[HN Gopher] Does the microbiome hold the key to chronic fatigue ...
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       Does the microbiome hold the key to chronic fatigue syndrome?
        
       Author : vincvinc
       Score  : 64 points
       Date   : 2023-07-14 17:41 UTC (5 hours ago)
        
 (HTM) web link (www.theguardian.com)
 (TXT) w3m dump (www.theguardian.com)
        
       | [deleted]
        
       | imwillofficial wrote:
       | I hope they figure something out ::slams 5th cup of coffee::
        
         | GordonS wrote:
         | Do you have CFS? Personally, I find that coffee doesn't do very
         | much to help.
        
           | [deleted]
        
           | rednerrus wrote:
           | Doesn't it actually make it worse. The chronic stimulation of
           | Catecholamines, especially dopamine is going to lead to
           | chronic fatigue.
        
           | imwillofficial wrote:
           | I don't know. I've been chronically tired for years now. It's
           | spanned from when I was military running 5 miles a day annd
           | eating great, to periods of eating bad and barely exercising.
           | 
           | Life style doesn't seem to effect it.
        
             | digging wrote:
             | Any chance you have ADHD? I learned (far later in life than
             | I would have liked) that I have ADHD and that it is one of
             | the biggest reasons I'm almost always tired or even
             | exhausted. Brain's just thinking too hard/inefficiently. (I
             | have other contributing factors, but this one is
             | significant and fairly obvious). Still can't get treatment,
             | but the awareness has helped me work around it somewhat, by
             | removing stressors and taking time to relax and/or
             | hyperfocus.
        
               | TeffenEllis wrote:
               | Seconding for for ADHD and narcolepsy. I had a sleep
               | study done a few years back that came up borderline
               | positive. Doctor had me try a few meds out but the one
               | that really stuck was Vyvanse (basically a slow release
               | pro-drug of Adderall). Suddenly I'm not having sleep
               | attacks every time I sit down, or even feeling like my
               | head is made of bricks.
               | 
               | I grew up in a family that didn't believe in ADHD so I
               | would cope with excessive amounts of caffeine. It's
               | definitely worth looking into if you have the slightest
               | suspicion.
               | 
               | Also don't get too caught up in passing the MSLT.
               | Personally, I think it's barely medical science, but it's
               | a part of getting a diagnosis and some insights into how
               | your brain is (or isn't) sleeping.
        
               | imwillofficial wrote:
               | Have both ADHD and Sleep Apnea, both are treated (CPAP
               | and Addral)
        
               | devinprater wrote:
               | Wait that's not just me? Holy crap.
        
             | mfer wrote:
             | I've been reading about health and all of this stuff for a
             | bit now. Some things I learned...
             | 
             | 1. Sleep is massively important. Not getting enough, sleep
             | Apnea, and other things that mess with sleep will lead to
             | feeling tired.
             | 
             | 2. Diet matters. What most people consider healthy is often
             | not all that healthy. You can read about the gut/brain
             | connection. To keep the gut in healthy shape you needs
             | plenty of fiber and micro nutrients found in things like
             | vegetables and whole grains. Doctors aren't trained much in
             | this stuff but nutritionists are.
             | 
             | 3. I personally found that drinking too much coffee lead to
             | it. I almost needed the coffee to feel awake. When I broke
             | myself of that (I have limited amounts of coffee now) I had
             | more energy. I cut off coffee cold turkey. Was not fun.
             | 
             | 4. ADHD can lead to feeling tired.
        
             | isykt wrote:
             | Have you been tested for sleep apnea? This can affect even
             | people who aren't overweight.
        
               | imwillofficial wrote:
               | Yeah I was diagnosed and have used a cpap consistently
               | for years
        
             | RandomTisk wrote:
             | In the last couple years I've had to overhaul my diet due
             | to sudden onset of all kinds of food allergies since COVID.
             | I used to be chronically tired especially in the
             | afternoons. I now eat very little sugar and no corn
             | syrup/HFCS at all and I've made two interesting
             | observations: My cravings for sweets are virtually zero and
             | my energy levels are stable all day.
             | 
             | There are exceptions but for the most part I'm almost never
             | tired during the day anymore unless I worked out a lot. My
             | energy isn't exactly bouncing me off any walls but it's a
             | noticable improvement.
        
       | ipunchghosts wrote:
       | Folks in Maureen's group at Cornell have been looking at this for
       | at least 10 years. There are changes but the research isn't
       | replicable nor can people predict the changes.
        
       | thedailymail wrote:
       | Is there a sex-specific difference in gut immunity that would
       | account for the much higher prevalence of CFS in women?
        
       | pella wrote:
       | imho: this is a slightly better link:
       | 
       | "Studies find that microbiome changes may be a signature for
       | ME/CFS"
       | 
       | Wednesday, February 8, 2023
       | 
       | NIH-funded studies link altered gut microbes to debilitating
       | chronic disease.
       | 
       | https://www.nih.gov/news-events/news-releases/studies-find-m...
       | 
       | (1); Guo, et al. Deficient butyrate-producing capacity in the gut
       | microbiome is associated with bacterial network disturbances and
       | fatigue symptoms in ME/CFS. Cell Host & Microbe, February 8,
       | 2023. DOI: 10.1016/j.chom.2023.01.004. https://www.cell.com/cell-
       | host-microbe/fulltext/S1931-3128(2...
       | 
       | (2); Xiong, et al. Multi-'omics of host-microbiome interactions
       | in short- and long-term Myalgic Encephalomyelitis/Chronic Fatigue
       | Syndrome (ME/CFS). Cell Host & Microbe, February 8, 2023. DOI:
       | 10.1016/j.chom.2023.01.001. https://www.cell.com/cell-host-
       | microbe/fulltext/S1931-3128(2...
        
       | noyeastguy wrote:
       | [flagged]
        
         | Jacky4Chan wrote:
         | Source?
        
         | [deleted]
        
         | [deleted]
        
         | dang wrote:
         | Not to be the tool of Big Yeast or anything, but single-purpose
         | accounts aren't allowed on HN. That's because pursuing a fixed,
         | pre-existing agenda is incompatible with the curious
         | conversation we want on HN, which is unpredictable and free
         | ranging. So I'm afraid we have to ban this account.
         | 
         | If you want to participate as a community member--i.e. posting
         | and discussing on a variety of topics of interest as curiosity
         | moves you--you're of course welcome. A little yeast or no-yeast
         | is reasonable as part of a mix alongside everything else, but
         | we don't want campaigns here.
        
       | ilya_m wrote:
       | Betteridge's law of headlines: "Any headline that ends in a
       | question mark can be answered by the word no."
        
         | accoil wrote:
         | Betteridge's corollary: "any headline that ends in a question
         | mark will have a comment pointing out Betteridge's law when
         | linked to in a forum."
        
           | ben_w wrote:
           | Goodhart's law of headlines:
           | 
           | Any quick measure for recognising and avoiding clickbait,
           | when widely shared and applied, stops being a good measure.
        
       | jsbisviewtiful wrote:
       | I always find these articles about "the microbiome being the key
       | to a healthcare revolution" to be kind of annoying and just
       | repetitive info.
       | 
       | If a person's diet consists of Diet Coke, high carb/fat/sugar
       | processed foods, 14 servings of bacon or beef a week and alcohol
       | every other day with no exercise _they are going to feel like
       | shit_. Leafy greens, fruits, less meat and less breads with some
       | exercise would do anyone wonders - especially for their
       | microbiome.
       | 
       | These articles and ideas on the microbiome have been coming out
       | for at least 10 years and the realistic takeaway from the
       | research has always been _make healthier decisions and you'll be
       | healthier_. It's just never seemed _that_ revolutionary, aside
       | from the microbiome and mental health connections, which are
       | interesting but still the same message.
        
         | acuozzo wrote:
         | > _make healthier decisions and you'll be healthier_
         | 
         | > aside from the microbiome and mental health connections
         | 
         | Conjecture: If our microbiome has the ability to impact our
         | mental health, then it most certainly is possible for an
         | unhealthy microbiome to rob individuals of the willpower
         | necessary to maintain the discipline for their healthier
         | decisions to bear fruit; a kind of self-preservation, perhaps.
         | 
         | The behavioral changes of toxoplasmosis-afflicted individuals
         | suggests to me that these little buggers can effect complex
         | change.
        
         | DANmode wrote:
         | Until I stop getting surprised looks when I explain that
         | probiotics and proper dietary fiber effectively stop bad
         | bacteria from eating your gut lining, causing bowel (and often
         | systemic) inflammation, I hope one of these posts makes it to
         | front-page weekly.
         | 
         | Hopefully daily.
        
         | Mountain_Skies wrote:
         | What interests me is the possibility that over time you can
         | cause certain strains of beneficial bacteria to go extinct in
         | your gut, so you can't repopulate it by correcting your diet.
         | And if that bacteria is initially populated by the mother, if
         | she already has some of those strains go extinct when she has
         | children, they could be born without those strains at all. But
         | that's all a wild guess on my part.
        
         | InSteady wrote:
         | You are being a bit reductive. For understandable reasons: the
         | articles actually are repetitive and not terribly information-
         | dense. This is because most of what sciences has uncovered
         | about the microbiome so far does not translate well to
         | journalism even when it's directed at a semi-technical
         | audience.
         | 
         | The microbiome is insanely complex. In some ways I believe the
         | GI tract is a more complex system than the brain (in terms of
         | more variables all cross-interacting which has significant and
         | sometimes severe influence on health outcomes). We are a long
         | way away from fully understanding any single aspect of it, let
         | alone how multiple aspects of the GI or microbiome work in
         | concert.
         | 
         | The microbiome is insanely important in human health. It is the
         | absolutely critical foundation of our entire immune system, for
         | one thing. Yes, a good diet is foundational to health. But if
         | you encounter enough microbiome research, it becomes quite
         | clear that a proper diet is not a magical cure for a whole lot
         | of severe diseases and disorders in which the microbiome is
         | moderately to strongly implicated. And various extreme and fad
         | diets don't really bear out in the research to cure many let
         | alone most diseases in large populations (aside from the few
         | obvious ones, type II diabetes, obesity, lower risk of heart
         | disease, etc). Eating well is better than eating like crap just
         | like not slamming heroin is better than becoming a junkie.. but
         | that is not where insights from microbiome research begin nor
         | end.
         | 
         | If you get impatient with the slow pace of actionable results,
         | do keep in mind that researchers are only looking closely at
         | only a fraction of the 1,000 or so species that make up the 100
         | trillion bacterial cells in it, and almost none of the fungi
         | and yeast nor the viruses that also compose it (the latter of
         | which are now believed to vastly outnumber the 100 trillion
         | bacteria!). All of these critters produce side effects -
         | whether good or bad (eg bacterial and fungal metabolites, many
         | of which are critical to host immune signaling and other
         | essential aspects of human health).
        
         | renewiltord wrote:
         | I agree that it's being touted as a panacea and The One Cause.
         | But I think that you can do all those things and still have
         | life suck. For instance, Crohn's and celiac both look similar
         | to the untrained eye. You have digestive trouble. And some
         | generic "just eat healthy" advice won't have worked properly.
         | Literally cutting out gluten would instantly work wonders for
         | celiac, not "less bread, less meat". Literally just "no bread
         | from sources with gluten". So, we just go through and find
         | causes and more precisely intervene.
         | 
         | And the worst thing is that someone would have gotten a bit
         | better with celiac's if they eat less bread, but the problem
         | will have been unsolved. Way better to identify precisely and
         | they can do all these other things and just avoid bread with
         | gluten and can enjoy the occasional matcha mochi waffle.
        
         | bequanna wrote:
         | I mostly agree, but I think we need to start
         | discussing/researching the effects of nuking our gut bacteria
         | with antibiotics and the herbicides like Roundup which are
         | present in our food.
         | 
         | The latter is obviously pretty tough because you risk upsetting
         | the ag industrial complex who would like to continue spraying
         | everything with Roundup and claiming it has no harms
         | whatsoever.
        
         | dundarious wrote:
         | They find it easier to directly monetize a pill for a chronic
         | condition, instead of preventing the chronic condition.
        
         | throwawaycities wrote:
         | There is a study that would really annoy you then, the subjects
         | were pairs of identical twin children throughout Africa. They
         | would find twins where one was perfectly healthy and the other
         | was malnourished. The reasoning is both nature (genetics) and
         | nurture (diet) were nearly identical. The difference is nearly
         | all cases was the makeup of the microbiome leading to one child
         | being healthy & the other malnourished with all other things
         | being equal. Per your comment it would seem no amount of
         | dietary changes would makeup the difference, plus it probably
         | also highlights a possible bias that a bunch of malnourished
         | kids around the world can simply make "healthy" dietary
         | changes.
         | 
         | 10 years really isn't a significant period of time to study
         | something as complex as the microbiome. Don't be surprised if
         | it continues to be studied for decades, just as we have been
         | studying genetics for decades and despite all the incredible
         | advancements and understanding we still have more questions
         | than we have answers.
        
           | elmomle wrote:
           | That's interesting--it's certainly plausible, even probable,
           | sense that good diet is necessary but not sufficient to
           | ensure that the microbiome is in a personally-optimal state.
           | Please give a citation if you can!
        
           | jay_kyburz wrote:
           | Did the study suggest what had damaged one of the twins
           | biome? I can only assume it was antibiotics.
        
         | deepsun wrote:
         | The correlation you presented is obvious, but there ia also a
         | question of what causes what.
         | 
         | Speaking for the devil, there might be a case when biome makes
         | people irresistive to Coke, sugar and bacon, through, say,
         | depressive/impulsive shots.
         | 
         | Fortunately, unlike astronomy, we can test it, e.g. by
         | injecting a different biome without touching anything else, and
         | see what happens on its own.
        
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