difficult,
       | though, which I think makes the "deprogramming" method above
       | worthwhile to look into, since it could potentially work well
       | enough, for enough people, to make it worth the effort.
       | 
       | Again, complete layperson here. If the immune system's response
       | when it comes to allergies is nothing like the mechanisms in play
       | when we're talking about autoimmune disorders, then... well,
       | never mind, I guess.
        
       | nullserver wrote:
       | Sjogrens. Which is similar to Lupus.
       | 
       | Diet changes can make a huge difference. Earlier the better.
       | 
       | On many support forums I see a pattern of people using the
       | various meds with mixed results. Then people starting to
       | experiment with which foods they seem to do better with. Then
       | discovering the auto immune protocol diet.
       | 
       | A lot of people don't wanna go to the effort, so won't try it and
       | complain about it.
       | 
       | People that try it and actually follow it often have amazing
       | results, and all their symptoms calm down.
       | 
       | A lot of people just cannot give up the pizza and chips though.
        
         | hirvi74 wrote:
         | My issue with the dietary suggestions is that I have yet to see
         | enough conclusive evidence that any of them work (especially
         | long-term). I feel like much of the information is just a
         | Survivorship Bias. Who blogs about the countless diets that
         | failed to help them?
         | 
         | My understanding is that even for those who receive positive
         | results, such results are highly anecdotal and individually
         | specific.
         | 
         | One person goes vegan and is cured. Another goes on a strictly
         | carnivore diet and is cured. Same can be said for Mediterranean
         | Diet, Plant-based, keto, etc.. So, which one should be
         | recommended? How many should one try before they give up? How
         | long should they try before they give up?
         | 
         | "Nightshades cause inflammation." How? Why? At what dosage --
         | one slick of bell pepper can't be equal to five pounds of
         | tomatoes, right? Why is this an issue only in some people?
         | 
         | I am not trying to dismiss the premise because there could be
         | validity to dietary factors impacting disease prognosis, but
         | part of me also wants to believe that if the treatments were as
         | simple as dietary interventions, then a majority of people with
         | AI diseases would be cured already.
         | 
         | I refuse to accept the conspiracy that diets hold the hidden
         | cure for a majority of AI diseases, and that Big Pharma and
         | doctors wouldn't profit as much if people made dietary
         | interventions, so that's why they keep people sick with AI
         | diseases by only treating the symptoms. Accepting such would be
         | ignoring that there is also an entire "Big Diet" industry that
         | stands to make a profit off the same desperate people.
         | 
         | All I am gonna say is that, Dr. Jonas Salk invented the first
         | effective Polio vaccine, did not patent his findings, an thus
         | released it for free so the world could be a better place. Dr.
         | John Pagano apparently discovered a diet that helps treat/cure
         | AI diseases. You can learn more about it for $64.22 on Amazon.
        
       | ahstilde wrote:
       | Technically, allergies are an autoimmune disease, and they're
       | certainly effectively curable through a change in the immune
       | response.
       | 
       | We're increasing the availability of allergy immunotherapy with
       | our company, Wyndly.
       | 
       | https://www.wyndly.com/pages/immunotherapy
       | 
       | I'd love to see this for more conditions.
        
         | anonymouskimmer wrote:
         | Is it medically possible to make a combination sublingual drop
         | for a variety of common allergies without side-effects? $250
         | for a test and then whatever payments to have a doctor
         | prescribe it is out of reach for many. A single over-the-
         | counter for the more common allergies, or even regional over-
         | the-counters for regional allergens, would be reach a lot more
         | people.
         | 
         | For the serious allergic reactions I can see why a personalized
         | plan would be required. But for the more mild reactions this
         | seems hypothetically possible.
         | 
         | Aside: If wondered for a bit whether something like honey
         | blends of many regional honeys for young children older than 6
         | months would eliminate most of the seasonal pollen allergies
         | that people develop from moving to other parts of the
         | country/world.
         | 
         | Edit to add: I believe you're wrong about the "technically"
         | part. Allergies aren't attacking the body (therefore not
         | "auto"), merely causing symptoms through the general immune
         | response against the allergen. This is particularly aggravating
         | to an individual because the immune response is long lasting,
         | as it's impossible for the immune system to eliminate the
         | foreign antigen when said antigen is prevalent in the
         | environment.
        
         | Metacelsus wrote:
         | >Technically, allergies are an autoimmune disease
         | 
         | No, autoimmune means an immune reaction against a human protein
         | (which allergens are not).
        
       | hirvi74 wrote:
       | I am not trying to be a downer, and I am a person who would
       | greatly benefit from this type of cure having one autoimmune
       | disorder myself.
       | 
       | However, I'll just say that I will believe it when I see it.
       | Until this is lumped in with the other innovations that a mere
       | carrots on a stick like a cure for cancer, material that can
       | replace plastic without compromise, flying cars, ability to
       | regrow enamel/reverse dental caries, etc..
        
       | notamy wrote:
       | This would be lovely if it pans out. I've been grappling with a
       | neurological issue for a while now that might be autoimmune
       | (testing inconclusive so far); fortunately the neurological
       | symptoms are reversible, but having an autoimmune variant of this
       | issue would be life-altering with how treatment progresses.
        
       | eaurouge wrote:
       | > But what's most surprising is that they have all stayed in
       | remission, even after they began producing new B cells. It's as
       | if wiping out the B cells performed a reset on the immune system.
       | 
       | Apparently repeated cycles of prolonged fasts can also trigger
       | apoptosis and reset the immune system.
       | 
       | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7474734/
        
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