[HN Gopher] A shot to prevent Lyme disease  could be on its way
       ___________________________________________________________________
        
       A shot to prevent Lyme disease  could be on its way
        
       Author : Kaibeezy
       Score  : 550 points
       Date   : 2021-08-17 08:38 UTC (14 hours ago)
        
 (HTM) web link (www.outsideonline.com)
 (TXT) w3m dump (www.outsideonline.com)
        
       | abruzzi wrote:
       | This is fascuinating. Fortunately I live in a state with very low
       | numbers, both absolute and per-100k, but I was curious about how
       | infections had spread across the country, so I found this data at
       | the CDC:
       | 
       | https://www.cdc.gov/lyme/stats/tables.html
       | 
       | The really strange thing is Massachusetts. In 2010 they had 36.3
       | confirmed cases per 100k residents--one of the higher rates in
       | the country at that time, but in 2019 they had .1 confirmed cases
       | per 100k, while neighboring states remained high. I have to
       | assume this isn't real or is some kind of artifact (not
       | confirming, just treating?), but I wonder if anyone has any
       | insight into this?
        
         | justinpombrio wrote:
         | Well spotted. It's a reporting artifact:
         | https://www.lesswrong.com/posts/ZpyQMEthstNKhKNJQ/massachuse...
        
           | abruzzi wrote:
           | thanks for that link. Thats what I expected.
        
       | vinnymac wrote:
       | This article gives me hope. My grandfather has Lyme disease and
       | it took a very long time to identify, he's very old and spends a
       | lot of time outdoors, so the disease has made life much harder. I
       | live in an area with a lot of white tailed deer. I get at least
       | 600 on my property a year, as it's a highly trafficked area with
       | a lot of bedding and running water. Last winter my wife had one
       | embedded in her that I had to pull out, and I immediately got
       | worried about Lyme disease. Every day around 5pm a baby doe comes
       | to our backyard to eat some greens and I receive my reminder that
       | the summer season is coming to a close and ticks may become
       | rampant again.
       | 
       | More than anything, I hope we can improve our identification of
       | this disease, a vaccine would absolutely be a game changer, if
       | they can make it happen.
        
       | mind-blight wrote:
       | I'm so happy to see this. My dad suffered from Lyme's for years.
       | He died 3 months ago due to Lyme's related complications. I
       | really hope more people don't have to go what he went through.
       | 
       | It's also comforting (I'm a misery loves company kind of way) to
       | know other other people are dealing with, and trying to fight,
       | the disease. It makes dealing with everything feel a bit less
       | lonely
        
         | zekrioca wrote:
         | I'm sorry for your loss. I hope these trials go further to help
         | more people in need.
        
       | contravariant wrote:
       | > a relatively uncommon treatment for Lyme in which doctors
       | siphon some blood, blast it with electromagnetic waves, and then
       | drip it back into the bloodstream
       | 
       | That's a weird description, depending on what kind of waves this
       | could be anything from microwaving the blood to blasting it with
       | UV or just shining some rainbow coloured lights on it.
        
         | akyu wrote:
         | >microwaving the blood to blasting it with UV or just shining
         | some rainbow coloured lights on it.
         | 
         | Or you could just say, "blast it with electromagnetic waves".
        
         | inter_netuser wrote:
         | transfusion blood gets gamma irradiated. maybe that?
         | 
         | also there was some research on UV-C irradiated blood.
        
         | rogers18445 wrote:
         | Ionizing radiation. Ingenious approach, sort of a pseudo-
         | vaccine, kills and breaks apart a pathogen in the blood that
         | was taken and when re-injected it presents a greater attack
         | surface for the immune system to learn about the pathogen. Also
         | whatever active measures the pathogen cells in the sample were
         | taking to evade attention are no longer in effect since it's
         | dead.
        
       | hannob wrote:
       | The article touches this briefly: I think it's horrible that the
       | antivax movement successfully managed to push a working lyme
       | vaccine off the market, based on concerns that turned out to be
       | false.
       | 
       | Every time you get a tick you should remember that you could be
       | safe from lyme, but the antivax movement took that away from us.
        
         | erichocean wrote:
         | That's...not how the FDA, or science, or medicine works.
         | Antivaxers have no power whatsoever.
        
           | hannob wrote:
           | From what I understand the vaccine wasn't taken off the
           | market by the FDA or science. It was taken off the market by
           | the company producing it, due to pressure from lawsuits and
           | bullshit concerns about risks.
        
             | wiz21c wrote:
             | I'm not antivax but if the company is sure its vaccine is
             | safe, why should they fear lawsuits ?
        
               | mschuster91 wrote:
               | Because in the US legal system that uses laypeople as
               | judges ("juries"), lawsuits tend to be won by those who
               | put on the best play for the juries, not by those who
               | have the better arguments on their side like in
               | Continental Europe. And to make matters worse, sometimes
               | juries go for obscenely excessive damages against
               | companies to "make a point" - just look at the McDonald's
               | coffee case.
        
               | spicymaki wrote:
               | The McDonald's coffee lawsuit was not frivolous[1][2].
               | The company served coffee at extremely dangerous
               | temperatures. The claimant had severe third degree burns
               | and only wanted McDonald's to pay for her medical
               | expenses. McDonald's had a least 700 complaints about the
               | problem before the lawsuit and did nothing until after
               | the lawsuit. Please stop repeating corporate propaganda.
               | 
               | [1] https://youtu.be/s_jaU5V9FUg
               | 
               | [2] https://www.vox.com/policy-and-
               | politics/2016/12/16/13971482/...
        
               | nate_meurer wrote:
               | No, what happened to Stella Liebeck was terrible, and
               | it's right that she had the public's sympathy, however
               | her coffee was not excessively hot by modern standards.
               | 
               | Stella's coffee was served within the temperature range
               | that was, and still is, recommended by professional
               | coffee associations like SCAA and NCA [1]. The NCA
               | recommends that coffee be held and served at around
               | 180-185 deg F (~80-85 deg C), which is likely near the
               | temperature at which Stella was burned. This is a
               | perfectly reasonable service temperature, widely used by
               | coffee shops, restaurants, and home brewing machines to
               | this day.
               | 
               | Stella Liebeck took her cup of coffee and _squeezed_ it
               | between her legs in order to fiddle with the lid. The
               | result was tragic, but completely expected. If I spill a
               | fresh cup of Starbucks coffee on my crotch today, I fully
               | expect to sustain third-degree burns. So I take a little
               | extra care with it until it has cooled to drinking
               | temperature, which happens pretty quickly.
               | 
               | Tea is generally even hotter. Any good tea shop will
               | serve a pot of freshly boiled water, at least twenty
               | degrees hotter than hot coffee. Spilling that on yourself
               | is guaranteed to melt your skin. Great care is warranted.
               | 
               | Again, what happened to Stella was terrible. She didn't
               | deserve it, and she didn't deserve the hate she got
               | afterward. But she did something really stupid. I
               | sympathize, because I do stupid stuff _all the time_ ,
               | and I have the scars to remind me.
               | 
               | We're surrounded by extremely dangerous things that
               | require great care to use properly. It's useful for
               | coffee to be held and served hot, just as it's useful for
               | knives to be sharp and cars to be able to reach highway
               | speeds. There will inevitably be accidents, but making
               | the world completely safe for people who use these things
               | carelessly would mean depriving everyone of their proper
               | use.
               | 
               | 1 - https://www.ncausa.org/About-Coffee/How-to-Brew-
               | Coffee
        
               | torgoguys wrote:
               | >The company served coffee at extremely dangerous
               | temperatures.
               | 
               | Yes, it was frivolous to many peoples eyes, including
               | mine. McDonald's still serves their coffee at the same
               | temperatures today. They just changed the cups and added
               | warnings at least according to the Wikipedia article on
               | the case.
        
               | bkallus wrote:
               | The McDonald's coffee case is often cited this way, but I
               | think a spilled a coffee that causes third-degree burns
               | and necessitates skin grafts is probably too hot.
               | 
               | https://en.m.wikipedia.org/wiki/Liebeck_v._McDonald's_Res
               | tau...
        
               | bluGill wrote:
               | Coffee drinkers like their coffee hot. They tell me the
               | taste is much better when it is brewed hot. I know I was
               | working at McDonalds at the time of the suit, and a few
               | weeks later we adjusted our temperatures to the minimum
               | of the acceptable range from the max, and immediately got
               | complaints. (the complaints didn't start until after the
               | adjustment)
        
               | nicoburns wrote:
               | Would you not expect to get coffee made with boiling
               | water? This is what you would get if you made it at home.
               | It can't havr been much hotter than that or it would have
               | evaporated.
        
               | torgoguys wrote:
               | The article you linked to notes they still serve the
               | coffee at the same temperturea today, just changing the
               | cups and adding warnings. Probably not too hot or they
               | would have changed it after the lawsuit.
        
               | bkallus wrote:
               | This is a good point (and so are the other responses
               | here)
        
               | _greim_ wrote:
               | If they completed the trials then they'd have some
               | protection against major lawsuits. But no amount of legal
               | protection would prevent low sales due to widespread
               | public mistrust. Especially at a time when Lyme wasn't as
               | rampant and terror-inducing as it is now.
        
               | johnny53169 wrote:
               | They can be sure the vaccine is safe without being sure
               | they would win in court.
        
               | inter_netuser wrote:
               | so they would lose a legal challenge to the product's
               | safety....but it's safe? How does that follow?
               | 
               | Liability is just a cost of doing business.
               | 
               | You ever had D&O insurance? Right now in blockchain
               | businesses some get quoted 10+% for coverage, i.e. 100k+
               | for 1 mil in coverage. Many simply forego the insurance
               | because it's too expensive, and assume the risk.
               | 
               | The product in question had too little upside to offset
               | the liability, that's all.
        
               | torgoguys wrote:
               | > so they would lose a legal challenge to the product's
               | safety....but it's safe? How does that follow?
               | 
               | You convince a jury that it is unsafe. Happens all the
               | time. There are many reasons this is easier than it
               | should be.
               | 
               | > The product in question had too little upside to offset
               | the liability, that's all.
               | 
               | The vaccine had a ton of upside...for those receiving it.
               | Like most vaccines, it's not a hugely profitable endeavor
               | for the company producing it, so it wasn't worth all of
               | the baloney being thrown around in court.
        
               | inter_netuser wrote:
               | How much would you pay out of pocket to get the vaccine?
               | 
               | People do group buys for all sorts of nutraceticals,
               | small molecules, and even some biologics.
        
               | torgoguys wrote:
               | For me, at least $100, probably quite a bit more if I
               | thought about it. However, I don't know that you could
               | legally manufacture and sell/group buy such things.
               | Nutraceuticals gets exceptions under the current,
               | disastrous law but this wouldn't qualify.
        
               | nickthemagicman wrote:
               | Because the American Legal system is very imperfect.
        
             | inter_netuser wrote:
             | You don't think vendors that sell products that can leave
             | you maimed for the rest of your life, damage or eliminate
             | entirely your earning potential, destroy your marital
             | relations, and destroy future of your children should not
             | be liable for injuries caused by their product?
             | 
             | Really? You are against holding people liable for faulty
             | products?
        
               | hannob wrote:
               | I haven't said anything like that at all.
        
               | GuB-42 wrote:
               | There wouldn't be a single car being sold if it was the
               | case.
               | 
               | The vaccine was approved by the FDA, they did their part
               | making sure it was safe. 100% certainty is impossible,
               | and people should not be held liable to that.
               | 
               | Here, they pulled off their product off not because it
               | was shown to be unsafe but because it was unprofitable.
               | Due to the controversy, it was a tough sell, and lawsuits
               | are costly no matter if you are right or wrong.
        
               | inter_netuser wrote:
               | This one is a real weird forum.
               | 
               | Class action against car manufacturer, Toyota, because of
               | 200-400 injuries from airbags? GOOD
               | 
               | Class action against any medical product? BAD until
               | proven otherwise.
               | 
               | It's like tainted blood transfusions, vioxx, fen-phen,
               | thalidomide just never happened.
               | 
               | I'm guessing the demographics is on the younger and still
               | thinks they are made from steel.
        
               | matkoniecz wrote:
               | > Class action against any medical product? BAD until
               | proven otherwise.
               | 
               | You are arguing with strawman, noone said this.
        
             | tamrix wrote:
             | Antivax are people who don't want to take the vaccine.
             | They're not against other people taking vaccines or the
             | development of vaccines. You're likely misinformed.
        
               | jeromegv wrote:
               | Lots of antivax activists have been attacking vaccination
               | sites all over North America and Europe
        
               | hannob wrote:
               | So you're saying the people who were shouting at people
               | standing in line to get a vaccine against covid (which
               | happened plenty of times in Germany and I'm sure in other
               | places, too) are not antivaxxers?
        
               | fckthisguy wrote:
               | Antivax isn't a single organized group, so being antivax
               | can manifest in many ways. I know antivaxers who harass
               | people who got vaccinated for Covid and protest.
        
               | markus92 wrote:
               | Tell that to the antivaxers that attack vaccination sites
               | and spread the propaganda.
        
               | imwillofficial wrote:
               | You say the word "propaganda" pretty loosely.
               | 
               | I bet you also said "3 weeks to flatten the curve!"
        
               | eganist wrote:
               | > I bet you also said "3 weeks to flatten the curve!"
               | 
               | The vaccines were working perfectly in that regard until
               | we hit a wall of people unwilling to take them, which
               | brought us in the US to where we are today when antivax
               | lag hampered us from outrunning the delta variant.
               | 
               | Iceland[1], with >70% vaccination rates, is seeing much
               | different outcomes even in spite of record infections.
               | 
               | [1] https://www.washingtonpost.com/world/europe/iceland-
               | covid-su...
        
               | inter_netuser wrote:
               | Iceland is reintroducing restrictions, possibly for
               | years. Gibraltar at 99% vaccination rate is having an
               | outbreak.
               | 
               | If 99% vaccination rate will not achieve herd immunity,
               | what will?
        
               | imwillofficial wrote:
               | Stop with all your facts and numbers, people have a
               | religion to follow.
        
               | imwillofficial wrote:
               | > The vaccines were working perfectly in that regard
               | until we hit a wall of people unwilling to take them,
               | 
               | This is misinformation. Israel has the highest
               | vaccination rate in the world. 50% of their new cases are
               | "breakthrough cases"
        
               | bluGill wrote:
               | > I bet you also said "3 weeks to flatten the curve!"
               | 
               | No, if you check my comment history you will see that I
               | said something along the lines of don't flatten the
               | curve, kill it with longer, harsher lockdowns. Just
               | search for my top downvoted posts. I still maintain that
               | stance, two months of harsh worldwide lockdowns would
               | have killed the spread completely and we would have been
               | completely opened by the middle of last summer. Australia
               | almost managed it alone, and a bit more of the world
               | joining them could have.
        
               | imwillofficial wrote:
               | China did exactly this. It worked decently for them.
        
               | bluGill wrote:
               | The more of the world that does it, the better it works
               | for everyone.
        
           | pulse7 wrote:
           | Spreading false information on Facebook and capturing many
           | followers is called "power of influence"...
        
           | computer23 wrote:
           | The Lyme vaccine is still FDA approved. The company selling
           | the vaccine took it off the market for business reasons.
        
         | nickthemagicman wrote:
         | It was a large law firm looking to make a buck who blew it out
         | of proportion ...not anivaxxers.
         | 
         | Here's another good article from a more legitimate source.
         | 
         | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2870557/
        
           | acdha wrote:
           | It's not OR but AND: as described in that article, the law
           | firms didn't come up with the lawsuit out of the blue but saw
           | the hundreds of people who set up "victims" groups alleging
           | all sorts of injuries caused by the vaccine.
           | 
           | It seems noteworthy that this was relatively early in the
           | Internet reshaping society: these groups had websites but not
           | massive companies like Facebook promoting them. This ability
           | for people to self-organize and diagnose at a large scale is
           | still having interesting ripple effects, both helping people
           | with unusual conditions which are commonly misdiagnosed and
           | helping build lawsuits or political movements from people who
           | really aren't interested in accepting the science.
        
         | istjohn wrote:
         | You're oversimplifying the issue which is described in some
         | detail in the article. Yes, the antivax movement is killing
         | thousands of people with their opposition to COVID vaccines,
         | but that doesn't mean every vaccine ever studied was good, or
         | that the FDA is infallible.
         | 
         | I'm not saying it was good that Lymerix was pulled from the
         | market. I think it's unclear. I just think we shouldn't let
         | (justified) passion on one controversy cloud our understanding
         | of another controversy.
        
           | _greim_ wrote:
           | Yeah, one of the terrible things about the anti-vax movement
           | is that it makes it hard to distinguish signal from noise
           | when looking at objections or criticisms of any vaccine.
        
       | dmos62 wrote:
       | In some parts of the world (e.g. the Eastern Bloc) you find tick-
       | borne encephalitis. That's a horrible disease that can cause
       | cerebral and neural damage. What's more, the number of reported
       | human cases of TBE in all endemic regions of Europe have
       | increased by almost 400% within the last three decades.
       | 
       | https://en.wikipedia.org/wiki/Tick-borne_encephalitis
        
         | arpa wrote:
         | there have been vaccines against that for a long time.
        
         | nanis wrote:
         | > umber of reported human cases of TBE ... have increased by
         | almost 400%
         | 
         | Specifically, following the now routine mass bird/chicken
         | massacres of the Bird Flu panic.
        
         | Anthony-G wrote:
         | Thanks for highlighting this. While most hikers are aware of
         | the dangers of Lyme disease, the encephalitis is less well-
         | known. I only found out about it while hiking in Slovakia a few
         | years ago. At that stage, the hiking trip had started and it
         | was too late to get a vaccine.
        
           | dmos62 wrote:
           | My area has a relatively high infection rate, but most people
           | I know aren't vaccinated, even if they're somewhat aware of
           | the dangers. Having a vaccine is not enough, you also need
           | people to use it.
        
         | cesnja wrote:
         | Fun fact, since I've been vaccinted against TBE, I haven't
         | found even a single tick biting me. And I spend even more time
         | in the nature now since the pandemic has started.
        
         | Dma54rhs wrote:
         | It's a bad disease in the region but there's a vaccine for it
         | readily available that you should take if you are connected to
         | woods and nature.
        
           | snemvalts wrote:
           | And a booster lasts around 5 years I believe? So not as
           | bothersome as a flu shot even.
        
       | brightball wrote:
       | I used to work with a man who's wife suffers from Lyme disease.
       | It's awful to the point of being essentially life destroying.
       | She's in terrible pain every day unless she is using strong pain
       | killers, which make her live in a cloud essentially instead.
        
       | xyzzy21 wrote:
       | Honestly, I live in the the WORST NY county for Lyme but it
       | really isn't that big a deal. The country across in Vermont is
       | Vermont's top Lyme county. And I live in the woods.
       | 
       | Basically it's easily treated once you are fairly sure you have
       | it with VERY MILD antibiotics that aren't super at risk for
       | resistance. Getting Lyme is a pretty normal and common thing.
       | Akin to catching a cold - it's simply inevitable but you will be
       | treatable.
       | 
       | You also need to check for ticks and putting on DEET is always an
       | option. Thinking about what you wear is also SOP but no big deal
       | (per spicybright's comment).
       | 
       | But honestly WE don't worry about it that much despite being
       | completely endemic.
        
         | istjohn wrote:
         | There are people in this thread who have had people close to
         | them die from Lyme disease complications, and the article
         | describes the experience of an avid runner who has been
         | sidelined by the disease.
        
         | acdha wrote:
         | I believe you intended this to be reassuring but consider how
         | it reads to the many people who've had significant, long-term
         | effects from the disease. Maybe tone it down a bit on the "no
         | big deal" front and focus on the key part: "if promptly
         | diagnosed" with the advice about prevention and detection that
         | implies.
        
           | nicoburns wrote:
           | I think it's just a difference in perspective from someone
           | living where it's endemic and pretty much impossible to
           | outright prevent. You get used to it. You hear similar
           | perspectives on malaria from people living in countriew where
           | that is rife. And indeed on other dangers. For example,
           | australians don't tend to see poisonous snakes or spiders as
           | a big deal.
        
             | acdha wrote:
             | Oh, definitely -- my point was simply that it's good to
             | think about how that would sound to someone who _isn't_
             | used to that risk. Saying "no big deal" runs the risk of
             | sounding like "I don't know what I'm talking about" or even
             | "I'm downplaying this for some reason". I don't think the
             | person I replied to was in either category but I do think
             | with medical concerns it's important to acknowledge that
             | someone's concerns are reasonable before introducing some
             | things which might make the risk more palatable (e.g.
             | doctors now are far more likely to quickly recognize it and
             | treat it aggressively since there's been a lot of awareness
             | that this is becoming endemic in many areas where it didn't
             | used to be common).
        
       | stewx wrote:
       | Related: "The incredibly frustrating reason there's no Lyme
       | disease vaccine"
       | 
       | https://www.vox.com/science-and-health/2018/5/7/17314716/lym...
        
       | wildmanx wrote:
       | What shocks me most with this story is that there _is_ a vaccine
       | (Lymerix), and it 's pretty effective (76-92 percent after three
       | injections) but apparently some anti-vax propaganda and a class-
       | action lawsuit essentially removed it from the market. Based on a
       | very rare side effect. Wtf? How can that be? Just tell people the
       | risks of side effects, and if they are ok with that risk then the
       | manufacturer is off the hook.
       | 
       | I'd totally take that shot. 59 cases out of 1.4 million is
       | nothing, and even for those it's unclear how they actually were
       | related to the shot.
       | 
       | Sadly, this indicates that the new shot could suffer the same
       | fate. Give it to a million people, some will _for sure_ have some
       | issue, anti-vaxers come with conspiracy theories and convince a
       | few to a class action, and there we go, another few decades
       | without a shot. Gotta be fast this time before it 's too late
       | again.
        
         | gjsman-1000 wrote:
         | There is a difference between vaccine skeptic and anti-vax.
         | Imagine if we didn't have people watching over our tech
         | industry because that would be anti-tech, or our banking
         | industry because that's anti-bank. No, we call them skeptics
         | because we realize that's very different than someone who says
         | "abolish tech and banks."
        
           | wildmanx wrote:
           | I'm all for being critical. I'd find it terrible if side
           | effects are just ignored. I wouldn't take any vaccines if
           | that's the case.
           | 
           | But in this case, the facts are on the table. There is no
           | scientific basis in pulling the vaccine from the market. But
           | there was enough propaganda to stoke so much fear that
           | everybody got scared and that was that.
        
             | gjsman-1000 wrote:
             | Yep - and I live in Minnesota, I've had Lyme's before but
             | it thankfully was an obvious rash that taking strong
             | antibiotics for a few weeks took care of. I would take it
             | if I could.
        
               | tablespoon wrote:
               | > Yep - and I live in Minnesota, I've had Lyme's before
               | but it thankfully was an obvious rash that taking strong
               | antibiotics for a few weeks took care of. I would take it
               | if I could.
               | 
               | Yeah, me too. I got Lyme's (in my backyard) and just
               | finished up my treatment a few days ago (only 10 days of
               | doxycycline). I had the rash, but now I'm concerned that
               | some infections don't show one. I'd jump at a vaccine in
               | a heartbeat.
        
               | strbean wrote:
               | Spelling quibble: Lyme Disease, not Lyme's Disease. It is
               | named after Lyme, Connecticut.
        
           | aquadrop wrote:
           | They literally killed this vaccine, so it's anti-vax by
           | definition in result.
        
           | acdha wrote:
           | The thing is, we have that process at multiple levels from
           | peer-review and the many stages of government approval and
           | it's rigorous to the point that people have questioned
           | whether it's causing problems due to delays and costs
           | preventing development of vaccines for less widespread
           | diseases and increasing costs.
           | 
           | COVID-19 has provided a great example of how well this
           | process works: even the emergency use authorizations required
           | multiple levels of clinical trials and the anti-vax
           | propagandists mining the VAERS database for talking points
           | can do so because there's a requirement to make a public
           | report of anything which happens after someone is vaccinated
           | even if there's no real suspicion that it was related to the
           | vaccine.
        
             | abfan1127 wrote:
             | The process has its flaws. Poorly designed drugs make it
             | through the FDA process. Blind following is foolish.
             | Skepticism is healthy. I don't get software updates as soon
             | as available because, even with the testing, peer reviews,
             | flaws still happen.
             | 
             | Further, there were big political and financial reasons to
             | push the vaccines through. Those are all conflicts of
             | interest. Pfizer had millions of doses manufactured before
             | approval. If trial results didn't look good, they certainly
             | had the incentive to "massage" the results to get it
             | approved and get those millions of doses sold rather than a
             | huge loss.
             | 
             | As the original poster shared, it should be a considered a
             | reasonable position to be skeptical of small scale results.
             | Pfizer's position appears to have scaled well (Moderna as
             | well). 100s of millions of doses across diverse populations
             | show its relative safety and efficacy.
        
               | acdha wrote:
               | I'm not saying it's perfect but rather that the
               | skepticism you're looking for is found within the process
               | where many scientists who are not employed by the vendor
               | review the test results, methodology, and side effects.
               | By the time something gets through approval, it's been
               | tested in thousands of people with monitoring over a
               | substantial time period (even the EUA COVID vaccines were
               | monitored for a period of time longer than vaccine side
               | effects have historically been observed) and reviewed by
               | hundreds of people.
               | 
               | We actually have an interesting example which I think
               | validates that process even though it comes in the
               | unlikely form of the FDA's recent mistake approving
               | Aducanumab. There is a lot of criticism, including IG
               | investigations, over the approval _because_ it was
               | approved despite having failed to go through the process
               | successfully. The Phase III trials were cancelled after
               | they concluded that the drug was not successful, the FDA
               | 's internal scientific review found it did not meet the
               | mark, and the outside scientific advisory panel rejected
               | it so strongly that multiple panel members resigned after
               | it was approved anyway. That to me seems like a pretty
               | good argument that the process was doing what we expect
               | and the way to avoid expensive mistakes is to follow it.
        
               | wildmanx wrote:
               | You are welcome to be skeptical. But in the meantime,
               | don't cause me to not be able to get a potentially life-
               | saving drug. You may think it's a money grab or not
               | tested enough or a conspiracy or a conflict of interest.
               | Fine, don't take it. But I still want it. 1.4 million
               | with ridiculously small number of question mark cases are
               | good enough for me. They don't have to be for you. But
               | let me have it. I pay for it.
        
             | lurquer wrote:
             | If the system is susceptible to anti-vax propaganda
             | thwarting approval of a good vaccine, doesn't it also
             | follow that the system is susceptible to big pharma
             | lobbying for the approval of a bad vaccine?
             | 
             | If this wondrously robust multi-layered process buckles in
             | the face of a few hysterical anti-vax groups, you should
             | ask yourself how robust it remains in the face of a
             | billion-dollar pharmaceutical conglomerate with politicians
             | in their pockets.
        
               | wildmanx wrote:
               | Oh the law firms doing all those class actions are not
               | doing this for free either..
        
               | acdha wrote:
               | I think you're confused on several points: the vaccine
               | was approved following extensive safety tests but the
               | lawsuits caused the manufacturer to decide it was not
               | worth manufacturing. The U.S. regulators consistently
               | found no connection between the vaccine and the
               | complaints, so the _scientific_ side worked but the legal
               | / business side let public safety down.
               | 
               | Similarly, it's no secret that companies have a vested
               | interest in promoting their products but it's not like
               | Pfizer says "Trust us, we employ doctors!" and the FDA
               | says "Sounds great, no need to check!". Each step of that
               | process involves peer-reviewed publications, public data
               | releases, and reviews by panels of scientific experts. It
               | is quite valid to say that companies need to be strictly
               | regulated to keep everyone honest but we don't have any
               | indication that this has been happening and anyone who
               | thinks the process is just a large pharma company waving
               | money at doctors to buy silence _really_ needs to learn
               | how cut-throat academic competition is -- the career
               | benefits to being the first to report that plot would be
               | huge! Remember also that this happens in many different
               | countries around the world so that hypothetical
               | conspiracy needs to be kept secrete by a multinational
               | group of hundreds or even thousands of people.
        
               | hitpointdrew wrote:
               | >but it's not like Pfizer says "Trust us, we employ
               | doctors!" and the FDA says "Sounds great, no need to
               | check!" Each step of that process involves peer-reviewed
               | publications, public data releases, and reviews by panels
               | of scientific experts.
               | 
               | All these "steps in the process" are completely
               | meaningless when there is a revolving door with big
               | pharma and FDA. This is nothing more than safety/peer-
               | review theater.
               | 
               | Example: Scott Gottlieb FDA commissioner 2017-2019,
               | currently sits on the board of directors at Pfizer.
               | 
               | Are you really going to put up a stink and fight on an
               | approval if the end goal is cushy job at one of these
               | companies? You can bet if you just "push it through" you
               | will be looked on favorably for one of these jobs, but if
               | you put up resistance and actually want to do due
               | diligence, well then you will never be considered.
               | 
               | "It is difficult to get a man to understand something
               | when his salary depends upon his not understanding it." -
               | Upton Sinclair
        
               | lurquer wrote:
               | In regard to the Lyme disease vaccine issue, you are
               | glossing over a very important component of the story.
               | 
               | Due to public pressure, the FDA reconvened to take
               | another look.
               | 
               | While the FDA did not change its opinion (except for
               | requesting some additional labeling and studies) the
               | effect was disastrous for marketing. Sales plummeted.
               | And, it was no longer worthwhile to pursue. The 'official
               | act' of the FDA reconvening arose solely due to pressure.
               | 
               | That's my point.
               | 
               | If anti-vax groups can cause the FDA to "take another
               | look" at a drug that has already passed muster, it is
               | obvious and not fairly deniable that the agency is not
               | immune to political pressure.
        
               | abakker wrote:
               | makes you wonder how much "public pressure" came from the
               | operators of quack lyme disease message boards and
               | alternative treatment providers...after 4 times having
               | it, I'm happy to say, in Doxycycline I trust. just don't
               | go reading Lyme disease message boards without a tinfoil
               | hat on.
        
         | loceng wrote:
         | Why don't they understand the pathway for the side effect and
         | figure out a diagnostic test for it so people who're
         | hesitant/worried (or everyone does it to protect everyone from
         | the side effect) so they can be screened out from getting the
         | vaccine then?
        
         | im3w1l wrote:
         | > 76-92 percent after three injections
         | 
         | That's not a lot. Like sure if herd immunity was on the table
         | it might have been, but lyme has an animal reservoir. Like if I
         | had 76% immunity I would still panic every time I saw a tick,
         | so then what is the point?
        
           | ptmcc wrote:
           | That's in the ballpark of pretty much every effective vaccine
           | ever deployed.
           | 
           | They are never 100%. This misconception seems to have gotten
           | prevalent with COVID and the mRNA vaccines being "only"
           | 90-95% effective. That is staggeringly good, better than
           | most.
        
           | evanmoran wrote:
           | I understand where you are coming from. You will be worried
           | about ticks with or without the vaccine. I will too! But I
           | think the vaccine isn't for making you stop protecting
           | yourself from ticks (it can't do that, as you noted). The
           | important part is it's a small poke for a better chance at
           | staying healthy. If you are worried in both cases, the
           | question becomes is the time/cost to get the shot worth the
           | result. So if you walk in the woods a lot the answer is very
           | likely yes. If you never go near ticks then maybe not.
           | 
           | Another way to think about it is if there was a vaccine to
           | stop car accidents that is only 75% effective, is it worth
           | getting the shot even though I'll still be afraid of car
           | accidents? Absolutely! The shot is unbelievably easy to get
           | and probably cheap. It doesn't solve everything, but it is so
           | easy to do it's hard not to be worth it.
        
             | im3w1l wrote:
             | Your calculus forgets about side effects. If the gain is
             | very minor then it only takes minor side effects to swing
             | the balance.
        
           | only_as_i_fall wrote:
           | Doesn't this mean that if I were to get bitten by an infected
           | tick the odds of contracting limes disease would be at least
           | 4x lower?
           | 
           | Seems like a big difference to me even at the low end of the
           | range.
           | 
           | Maybe I'm misapplying the efficacy stat though?
        
             | im3w1l wrote:
             | You would still have to monitor for ticks and if symptoms
             | appear (more rare) you would treat it with antibiotics and
             | be fine. This is a minor benefit.
        
               | Talanes wrote:
               | >You would still have to monitor for ticks
               | 
               | This part is true no matter how effective the vaccine is.
               | Ticks are gross, diseased or not.
        
               | edmundsauto wrote:
               | You comment makes it sound like the worst part of Lyme
               | disease is the anxiety over having to check for ticks.
               | This is inaccurate - preventing 3/4 of Lyme infections is
               | a massive net win.
               | 
               | Lyme disease can be horrible. The value is in vaccine is
               | to prevent most cases, not to eliminate the annoying tick
               | checks.
        
           | majormajor wrote:
           | "Not panicking" is not the goal of the vaccine. The
           | instinctive reaction of the human brain around panicking the
           | same amount over an X chance versus a 4X chance of something
           | happening is a brain bug, not a reason to avoid a vaccine.
           | 
           | That 76% (or more) reduction in risk of your panic turning
           | into serious disease is the reason to get the vaccine even if
           | you're still panicky.
        
           | ralusek wrote:
           | The point would be that every time you see a tick, you could
           | be 76-92% less worried.
        
         | scotty79 wrote:
         | Not even proven side effect. Just something that might be
         | theorized to be the effect of the vaccine.
         | 
         | It's really haunting that exactly the same FUD that tanked safe
         | and efficient Lyme vaccine hinders covid vaccines adoption. And
         | people wonder why companies that make covid vaccine wouldn't
         | budge on being exempt from litigation on the basis of percieved
         | side effects.
        
           | mmcdermott wrote:
           | The difficulty with that exemption is that either a good or a
           | bad actor would ask for it. A good actor to avoid being the
           | target of frivolous suits and a bad actor to have cover for
           | their actions. Because a good or bad actor would behave the
           | same in this respect, people bring their own conceptions to
           | the table and see what they expect to see (in either
           | direction).
        
         | _huayra_ wrote:
         | Don't worry pal I gotcha here:
         | 
         | 1. Form The High Church of Vaccination
         | 
         | 2. Claim vaccination as a sacrament
         | 
         | 3. Watch the craven fascist majority of the US supreme court
         | (i.e. all of the ones that fashion themselves as lil Scalias,
         | but have terrible writing that reeks of double standards, if
         | any at all, and dog whistles to their base) try to somehow toss
         | the case for not having standing while trying to not undo any
         | of the religious exemptions that they've blown open in the last
         | decade or so (e.g. from Hobby Lobby to the recent shadow docket
         | thing in NYC against Cuomo)
        
           | pessimizer wrote:
           | _How drinking bleach became a Church 'sacrament'_
           | 
           | https://www.dailydot.com/debug/genesis-ii-church-bleach-
           | cure...
        
             | _huayra_ wrote:
             | Well their orange-haired chubby savior did say how good of
             | a disinfectant it was. Top it off with some disinfecting UV
             | light in a tanning bed and you have the bedrock of a
             | healthy life....oh wait I mean cancer.
        
           | wildmanx wrote:
           | No, thank you. I've learned what science is. It's pretty
           | cool, you should look it up.
        
             | _huayra_ wrote:
             | Do you think I'm anti-science? Hopefully the sarcasm of the
             | parent comment was not lost on you.
             | 
             | I wish Lymerix was available because I no longer want to
             | have to hike or bike in the great outdoors head to toe in
             | clothing design to avoid tick intrusion, much less worry
             | that I was bitten on an exposed part of my skin. Now I'll
             | just have to do it because my skin is designed to be a
             | solar panel for vitamin D production in the dreariest parts
             | of the Irish winter...
        
         | hitpointdrew wrote:
         | >but apparently some anti-vax propaganda and a class-action
         | lawsuit essentially removed it from the market. Based on a very
         | rare side effect. Wtf? How can that be?
         | 
         | It wasn't "very rare" and the side effect was that it literally
         | gave people lym disease.
         | 
         | Why are vaccinations a political thing now, and if anyone
         | raises any questions whatsoever on any vaccine they are "anit-
         | vax".
        
           | wildmanx wrote:
           | > It wasn't "very rare" and the side effect was that it
           | literally gave people lym disease.
           | 
           | Again, 59 of 1.4 million. I call that "very rare". About half
           | a million Americans get Lyme from ticks, every year. You do
           | the math. Even _if_ there is a causal connection to the shot
           | (which has _not_ been established) then that 's still orders
           | of magnitude lower than the risk of _actually_ getting the
           | bacteria in you if you somewhat frequently visit the woods.
           | And if you don 't, just don't get the shot. Your call.
           | 
           | So yes, that's a textbook "anti-vax" sentiment. It's not
           | based on the actual scientific evidence but uses people's
           | overall fear of vaccinations. And it hurts everybody, because
           | the result is that even people who _want_ the vaccine can 't
           | get it. Otherwise I wouldn't actually care. Let the anti-vax
           | people suffer if they choose to, but leave me out of this.
        
             | hitpointdrew wrote:
             | >Again, 59 of 1.4 million
             | 
             | Source?
        
               | wildmanx wrote:
               | The article we are discussing here. You read it, right?
               | 
               | (And the article got that number from the FDA.)
        
             | koheripbal wrote:
             | hmm... we need to compare rates of infection, not raw
             | numbers since only a small number of the population ever
             | received the lime disease vaccine, and both populations
             | reside only in part of the US.
             | 
             | In any case, I agree with the underlying point that it's a
             | travesty that the vaccine was taken off the market due to
             | fear-mongering and unproven allegations.
             | 
             | It's a testament to the failure of the judicial system to
             | protect against frivolous lawsuits.
        
               | nawgz wrote:
               | That is what was done.
               | 
               | > The arthritis incidence in the patients receiving Lyme
               | vaccine occurred at the same rate as the background in
               | unvaccinated individuals. In addition, the data did not
               | show a temporal spike in arthritis diagnoses after the
               | second and third vaccine dose expected for an immune-
               | mediated phenomenon. The FDA found no suggestion that the
               | Lyme vaccine caused harm to its recipients. [0]
               | 
               | [0]:
               | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2870557/
        
             | Teknoman117 wrote:
             | My dad spent 2 months getting over a nasty Lyme infection a
             | few summers ago. Not fun at all.
             | 
             | I have a few scars from tick bites that I was lucky didn't
             | cause any infections. Sign me up for whatever vaccines I
             | can get for tick-borne things. I'd love to see the Lyme
             | disease vaccine come back and I'd love to see something for
             | AGS.
        
           | jefurii wrote:
           | "Possible side effects" includes any condition that arose
           | during the trial, whether or not it was directly caused by
           | the vaccine being tested. Source: a family member has a job
           | that involves drug trials.
        
           | LorenPechtel wrote:
           | I see nothing to say it gave people Lyme disease. The *claim*
           | is that it caused the same sort of arthritis that Lyme
           | disease can cause.
           | 
           | Note that the class action suits were settled without paying
           | the "victims" anything. That shows they were garbage from the
           | start.
        
           | anon946 wrote:
           | Investigation found that the incidence was no higher than for
           | unvaccinated individuals
           | (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2870557/):
           | 
           | >By 2001, with over 1*4 million Lyme vaccine doses
           | distributed in the United States the VAERS database included
           | 905 reports of mild self-limited reactions and 59 reports of
           | arthritis associated with vaccination [29]. The arthritis
           | incidence in the patients receiving Lyme vaccine occurred at
           | the same rate as the background in unvaccinated individuals.
           | In addition, the data did not show a temporal spike in
           | arthritis diagnoses after the second and third vaccine dose
           | expected for an immune-mediated phenomenon. The FDA found no
           | suggestion that the Lyme vaccine caused harm to its
           | recipients.
        
           | tablespoon wrote:
           | > It wasn't "very rare" and the side effect was that it
           | literally gave people lym disease.
           | 
           | It sounds like it didn't actually do that:
           | 
           | https://en.wikipedia.org/wiki/Lyme_disease#Vaccination:
           | 
           | > Subsequently, hundreds of vaccine recipients reported they
           | had developed autoimmune and other side effects. Supported by
           | some advocacy groups, a number of class-action lawsuits were
           | filed against GlaxoSmithKline, alleging the vaccine had
           | caused these health problems. These claims were investigated
           | by the FDA and the Centers for Disease Control, which found
           | no connection between the vaccine and the autoimmune
           | complaints.[170]
           | 
           | > Despite the lack of evidence that the complaints were
           | caused by the vaccine, sales plummeted and LYMErix was
           | withdrawn from the U.S. market by GlaxoSmithKline in February
           | 2002,[171] in the setting of negative media coverage and
           | fears of vaccine side effects.[170][172] The fate of LYMErix
           | was described in the medical literature as a "cautionary
           | tale";[172] an editorial in Nature cited the withdrawal of
           | LYMErix as an instance in which "unfounded public fears place
           | pressures on vaccine developers that go beyond reasonable
           | safety considerations."[25] The original developer of the
           | OspA vaccine at the Max Planck Institute told Nature: "This
           | just shows how irrational the world can be ... There was no
           | scientific justification for the first OspA vaccine LYMErix
           | being pulled."[170]
        
             | adrr wrote:
             | Same thing happened to silicone breast implants. Lots of
             | class action lawsuits claiming leaking silicone caused
             | health issues. Lawsuits bankrupted Dow Corning. There was
             | no evidence that it caused issues and you can still get
             | silicone implants today.
        
               | LorenPechtel wrote:
               | Yeah, when the science was in the symptoms claimed to be
               | caused by the implants were more common in women without
               | implants than in women with implants.
        
           | jorblumesea wrote:
           | > Why are vaccinations a political thing now
           | 
           | You could flip that upside down and ask why people are
           | questioning the experts. Despite having almost no knowledge
           | of statistics, epidemiology and other required skills.
           | Vaccines with rare or almost no side effects are being called
           | into question.
        
             | all2 wrote:
             | We could flip it sideways and ask "why question anything at
             | all?"
             | 
             | We should not be guileless. Whether I have a piece of paper
             | that shows others I'm an "expert" or not, I still question.
             | I ask things like "why is this contemporary vaccine XYZ so
             | politicized?" and "why are companies and governments
             | _paying_ people to take it? "
             | 
             | In other arenas, we say that if you receive something for
             | free "you are the product". So I ask "why is this
             | contemporary case any different?"
             | 
             | The above is only an example. I reserve my right to
             | question. I will note that I'm in no position to dictate to
             | others. I will also note that very few people are
             | _currently_ in a position to dictate to me. I desire that
             | status quo to remain. Anything else is despotism.
        
         | stinos wrote:
         | More on this:
         | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2870557/
        
         | irq-1 wrote:
         | > Just tell people the risks of side effects, and if they are
         | ok with that risk then the manufacturer is off the hook.
         | 
         | If a for-profit corporation includes a warning in a EULA
         | they're off the hook?? That's definitely not the principle we
         | should use to evaluate new drugs.
         | 
         | If the company decided to take it off the market, when there
         | are _always_ lawsuits about new drugs, what should we do?
         | Should we liberate the drug from the company and let others
         | sell it? The system we have now lets Medical Doctors decide
         | when a drug should be approved, and when it should be on the
         | market.
        
           | wildmanx wrote:
           | You're mixing up a few things here. Every drug has a list of
           | side effects. They are known, that's what your doctor tells
           | you, and then you make an informed decision whether you want
           | to take the drug or not.
           | 
           | It's not Medical Doctors that decided to withdraw approval
           | and then removed it from the market. The approval was all
           | fine. What was not fine was the public perception. Because
           | the anti-vax campaign was very effective. Too many people
           | started to think it's too fishy, so out of caution didn't
           | want the shot anymore, so it became unprofitable to keep it
           | on the market, so the manufacturer pulled it. (A bit
           | surprising they didn't sell the IP or license it cheaply to
           | somebody more adventurous..)
           | 
           | That's how your life can get impacted if the anti-vax lobby
           | gets too strong, and that's what scares me. They can mess up
           | their own health as much as they like, but once my life gets
           | worse because of it, I have a problem.
        
           | fallingknife wrote:
           | I do not want to have to ask doctors permission to get the
           | medicine I need. Make them like lawyers where they are
           | advisors only. If that has a side effect of letting companies
           | off from some liability, then I will accept that trade off.
        
             | irq-1 wrote:
             | > I do not want to have to ask doctors permission to get
             | the medicine I need.
             | 
             | That's how it works in most countries, but not the US. Here
             | we have a government regulatory agency (the CDC) to protect
             | people from the ill effects of the free market. I like it
             | that way.
        
           | scotty79 wrote:
           | If the product causes provable harm then company should be
           | prosecuted criminally by the state to determine if the
           | testing done was sufficeint and there was no faul play.
           | 
           | But letting random people sue manufacturer because they have
           | some symptoms at later point in time than the time they took
           | the vaccine is just recipie for what already happened on case
           | of Lyme vaccine. Everybody looses except for lawyers and
           | people loose the most.
        
             | irq-1 wrote:
             | You're suggesting a fundamental change to the legal system
             | in the US. The idea that we would depend on the Government
             | pursuing criminal charges... that's scary to me.
             | 
             | https://en.wikipedia.org/wiki/Tort
        
         | pwenzel wrote:
         | I live in Minnesota and am being treated for Lyme disease for
         | the second time in 15 months. It's no joke. The first time I
         | got Lyme, it came with a painful shingles co-infection on top
         | of the usual symptoms.
         | 
         | Now the second time, I am again worried about getting sick with
         | something else while in an immunocompromised state. The
         | fatigue, fever, and back pain that came along this second time
         | was worse than the first. I needed a nap after walking up the
         | stairs.
         | 
         | So, I am curious how bad and prolonged the side effects were in
         | these 59 adverse events. If only temporary, I'd consider it
         | worth it over getting the actual disease.
         | 
         | The article also asks, "Why vaccinate against something that
         | can be cured with antibiotics?" Undiagnosed Lyme becomes harder
         | to treat the longer you wait, and the dose of antibiotics
         | longer and more intense.
         | 
         | (PS: I am so very thankful for doxycycline.)
        
           | nomel wrote:
           | Have you considered hyperbaric oxygen treatment?
           | 
           | https://pubmed.ncbi.nlm.nih.gov/24726678/
        
             | pwenzel wrote:
             | I have not. Looks interesting. To be clear, I do not have
             | chronic lyme, but rather have been bit by a tick twice in
             | the last year and a half and got lyme disease each time.
        
           | tdeck wrote:
           | I had Lyme twice as a kid too (in suburban Pennsylvania).
           | It's not fun and it's a bit crazy that you can get it more
           | than once. People are usually shocked when I tell them. I
           | knew someone who was temporarily paralyzed on one side
           | because of Lyme that they diagnosed late - it's scary.
        
             | abakker wrote:
             | I grew up in CT. Had it 4 times, only got the bullseye
             | once. It is no joke, and as you get older it seems to suck
             | more and more. Last time I had numbness in my face as the
             | only symptom, but...thrice bitten, fully paranoid, and I
             | was treated pretty fast.
             | 
             | One thing which is important with a vaccine is that when I
             | was a kid (early 90s) the rate of ticks carrying lyme was
             | in the 10% range or less, while now it is >50%. A vaccine
             | is critical.
        
               | sonicggg wrote:
               | How do you manage to get it so often? I live in an area
               | that is endemic to Lyme, but it's something that can
               | easily be avoided (much easier than Covid). But I do see
               | reckless behaviour all the time as well, so maybe it is
               | not that surprising.
        
               | tdeck wrote:
               | I didn't have the bullseye the second time either I was
               | just extremely tired and had a mild fever. That's how it
               | often goes, and if my mom hadn't recognized the
               | nonspecific symptoms it could have been a lot worse.
        
           | loceng wrote:
           | How was it diagnosed?
        
           | notabee wrote:
           | Shingles is caused by varicella (chickenpox) virus that's
           | already latent in your nerves. Really unlikely that it was a
           | "co-infection", it just reactivated because your body was
           | busy fighting Lyme.
        
             | shockeychap wrote:
             | I'm not sure what you think "co-infection" means, but you
             | just described precisely that. The reactivation of shingles
             | meant that he was simultaneously infected with two
             | different agents. "Co-infection" (for me at least) implies
             | nothing about how or where the secondary infection came
             | from.
        
               | notabee wrote:
               | That's fair. It's a really commonly implied thing among
               | the quackier side of Lyme treatment that every tick is
               | going to unload a clown car full of pathogens (used to
               | justify even more unvalidated tests). But, by the
               | definition, it's just co-occurring infections regardless
               | of vector.
        
               | Kenji wrote:
               | > that every tick is going to unload a clown car full of
               | pathogens
               | 
               | They mostly are, though. Lyme is not the only horrible
               | disease. There's Tick-borne encephalitis (TBE) and other
               | nasty shit. As a kid, I was in the woods every day.
               | Didn't get a tick for years, despite walking through
               | thick woods in shorts. Then I got stung a few times,
               | didn't think much of it. Then I got Lyme. Had terrible
               | joint pains for months despite immediately taking
               | Doxycycline. Since then I almost never went deeper into
               | the woods again. You're immediately full of ticks. I once
               | picked up a piece of trash that was on the side of the
               | path and immediately had a tick crawling on my hand. What
               | a nasty infestation of our woods. Did you know that Lyme
               | is a sexually transmitted disease (STD)? Yes, if you have
               | intercourse with someone who has Lyme, you may get
               | infected as well. Lyme is a horror show.
        
         | dukeofdoom wrote:
         | You know, its not impossible for millions of people to have
         | long term side effects from COVID. The absolute overconfidence
         | in its long term safety is based on nothing other than wish
         | full thinking. There are early signs, and warning from Doctors
         | now. They just ignored and gaslighted by corporate media, and
         | sadly people like you that don't know the history of previous
         | accidents with vaccines. Early Polio Vaccines caused 40,000
         | children, and more than 50 paralyzed.
        
           | markenqualitaet wrote:
           | I assume you mean the vaccine.
           | 
           | "Long term effects" here doesn't mean what you think it
           | means....
           | 
           | In the past, long term side effects were still occuring with
           | weeks or few month after the shot. However, the statistical
           | signal may be delayed for years or decades to manifest.
           | 
           | It's very hard to think of a way how anything could cause
           | side effect years down the line. Vaccines do not contain
           | beryllium or asbestos. The mRNA vaccines do not even contain
           | mercury or other heavy metals. Mind you, 'none' means less
           | than a can of tuna. They do not remain in the body for long.
           | None of it.
           | 
           | That's why people aren't too worried, rationally. Long term
           | effects whould have shown already.
           | 
           | If you indeed mean COVID, I agree. There may be late long
           | term effects, because of the diffuse organ damage and
           | persistent infections.
           | 
           | Of course _any_ strong immune stimulation may slightly
           | increase _or decrease_ the risk for derailing or aging the
           | immune system. Which may sooner, e.g. autoimmune disease
           | risk, or later, e.g. lymphoma risk, manifest.
           | 
           | For COVID it's a silly debate, because you will get infected
           | or vaccinated in any case.
        
             | dukeofdoom wrote:
             | Some people are worried, just you never get here from them
             | because they are either censored or drowned out by the
             | corporate press.
             | 
             | Here's a doctor, you don't usually get to hear from raising
             | concerns you don't seem think to exit.
             | 
             | https://www.youtube.com/watch?v=tUE5EBPt-lU&t=1128s
        
             | LorenPechtel wrote:
             | The claim was that in some individuals the vaccine caused
             | an auto-immune reaction. It seems to me that anyone who had
             | that problem would have developed the same problem if they
             | got the disease.
        
           | 1053r wrote:
           | The deep irony here is that you wrote "its not impossible for
           | millions of people to have long term side effects from
           | COVID."
           | 
           | While it's clear from the rest of your post that you meant
           | the vaccines, you accidentally ended up making your own
           | counterpoint! It is ABSOLUTELY possible for millions of
           | people to have long term side effects from COVID, the
           | disease.
           | 
           | It would be a brand new thing for a vaccine to give so many
           | people side effects so long after the shot. No vaccine has
           | ever given people side effects that didn't show up within
           | about 6 weeks.
           | 
           | Yes, some people had side effects from the Polio vaccine. But
           | you know what was far more likely to cause lifelong side
           | effects? Polio!
        
       | skocznymroczny wrote:
       | I think a good test for Lyme disease would be more important than
       | a vaccine (which is welcome too if it works well). The problem
       | with Lyme disease is that it's symptoms are very wide and
       | generic, and the commonly used tests are not very reliable. This
       | means that many people live with the disease not aware of it,
       | while others self-diagnose Lyme disease and cure it even if they
       | didn't have it (because they had symptoms like longterm brain
       | fog).
        
         | istjohn wrote:
         | The problem is that the treatments we currently have for Lyme
         | disease only provide temporary relief for a sizeable minority
         | of sufferers.
        
         | elric wrote:
         | I'm not sure why this is getting downvoted. Testing for lyme
         | really is pretty unreliable. Given how hard it is to reliably
         | test for, we really don't have a good grasp on how prevalent
         | lyme infections are.
         | 
         | Another thing that would great, in addition to a vaccine and
         | better testing, is prevention. Infected ticks are way more wide
         | spread than they used to be. I've heard various reasons for
         | this, including habitat loss of all kinds of animals. Simple
         | measures can help, like eating more deer, or letting chickens
         | roam free in high-tick areas.
        
           | bregma wrote:
           | I don't understand why there would be a problem testing for
           | borreliosis. It's caused by the borrelia spirochete, which is
           | almost identical to syphilis. The variant of borrelia that
           | causes relapsing fever was one of the very first causative
           | micro-organisms diagnosed because it it so obvious under a
           | low-power microscope. Surely the variant of borrelia named
           | after a town in New England should be as easy to diagnose: if
           | you have the spirochete you have the infection, otherwise you
           | don't.
           | 
           | Granted I'm just a rando on the internet and not an expert in
           | infections diseases. On the other hand, I've diagnosed with
           | and successfully treated for Lyme disease. I still get dozens
           | of tick bites a year. A reliable test would be a boon for
           | people like me.
        
           | robbiep wrote:
           | It might be downvotes because the op didn't read the article,
           | which isn't about a vaccine (the article says there was one
           | but it was discontinued) but about the Lyme equivalent of
           | PREP
        
           | cmrdporcupine wrote:
           | We keep chickens and I can tell you a domestic chicken
           | roaming free in a high tick area would be gone in a few days.
           | Hawks, foxes, raccoons, coyotes, whatever. They're
           | domesticated and flightless.
           | 
           | What you want is guinea hens. They're voracious tick eaters.
           | And will hide in trees, etc. at night. But also noisy as
           | hell, and will walk all over roads.
           | 
           | Wild turkeys eat a lot of ticks, so we should be encouraging
           | them.
           | 
           | Northern bobwhite quail are a native (to north america) quail
           | which eat a lock of ticks. But they're near-threatened and
           | very few of them in the wild and they also don't go as far
           | north as New England (we have them here in Ontario but
           | sparsely)
        
         | vimy wrote:
         | Correct. The ELISA test is as reliable as a coin toss. It was
         | also never meant to be used for diagnosis, only for research.
        
       | Grazester wrote:
       | Wasn't there already a shot being made a long time ago but was
       | shut down due to a whole lot of hot air from critics and anti-
       | vaxxers?
       | 
       | https://time.com/6073576/lyme-disease-vaccine/
        
         | bkanber wrote:
         | Yes. In my eyes, the original Lyme vaccine was the first
         | casualty of the modern anti-vax movement.
         | 
         | They claimed that the vaccine gave them Lyme when really the
         | vaccine gave them an immune response for a few days... as
         | vaccines should. Through a huge amount of media attention they
         | scared away the pharma company, they stopped marketing, sales
         | tanked, the vax was pulled. No medical issues with the vaccine
         | were ever discovered.
        
         | Inhibit wrote:
         | The article covers that but very pointedly doesn't bring up the
         | angle. Just a note that suddenly there were dramatically lower
         | projected sales the next year.
         | 
         | If you read closely they attribute this to medical objections
         | without mentioning the reason you're stating. Your statement
         | better aligns with my memory of the period.
        
         | istjohn wrote:
         | I think you're shortselling the critics. See the quote from the
         | article in my other comment:
         | https://news.ycombinator.com/item?id=28210290
        
       | kortex wrote:
       | Graveyard of "not considered a real/serious disease/threat by the
       | medical consensus until a frankly embarrassingly amount of time
       | later"
       | 
       | [x] "cadaverous particles" (washing hands after autopsies)
       | 
       | [x] "hysteria" (likely a combination of various mental health
       | conditions and/or PCOS, polycystic ovarian syndrome)
       | 
       | [x] "GRID" (HIV/AIDS)
       | 
       | [x] leaded gas bad
       | 
       | [x] asbestos bad
       | 
       | [x] smoking bad
       | 
       | [?] refined sugar bad
       | 
       | [x] Autism
       | 
       | [x] ADHD
       | 
       | [x] COVID-19 (from ??-2019 until Feb/Mar 2020)
       | 
       | [ ] chronic lyme/other tickborne illness
       | 
       | [ ] ME/CFS
       | 
       | Hopefully, the skyrocketing case load of the latter two (due to
       | explosive spread of tickborne illness, and "long covid",
       | respectively ) will get the gears actually turning and change
       | consensus.
       | 
       | I don't get what's wrong with the medical community acknowledging
       | "hey we have all these odd cases, we can't pin down a cause, but
       | here's the leading theories." Instead, just look at the
       | "Myth/Fact" thread elsewhere in the comments here. Stating with
       | such authority "antibiotics totally cure Lyme". Since when is
       | _anything_ in medicine a sure bet? You 're telling me it's
       | impossible that an evolving lifeform can't possibly evade the
       | immune system and selection pressure and become persistent? What?
       | 
       | Ok, please rebut me, tell me how this line of reasoning, "these
       | currently 'orphan' diseases deserve taking a closer look, and not
       | dismissed out of hand" is wrong.
        
         | ollifi wrote:
         | Isn't Hysteria the other way round than those other diagnoses
         | on the list? It used to be diagnosed but since doctors don't
         | believe in it anymore.
        
         | PragmaticPulp wrote:
         | "Chronic Lyme" is a very challenging topic because it has
         | become a mix of legitimate symptoms (those suffering post-
         | treatment Lyme disease) but also a pseudoscience catch-all
         | diagnosis promoted by bad alternative medicine practitioners.
         | 
         | Contrary to popular belief, the CDC and medical community do
         | actually continue to research the topics of potential Lyme
         | persistence and post-treatment Lyme symptoms. We're discussing
         | this under the headline about a new Lyme disease vaccine,
         | aren't we?
         | 
         | However, there is also an out of control pseudoscience/quackery
         | community that has attached itself to Lyme as the go-to
         | explanation for unexplained symptoms. They're drawn to the
         | theories of Lyme persisting in undetectable ways, which they
         | use as an excuse to diagnose people by vague symptoms alone.
         | There are now a number of well-known scam Lyme disease labs
         | that claim to use proprietary techniques to identify Lyme
         | disease that the reputable labs can't catch. Virtually everyone
         | who submits a sample to these scammy labs comes back with a
         | "positive" result.
         | 
         | I once tested positive for Lyme using the CDC criteria from a
         | reputable mainstream lab. The specialists I saw _did not_ mess
         | around with treatment as well as follow up, but they did go to
         | great lengths to ensure I wasn't trying to get in with a
         | pseudoscience or self-diagnosed "chronic Lyme" case. One of
         | them explained that she was inundated with appointment requests
         | from people who self-diagnosed as "chronic Lyme" after reading
         | Internet forums despite multiple negative test results and
         | refused to believe any other explanation. The "chronic Lyme"
         | online communities are a terrible mess of misinformation, but
         | the actual medical community around Lyme treatment is quietly
         | continuing to do good work. It can be difficult to separate the
         | two from the outside due to all of the noise made by the
         | pseudoscience quacks that have attached themselves to the
         | topic.
        
           | kortex wrote:
           | That's fair. But I'd rather humor the quackish side of
           | chronic lyme and see some progress being made, rather than
           | lean to the side of dismissing them, along with people with
           | legitimate complaints.
           | 
           | The inability to adequately assay Lyme speaks more to how bad
           | we are at assaying diseases, than to the (il-)legitimacy of
           | the disease.
        
             | PragmaticPulp wrote:
             | > But I'd rather humor the quackish side of chronic lyme
             | and see some progress being made,
             | 
             | That would have the opposite effect, because many (or
             | likely most) of them never actually had Lyme disease.
             | 
             | That's the problem: "Chronic Lyme" has attracted too many
             | pseudoscience practitioners who lazily blame everything on
             | undetectable Lyme. They diagnose based on symptoms alone
             | and/or employ tests with known extreme false positive rates
             | while dismissing mainstream tests that have been validated.
             | 
             | The more you mix those false patients into the real Lyme
             | population, the more you dilute the real signal from actual
             | patients.
             | 
             | Humoring the quackery doesn't advance the science.
             | 
             | If you want progress to be made in a field, it's important
             | to be diligent about keeping the quackery out.
        
             | babyblueblanket wrote:
             | The issue with humoring the quackish side of chronic lyme
             | is that you swiftly get into supposed treatments that are,
             | in fact, quackery or can be actively harmful to patients
             | (such as extremely long antibiotic treatments). So you risk
             | both wasting money and harming people by humoring stuff you
             | know is nonsense.
        
         | emerongi wrote:
         | A lot of it is just science catching up to what is observed in
         | the real world. I agree that many practicing doctors are
         | operating on out-of-date knowledge, so if you happen on one of
         | those and start talking about CFS, you might not get a positive
         | reaction. Isn't it the same as unknowingly hiring a bad
         | contractor, though? Doesn't mean that the engineering community
         | is not trying to find more efficient and better ways of
         | construction. CFS is a recognized disorder by the medical
         | community, although the causes are unkown. That is not
         | surprising considering the complexity of the human body.
         | 
         | Tick-borne illnesses are talked about a lot in Europe, ever
         | since I was a kid (~20 years ago). Can't say I have received
         | much conflicting information in all those years.
        
           | kortex wrote:
           | > CFS is a recognized disorder by the medical community,
           | although the causes are unkown.
           | 
           | My point was, it wasn't even a recognized disorder until
           | fairly recently. As I understand it, part of the problem is a
           | cottage industry of quackish medicine sprung up around the
           | unfalsifiability of chronic Lyme and CFS. But instead of the
           | medical community taking an agnostic stance "we see you are
           | suffering but we can't explain it", there was a strong push
           | in the opposite direction, asserting that it's psychosomatic
           | / "only in your head" / "here's some antidepressants." And
           | you see this pattern again and again. I think the dismissive
           | attitude is starting to abate among the younger medical
           | professionals but you still see this air of "anything I
           | wasn't trained on isn't a thing" among many of them.
        
             | dkarl wrote:
             | > there was a strong push in the opposite direction,
             | asserting that it's psychosomatic / "only in your head" /
             | "here's some antidepressants."
             | 
             | As a counterpoint to this, my first exposure to chronic
             | fatigue syndrome came while I was dealing with depression
             | and getting psychotherapy for the first time. CFS popped up
             | in the news, and a friend guided me to a web forum where
             | I'd get the "unfiltered" version from people who suffered
             | from it. What jumped out to me about that community, given
             | my struggle with depression at the time, was that it was a
             | cesspool of stigma against mental illness. The experiences
             | people reported varied over a wide spectrum, but there was
             | a significant contingent of people with classic symptoms of
             | depression along with the vague physical complaints that
             | most people have, outraged that doctors would be so
             | insulting as to suggest depression or other psychological
             | explanations. If there was one belief that united the
             | community, one shared credo, it was that they deserved a
             | physical diagnosis because their dignity required it, and
             | they would not accept a psychological diagnosis because it
             | would render them unworthy of sympathy. One person summed
             | up the consensus succinctly by saying it was an outrage for
             | doctors to suggest that they were "just too lazy and too
             | stupid to get their lives together." That was unwelcome,
             | but valuable, confirmation of how some people saw
             | depression, and it made me more guarded about when and how
             | I talked about it.
             | 
             | So it cuts both ways. I'm sure there are doctors who
             | arrogantly label any patient they can't figure out as
             | "crazy," but I'm just as sure there are patients who
             | overreact, angrily, to any mention of psychological causes
             | or treatments.
        
             | emerongi wrote:
             | Right, I understand your point better now and agree. I'm
             | not sure what medical training consists of today, but
             | improvement on this issue should start there.
        
       | jacobr wrote:
       | TBE is another terrible tick borne neurological disease that's
       | increasing rapidly, currently only in Eurasia. There's no cure,
       | but at least a decent vaccine. It requires booster shots every 5
       | years though. https://en.wikipedia.org/wiki/Tick-
       | borne_encephalitis
        
         | foepys wrote:
         | While it might turn deadly, there are many asymptomatic cases,
         | too, so it's not like Ebola or something.
         | 
         | One should still get the vaccine when living in or traveling to
         | an affected area and plans to go into nature, though. When I
         | was last vaccinated it took 3 months for the vaccine to reach
         | ~70% efficacy after 2 shots and 12 more months to reach 99%
         | efficacy after 3 shots, so people should not wait until they
         | travel to get it.
        
       | davnn wrote:
       | Ticks are incredibly common where I live (Austria) and so is
       | hiking. In our local "shark tank" show someone pitched a
       | freezing/electroporation tool (modified lighter) to remove ticks;
       | I guess [1] is the final product, which sounds pretty interesting
       | IMHO.
       | 
       | [1] https://help-pen.com
        
       | resalisbury wrote:
       | The new treatment entered Phase 1 trials in January 2020 with 60
       | participants and the earliest it would be in market is 2024.
       | 
       | You have to scroll through 20+ paragraphs before you get to the
       | lede...
       | 
       | "Enter Mark Klempner. A physician and infectious-disease
       | scientist at the University of Massachusetts, he's embarked on an
       | experiment that could upend the field of Lyme treatment. Klempner
       | is the lead creator of a first-of-its-kind antibody shot for
       | preventing Lyme infection."
       | 
       | And the most relevant update comes after around 50 paragraphs in
       | the 3rd from last.
       | 
       | "In February, Klempner's phase-one trial kicked off with 60
       | participants. The goal of the trial is to determine the right
       | dosage so that a person is protected for six to eight months.
       | Lyme PREP will have to be administered annually, but it's a small
       | price to pay in the minds of infectious- disease experts. If my
       | forehead looks flat, it's because I have been banging my head on
       | the wall for 35 years," says Telford. "We need as many tools as
       | possible to prevent Lyme disease."
       | 
       | In just a few years, Lyme PREP could be available for commercial
       | use. Klempner is eyeballing 2024, and maybe even sooner,
       | depending on how the drug performs in clinical trials."
        
       | spicybright wrote:
       | As a US new england-er, this is game changer for walking through
       | woods.
       | 
       | For those un-informed, on a walk through any woods, you should
       | always wear high socks, and do a full body check for ticks after.
       | 
       | Deer ticks can be as small as a few grains of sand, and near
       | undetectable if they latch on unless you have sharp eyes.
       | 
       | Obviously they can transmit lymes.
       | 
       | I had a close encounter a few years ago, but very luckily giant
       | rings appeared around the bite site, making it a very easy
       | diagnosis.
       | 
       | That only happens in 30% of cases though. The rest likely have no
       | idea, and over time the disease will work it's way into your
       | nervous system, causing permanent damage if not treated quickly
       | enough.
        
         | mauvehaus wrote:
         | I would get this vaccine yesterday if it were available.
         | 
         | Shit, if I were planning on spending a lot of time in the woods
         | (like, more than I already do), I would go to a vet and see if
         | they would give me the one that's for dogs. Untreated Lyme
         | messes people up.
         | 
         | A whole bunch of people I knew who thru-hiked the Appalachian
         | Trail in 2010 got Lyme. I did not get it, but I don't think I
         | was appreciably more cautious than the people I directly knew
         | who did. Part of what makes Lyme scary is the randomness of who
         | gets it and how easy it is to not know you've contracted it.
         | 
         | Fortunately, hikers are at least generally aware that it's a
         | possibility and know to seek treatment for it specifically.
         | Awareness in the general population is probably still much
         | lower.
         | 
         | P.S. Hello from WRJ, VT, fellow New Englander!
        
           | White_Wolf wrote:
           | I'm not sure if this is up to date and anything else was done
           | in terms of research but
           | https://scopeblog.stanford.edu/2020/03/30/lyme-disease-
           | bacte...
        
             | computer23 wrote:
             | That article was written by long time conspiracy theorist
             | Kris Newby.
             | 
             | Newby is the producer of a propaganda documentary for
             | "chronic Lyme" called Under Our Skin, and also spreads
             | conspiracy theories about bioweapons:
             | 
             | https://sciencebasedmedicine.org/a-review-of-under-our-
             | skin-...
             | 
             | https://theconversation.com/no-lyme-disease-is-not-an-
             | escape...
             | 
             | The article itself is about in vitro experiments funded by
             | other chronic lyme conspiracy theorists. It has nothing to
             | do with human disease.
        
           | heavyset_go wrote:
           | A vet isn't going to risk their license or take on the
           | liability of treating a human with vaccines for dogs.
        
         | thefz wrote:
         | This is enormously good news for mountain bikers too.
        
         | 300bps wrote:
         | A few houses ago we lived on 2.5 heavily wooded acres in a tick
         | endemic area. Probably got 30 ticks on me from working in the
         | woods.
         | 
         | Never got Lyme disease though by following what you said -
         | check for ticks at the end of each day. It really is true... if
         | they are latched for less than 36 hours you are good.
         | 
         | My son on the other hand had Lyme disease when he was about 6
         | with a found tick followed by obvious bulls eye rash in the
         | middle of his back. The one time we didn't check him at end of
         | the day... 30 days of amoxicillin and he's been fine the past
         | seven years.
        
         | ChrisMarshallNY wrote:
         | I've pulled four of the little bastards off me, this summer (so
         | far).
         | 
         | They have gotten much worse, in the last few years (Long
         | Island, NY).
         | 
         | I also know a few (several) folks that have had _very_ bad,
         | life-changing debilitation, as a result of Lyme. I 'm aware of
         | one (that I never met), who died from complications of Lyme. I
         | also have a family member, that got it pretty badly, recovered
         | completely, and now seems to be immune.
         | 
         | I'm having myself checked at the doctor, next week.
        
           | voisin wrote:
           | How are you getting checked? I understood (perhaps wrongly)
           | that the blood tests are only accurate well beyond the window
           | with which the medications are effective, creating a chicken
           | and egg issue.
        
             | inter_netuser wrote:
             | why is there a window? people report recovery after several
             | years with an appropriate treatment.
        
               | voisin wrote:
               | Recovery with Lyme isn't always forever. It apparently
               | goes into remission and comes back later. Not sure if
               | anyone knows why or how it does that. AFAIK it is only
               | cured if treated very quickly, before the blood tests are
               | accurate.
        
               | saalweachter wrote:
               | The bacteria can cause long-lasting damage, basically,
               | and the symptoms of Lyme disease can just be that damage.
        
               | istjohn wrote:
               | The bacteria migrates throughout the body over time,
               | including into the brain and spine, so it's easier to
               | eliminate when treated promptly.
        
             | ChrisMarshallNY wrote:
             | Not exactly sure. I made an appointment. First time I've
             | done that. It may just be a "put it on the record" visit,
             | with follow-ups in some months.
             | 
             | My relative didn't find out, until he had a cantaloupe for
             | a kneecap. They tested the fluid, and found lots of Lyme.
             | 
             | He's always getting bit. Deer pass through his backyard, on
             | a regular.
             | 
             | He said the treatment was anticlimactic. A course of oral
             | antibiotics.
        
             | serial_dev wrote:
             | After a couple of days in the mountains, I found four
             | ticks, and one bite started to turn red after two weeks.
             | 
             | I went to the doctor, she said the tests at this phase are
             | unreliable, my bite could be Lyme, but could be something
             | else too (the bulls eye rings didn't form yet). She said
             | the pragmatic approach is too treat it as if it was Lyme
             | and take antibiotics. It's better to take some antibiotics
             | than wait for the symptoms (which are not always easy to
             | assign to lyme).
        
             | rgrieselhuber wrote:
             | I've heard that Fry Labs is one of the only labs to do
             | blood testing, but I haven't tried them myself:
             | 
             | https://frylabs.com/resources/lyme-disease-and-detection/
        
               | computer23 wrote:
               | Fry Labs is listed on Quackwatch's list of "Laboratories
               | Doing Nonstandard Laboratory Tests":
               | https://quackwatch.org/related/tests/nonstandard/
               | 
               | The CDC warns against nonstandard testing: https://www.cd
               | c.gov/lyme/diagnosistesting/labtest/otherlab/i...
               | 
               | You'd be surprised how little regulation that some lab
               | testing gets: https://sciencebasedmedicine.org/new-fda-
               | regulatory-role-thr...
               | 
               | There are a lot more predatory labs than Theranos out
               | there...
        
             | ce4 wrote:
             | There's no definitive accredited lab check as far as I
             | know. At least here in Germany the official serologic tests
             | for late stage Lyme can come back negative for years until
             | the disease really progresses badly - even cerebrospinal
             | fluid results may be normal despite neurological symptoms.
             | My specialist uses elispot lab tests for Borrelia b. OspA,
             | antigen and LFA-1 markers.
             | 
             | Other practitioners use westernblot lab results and
             | differential diagnosis.
        
               | inter_netuser wrote:
               | have you seen recent immunostaining result? albeit in
               | research, amazingly you can actually see the bacteria.
               | 
               | They claim it can be cultured too.
               | 
               | https://www.frontiersin.org/articles/10.3389/fneur.2021.6
               | 280...
        
               | alfon wrote:
               | Thanks for that link, super interesting.
               | 
               | Check out also Dualdur, received 3MEur from EU in 2018.
               | 
               | https://lymediagnostics.com/why-dd/
        
           | ghaff wrote:
           | I haven't seen any recently but they were really bad earlier
           | in the summer in Massachusetts to the point that there were a
           | couple walks that I was doing regularly that I decided to
           | forgo for a bit. And anecdotally I've heard a similar story
           | from others. (Fortunately, everything I've seen have been the
           | larger dog ticks.)
        
         | Dumblydorr wrote:
         | Small edit: The article claims 3/4 have the circular rash, not
         | 30%.
        
         | pwenzel wrote:
         | Here are a few pictures of a deer tick that bit me in 2020. I
         | got pretty sick from it. Penny and ruler for scale:
         | 
         | https://imgur.com/a/xgF5Zw2
         | 
         | Its body quit tiny is just over 1mm in width.
         | 
         | I got it either sitting in a field of grass that was a few
         | inches tall, or walking through some brush for 5 minutes a
         | Minneapolis park. I wasn't out doing anything exciting like
         | hunting for morels in old growth forests.
        
         | ipqk wrote:
         | For those of us with dark skin, the bullseye ring may be there
         | but be imperceptible, making it even harder to diagnose.
        
         | sva_ wrote:
         | > That only happens in 30% of cases though.
         | 
         | According to the CDC, its 70-80%[0].
         | 
         | [0] https://www.cdc.gov/lyme/signs_symptoms/index.html
        
           | inter_netuser wrote:
           | Not the first time CDC would be wrong.
           | 
           | EDIT: why downvote facts?
           | 
           | Recent example on a hot topic: "CDC reverses itself and says
           | guidelines it posted on coronavirus airborne transmission
           | were wrong"
           | 
           | https://www.washingtonpost.com/nation/2020/09/21/cdc-
           | covid-a...
        
             | polynox wrote:
             | Being wrong is the essence of science.
             | 
             | By contrast, lyme disease is (1) more than 40 years old,
             | (2) not contagious, and (3) has no political headwinds.
             | There is little reason to distrust CDC on this.
        
               | inter_netuser wrote:
               | Several states felt it was necessary to pass laws
               | regarding Lyme and provide immunity to physicians willing
               | to treat long haul covid...errr long haul lyme patients.
               | 
               | Seems rather naive to presume they had to pass new laws
               | because Lyme has no political headwinds. It has plenty of
               | controversy around it, for better or worse.
        
               | polynox wrote:
               | I was able to substantiate your comment about the laws
               | being changed in two California bills (2013 AB1278 and
               | 2005 AB592) amending BPC 2234.1 that appears to relax
               | restrictions about treatment of "persistent" Lyme
               | disease.
               | 
               | I do not think it is relevant to the point in this thread
               | that is discussing whether Lyme disease does or does not
               | result in a bullseye rash (Erythema Migrans or EM), and
               | the CDC claiming that in 70-80% of cases the rash is
               | present, which you baselessly disputed and edited your
               | comment to accuse those of downvoting "facts".
               | 
               | As an example of what "evidence" might be, a 2009 paper
               | [1] in _Current Problems in Dermatology_ refers:
               | 
               | > EM is by far the most frequent manifestation of Lyme
               | borreliosis. In the USA, more than 70% of patients
               | registered with Lyme borreliosis had EM [28]. Among 1,471
               | patients shown to have Lyme borreliosis in an
               | epidemiologic study in southern Sweden, EM was seen in
               | 77% of all cases, and was accompanied by other signs of
               | the disease such as nervous system involvement,
               | arthritis, lymphocytoma and/or carditis in only 6.5% [29]
               | 
               | You can dispute those referred studies if you wish, but I
               | think it would be hard to argue that CDC's statement that
               | Lyme disease is characterized by EM in 70-80% of cases is
               | untrue.
               | 
               | [1] Strle, F., & Stanek, G. (2009). Clinical
               | Manifestations and Diagnosis of Lyme Borreliosis. Lyme
               | Borreliosis, 51-110. doi:10.1159/000213070
        
             | VHRanger wrote:
             | The downvotes are because you contradict a sourced claim
             | with no sources then just say that the people citing
             | research are wrong without backing
        
             | sva_ wrote:
             | 16% without erythema migrans ("lyme rash")
             | https://pubmed.ncbi.nlm.nih.gov/12543291/
             | 
             | 80% develop EM
             | https://www.aafp.org/afp/2012/0601/p1086.html
             | 
             | You can easily find a lot of sources in this ballpark.
        
             | gmiller123456 wrote:
             | You should provide evidence, and when you go back and edit
             | your response to do so, that evidence should be relevant to
             | the discussion at hand.
             | 
             | There's a huge difference between data on a disease that's
             | been studied for over 40 years, vs one that's only been
             | around for a few months.
             | 
             | If you think the CDC got it's facts wrong on Lyme disease,
             | it's as simple as saying "This source disagrees", and
             | provide the source. Jumping to the conclusion that your
             | unnamed source is more accurate than any other is another
             | problem itself.
        
           | spicybright wrote:
           | Huh, didn't know. Just quoting my dermatologist with that.
        
           | Spooky23 wrote:
           | I think the "on the ground" answer varies depending on you,
           | where you are and what insects are around. 70% of deer tick
           | bites may carry Lyme, but the percentage of insect bites with
           | red rings that are Lyme is probably different. If you're
           | walking through northeast pine forest or low density suburban
           | woods, assume Lyme!
           | 
           | Red rings from bites are not uncommon in general. I know I
           | get a reaction from horse flies that looks to professionals
           | like a potential deer tick bite with Lyme.
        
             | moron4hire wrote:
             | Those of us who just went through the "Brood X" cicada
             | emergence are now going through a glut of something called
             | "oak mites", which apparently feed on the cicada eggs, but
             | also just get everywhere. They are kind of like chiggers,
             | burrowing under the skin, and are too small to see with the
             | naked eye. The "bites" are particularly itchy and can also
             | cause red splotching that may appear ring-like sometimes. I
             | had a minor freak-out the first time I saw a splotch on my
             | 3-yr-old's back, but it didn't spread and the blotchiness
             | actually went away rather quickly. Luckily, these welts
             | don't seem to last as long as mosquito bites.
             | 
             | Also, a tick-bite splotch doesn't always have to be ring-
             | shaped.
        
         | riedel wrote:
         | Actually Lyme is a huge problem in southern Germany as well.
         | Actually it seems that a lot of inflammatory joint problems
         | stem from it that are often wrongly diagnosed.
        
           | pluc wrote:
           | and ticks in Germany are massive compared to the ones we get
           | in North America.
        
             | rags2riches wrote:
             | Which lyme carrying species are you comparing? For Ixodes
             | scapularis compared to Ixodes ricinus I see adult female
             | sizes of 2.5 mm vs 3.6 mm. Not a huge difference. Are you
             | sure you're not comparing larvae or nymphs to adults or
             | even gorged adults?
        
           | spiderfarmer wrote:
           | And brain problems, discovered years later.
        
         | hobo_mark wrote:
         | Tall socks and trousers sure, but of course they'll get
         | wherever. The only time I had one of them little suckers I only
         | found out the next day... under my wristwatch!
        
         | gkilmain wrote:
         | My experience with ticks: Closer to the home is where you're
         | going to find the small ones. I've had two on me. First one was
         | easy to spot it looked like a freckle on my knee. The second
         | one I felt the bite (thought it was an itch) and it was on my
         | inner thigh. Not sure if I would have noticed the second one if
         | it wasn't for its haphazard bite. Both latched on when I was in
         | / near the garden.
        
         | Grazester wrote:
         | I go hiking a lot in the Hudson area of New York and have my
         | concerns about ticks too. As you said, tall sock are
         | recommended. I also use permethrin on all my lower items of
         | clothing including shoes. I sometimes also use Off on my
         | exposed skin areas and then check for ticks after my hikes.
         | 
         | My wife was once bitten by something through her pants. That
         | left a small ring. I do doubt it was a tick though.
         | 
         | My sister on the other hand was bitten by something a few years
         | ago, she thinks it was a spider. There were multiple red rings
         | extending far and she started having other reactions and needed
         | hospitalization. They pumped her so full of anti-biotics(was on
         | a drip for days), it left her digestive system screwy for
         | months but at least she does not have Lyme disease now.
        
           | ericcholis wrote:
           | Lint rollers after a hike/walk isn't a bad idea either.
        
         | Loughla wrote:
         | I'm convinced you can become and/or grow immune to Lyme,
         | though. It's purely anecdotal.
         | 
         | I grew up where we built our house (deep, deep in the woods). I
         | spent my childhood on the farm there. Ticks were a constant
         | menace, I honestly don't know how many hundreds I pulled off
         | myself as a child.
         | 
         | When I was able, my spouse and I purchased it and built a
         | house. 6 months after moving in, my spouse developed Lymes
         | disease. I have no explanation, other than I am immune to the
         | ticks in the area (or I have had it my entire life with zero
         | symptoms maybe?).
        
           | uncertainrhymes wrote:
           | When you were young, those ticks may not have had lyme. More
           | importantly, you removed them. They have to be attached for
           | 24 hours before the bacteria comes back out of the tick's
           | gut.
        
             | misja111 wrote:
             | No, removing them early just reduces the chance of getting
             | Lyme. There's no such thing as a 24 hour barrier.
        
               | istjohn wrote:
               | The article states there is a 36 hour barrier. Do you
               | have a source?
        
               | misja111 wrote:
               | E.g.
               | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4278789/ "in
               | animal models, transmission can occur in <16 hours, and
               | the minimum attachment time for transmission of infection
               | has never been established"
               | 
               | or
               | 
               | https://www.lymedisease.org/tick-lyme-transmission-time/
               | "Study finds nymphal ticks can transmit Lyme within 12
               | hours"
        
         | inter_netuser wrote:
         | Many report chronic symptoms, who have been laughed at for
         | decades.
         | 
         | Chronic persistence (at least in some cases) has now been
         | proven.
         | 
         | Took someone with chronic lyme to donate the brain for
         | research:
         | https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...
        
           | bobo_legos wrote:
           | Kris Kirstofferson was told by doctors that his memory loss
           | was either Alzheimer's or Dementia. Another doctor finally
           | decided to test him for lyme. Turns out he he probably got
           | bitten by a tick shooting a movie 10 years prior to the
           | positive test. https://www.rollingstone.com/feature/kris-
           | kristofferson-an-o...
        
             | loceng wrote:
             | Huh, I wonder if my executive dysfunction in part could be
             | Lyme disease. I was bitten 10+ years ago - had to pull it
             | off, though it hadn't been there long as it hadn't latched
             | on deeply yet - it did cause a small ring; I did get and
             | take short course of antibiotics immediately after as far
             | as I remember.
             | 
             | I've heard common bloodwork done is very poor at detecting
             | it but is there a better or sure way of detecting it?
        
               | [deleted]
        
               | istjohn wrote:
               | The article states that Lyme disease is only transmitted
               | if the tic latches on for over 36 hours. The bacteria is
               | latent in the tic's gut until blood is ingested, at which
               | point it takes 36 hours for the bacteria to multiply and
               | migrate to the tic's salivary glands.
        
               | loceng wrote:
               | Ah thanks - well, perhaps the mark was just my body
               | reacting to its beginning attempt to attach.
        
             | computer23 wrote:
             | It wasn't Lyme. Kris Kirstofferson is a victim of quackery:
             | 
             | https://respectfulinsolence.com/2016/07/08/kris-
             | kristofferso...
        
               | capitainenemo wrote:
               | Hm. That blog post claims "chronic lyme disease does not
               | exist"
               | 
               | https://news.tulane.edu/pr/study-finds-evidence-
               | persistent-l...
               | 
               | I'm reading up on all this just now due to the HN front
               | page articles, but these 2 seem to be in contradiction.
        
       | darkerside wrote:
       | I'd rather see treatment than a vaccine. I do believe most cases
       | of Lyme are trivial, but some can linger and cause horrible
       | issues. Disulfiram sounds very promising.
        
       | vinni2 wrote:
       | Too late for me I found a tick on my shoulder and I tested
       | positive for the Lyme disease. It was treated with antibiotics
       | but my understanding is it can come back.
        
       | alfon wrote:
       | Any reason why this injection of OspA Monoclonal Antibodies
       | wouldn't help in late disseminated Lyme disease?.
       | 
       | My understanding is that very tough cases of neurological Lyme
       | disease often benefit greatly from IVIG. Wouldn't this be a more
       | targeted version of IVIG?
        
       | Whitespace wrote:
       | I caught Lyme earlier this year. Recently moved to upstate NY (20
       | miles from Lyme, CT) and tick checks are a daily thing. Found an
       | adult embedded in my side. Developed a 103oF fever and fatigue.
       | Dr. took blood for the Lyme test but didn't wait for a positive
       | and prescribed 2 weeks of Doxycycline.
       | 
       | A few days later I found a bullseye rash on my leg (not near the
       | bite area) which pretty much confirmed it.
       | 
       | I felt 100% around 5-7 days after developing fever symptoms.
        
         | technothrasher wrote:
         | > Recently moved to upstate NY (20 miles from Lyme, CT)
         | 
         | Wait, what? The only part of NY 20 miles from Lyme is the tip
         | of Long Island. It's at least 60 miles from anything upstate.
        
           | Whitespace wrote:
           | Ahh you're correct, I'm 90 miles from Lyme, not 20.
        
           | doctorhandshake wrote:
           | For folks in NYC, 'upstate' is used loosely to mean 'a place
           | in NY state you access via queens or the bronx'.
        
         | vimy wrote:
         | The tests look for antibodies which only are measurable after
         | weeks so a test immediately after a tick bite is useless.
        
           | tcoff91 wrote:
           | If you collect the tick itself, is there a way to check the
           | tick instead of checking the person that's bit?
        
             | vimy wrote:
             | Yeah, you can send it to a lab. This should be the default
             | move after every tick bite.
        
       | nikkinana wrote:
       | There's also a treatment that's extremely effective.
        
       | giantg2 wrote:
       | There's also the researcher using crispr to give mice immunity to
       | lyme, thus interrupting the life cycle. It would be great to wipe
       | it out that way.
        
         | inter_netuser wrote:
         | Please link.
        
           | giantg2 wrote:
           | I saw it on Netflix, but here is a similar article.
           | 
           | https://elemental.medium.com/the-mouse-cure-48f81e7a3fec
        
           | [deleted]
        
       | mrfusion wrote:
       | I've found the biggest places to watch out for ticks are where
       | not many people go. Little travelled trails. The heavily
       | trafficked areas seem to have way less ticks.
       | 
       | My working theory is the deer to human ratio of an area
       | determines how many deer ticks.
        
         | patall wrote:
         | My grandma just got Lyme with pretty high certainty in her own
         | garden. In suburbia in a million people city. With a
         | deer:people ratio of about 0.00.
         | 
         | From my understanding, ticks can be in any type of grass. If
         | you somehow touch grass of any type, be it walking, sitting or
         | hand-mowing, there is a chance of picking one up. Sure, there
         | are few ticks in very populated areas, but I would rather guess
         | that more people equates to more likelyness that someone else
         | already picked up the ticks in that area. And obviously: there
         | is less grass were many people go.
        
           | mrfusion wrote:
           | Interesting. Maybe my formula only works for rural and
           | suburbs. Maybe get enough people and they become the vector
           | for the ticks.
        
         | kortex wrote:
         | My partner got a bullseye-inducing tick byte in our front yard
         | in suburban upstate NY. Hardly little-traveled.
         | 
         | The absolute quantity of deer is more important than the
         | deer/human ratio. Lawns make it super easy for deer to migrate,
         | human presence suppresses wolves and other predators, and mice
         | love our trash, houses, bird feeders, and pet food.
        
           | mrfusion wrote:
           | I'd wonder though if deer use your front yard more than you?
           | Especially in the pre dawn hours.
           | 
           | Even if you garden you're probably only out there a couple
           | times a week?
           | 
           | But you could be right that quantity of deer is more
           | important.
           | 
           | BTW have you considered guniea fowl? Or at least something
           | like this might help. https://www.consumerreports.org/pest-
           | control/bait-boxes-are-...
        
             | kortex wrote:
             | I am pretty they do, while I haven't seen them in my yard,
             | they love my neighbor's ~1acre lawn abutting woods across
             | the street. I see them hanging out there all hours of the
             | day.
             | 
             | I actually just learned about guinea fowl elsewhere in this
             | thread! Definitely will be looking into it.
             | 
             | I also started doing the permethrin soaked cotton balls in
             | tubes. Mice collect the cotton for their nest and it kills
             | ticks. Also our dog gets tick-killing meds and takes out a
             | non-trivial amount just by collecting and killing them.
        
               | bstpierre wrote:
               | Based on our experience, with anywhere from 2 to about 15
               | in a flock, guineas aren't super effective at reducing
               | ticks. They're also very noisy, leave big turds all over
               | the place, and at least in our rural New England area,
               | serve to attract predators.
               | 
               | Our spring "dog tick season" has become intense the last
               | couple of years. At the height of the season this spring
               | the daily tick count from grooming the dog was anywhere
               | from 10 (a light day) to a high of 27 ticks acquired
               | after an hour-long hike. When it's this bad, I can pick
               | up four just walking across the front lawn. During that
               | season they're mostly not deer ticks, so fortunately
               | they're bigger and much easier to find, and at least
               | according to most literature I've seen, dog ticks do not
               | transmit Lyme.
        
               | mrfusion wrote:
               | They could probably crawl over from your neighbors yard.
               | Not sure how far they travel. Or hitch a ride on mice?
               | 
               | Wow if tick killing meds exist for dogs maybe we could
               | get deer on those. Problem solved?
        
               | at_a_remove wrote:
               | I know when I bring my deer into the vet for their annual
               | checkup, they'll probably offer the shot pretty soon.
        
               | mrfusion wrote:
               | You could mix it into food or salt licks or even hire
               | people to hit them with medicine darts.
               | 
               | I thought I've heard of that for deer birth control
               | before?
        
               | at_a_remove wrote:
               | Edible vaccines are not easy. There's a reason you are
               | still getting injections.
               | 
               | Shooting them with darts, well, those would be a hell of
               | a lot more expensive than bullets. It seems ... fraught
               | with a lot of potential for unexpected effects.
        
       | a-saleh wrote:
       | Yep, last summer I knew more people in my friend group that had
       | lyme disease than people with covid.
        
       | willvarfar wrote:
       | Have my TBE jabs.
       | 
       | But just last week I had another course of penicillin to treat
       | Lyme disease.
       | 
       | Where i live, ticks are prevalent and this year seems to be
       | particularly bad for just Lyme disease. I know four others who
       | also have it, which seems higher than normal.
       | 
       | A vaccine would be most welcome.
        
         | [deleted]
        
           | nickthemagicman wrote:
           | I think they HAVE lime disease.
        
       | inter_netuser wrote:
       | This one is a real weird forum. Class action against car
       | manufacturer, Toyota, because of 200-400 injuries from airbags?
       | GOOD!
       | 
       | Class action against any medical product? VERY BAD!
       | 
       | It's like tainted blood transfusions, glyphosate, vioxx, fen-
       | phen, thalidomide just never happened.
       | 
       | I'm guessing the demographics is on the younger and still thinks
       | they are made from steel.
        
         | mschuster91 wrote:
         | There were 1.4M doses administered:
         | 
         | > The FDA found only 59 such adverse events out of 1.4 million
         | doses administered, and did not find direct scientific evidence
         | that the Lyme vaccine had caused them. Still, the questions
         | over possible unintended effects were enough to dampen
         | enthusiasm, especially after 121 Lymerix recipients filed a
         | class-action lawsuit against the vaccine's manufacturer.
         | 
         | Reminds me of the entire clusterfuck around the AstraZeneca
         | coronavirus vaccine, with the difference that politicians this
         | time at least pushed for getting vaccinated simply to stop the
         | pandemic.
        
           | rvz wrote:
           | > Reminds me of the entire clusterfuck around the AstraZeneca
           | coronavirus vaccine, with the difference that politicians
           | this time at least pushed for getting vaccinated simply to
           | stop the pandemic.
           | 
           | The media in the UK (Especially the BBC) tried to gaslight
           | the British public with the AZ vaccine and using the 'tHErE
           | iS moStLy nO eVIdEncE' trick repeatedly whilst the reports
           | and concerns of blood clots forming in young people kept
           | increasing.
           | 
           | It was enough from them to not recommend the AstraZeneca
           | vaccine to them and instead give them Pfizer-BioNTech
           | vaccine.
        
         | resoluteteeth wrote:
         | Imagine if it was impossible for anyone to buy a car ever
         | because when cars first went on the market 59 out of 1.4
         | million people who bought them got joint pain that may not have
         | even been connected with the cars.
        
           | drstewart wrote:
           | Let's see how self-driving regulation go first before you say
           | that.
        
           | inter_netuser wrote:
           | so the product was so unprofitable it couldn't cover
           | liability insurance with only 59 claims out of 1 millionn
           | units sold?
           | 
           | seems it was just not viable commercially.
        
             | resoluteteeth wrote:
             | If we've created a system where vaccines aren't
             | commercially viable, that seems like a problem in itself.
        
         | matkoniecz wrote:
         | You are arguing with strawman, noone said this.
        
         | CorrectHorseBat wrote:
         | They administered over 1 million doses in about a year. 10,000
         | doses was the sales projection after a misinformation campaign.
        
       | cushychicken wrote:
       | There _was_ a shot to prevent Lyme disease developed in the late
       | 90s, but antivax threw a fit about it, and it was discontinued.
       | 
       | https://www.cdc.gov/lyme/prev/vaccine.html
        
         | istjohn wrote:
         | As the article describes, the story is more complicated than
         | that:
         | 
         |  _> Despite its shortcomings, Lymerix was initially popular. By
         | July 2000, more than one million doses had been distributed.
         | But safety concerns eventually sank the vaccine. While the FDA
         | panel that approved Lymerix did so unanimously, several members
         | wondered whether the vaccine might cause an autoimmune reaction
         | leading to arthritis. A section of OspA resembles a human
         | protein that modulates the immune response, and the concern of
         | some on the FDA panel was that, after vaccination, the immune
         | system would overcorrect and fight off not only the OspA
         | protein that covered the bacteria, but also that human protein.
         | Nothing like this occurred in Lymerix's clinical trials.
         | 
         | > Shortly after Lymerix hit the market, those worries emerged
         | nonetheless. Some recipients reported joint pain and arthritis,
         | symptoms they blamed on the vaccine itself. The FDA found only
         | 59 such adverse events out of 1.4 million doses administered,
         | and did not find direct scientific evidence that the Lyme
         | vaccine had caused them. Still, the questions over possible
         | unintended effects were enough to dampen enthusiasm, especially
         | after 121 Lymerix recipients filed a class-action lawsuit
         | against the vaccine's manufacturer. SmithKline Beecham,
         | projecting sales of only 10,000 doses in 2002, decided to
         | withdraw Lymerix from the market in February of that year. (The
         | lawsuit was settled one year later, with more than $1 million
         | paid out by the pharmaceutical company to cover the prosecuting
         | lawyers' fees, but no financial compensation was awarded to the
         | plaintiffs.)_
         | 
         | The new treatment in development avoids the problem by directly
         | injecting antibodies instead of stimulating the immune system
         | to create the antibodies as Lymerix did.
        
       | est31 wrote:
       | In addition to the Pfizer/Valneva vaccine mentioned in the
       | article, there is also one from Sanofi in development:
       | https://www.nature.com/articles/s41541-020-0183-8
       | 
       | https://www.bc.cas.cz/en/news/news-detail/5483-a-new-lyme-va...
        
       | jemurray wrote:
       | I know this is about Lyme disease, but let me add another word of
       | caution while we are discussing ticks. Two years ago I was bit by
       | the Lone Star tick. Since that time I developed an allergy to all
       | red meat. It was hard to diagnose and a few of the doctors I
       | worked with along the years still don't believe its true. If your
       | interested in learning more search for Alpha Gal. There is an
       | excellent Radio Lab podcast about it.
        
         | Dylanfm wrote:
         | This also occurs in Australia, resulting in mammalian meat
         | allergy. Some more information here
         | https://allergy.org.au/patients/insect-allergy-bites-and-sti...
        
         | fullstop wrote:
         | I was bit by one of those about ten years ago, but no unusual
         | effects thankfully.
        
         | crypot wrote:
         | I was bit by a tick in 2010. I pulled it off my forearm and it
         | left a protrusion that lasted about 2 weeks. No rings. I got
         | sick with a flu around this time. Went to the doctor, the lyme
         | test came back negative.
         | 
         | Shortly after this I started to develop lesions in my mouth and
         | scalp. Then they spread to my entire body. 6 months later got a
         | diagnosis of an autoimmune blistering disease. The specialist
         | said it was a usually a disease for old people, very unusual
         | for an otherwise healthy 35 year old to develop it. 8 years of
         | oral antibiotics and some steroids for flare ups and I was in
         | remission.
         | 
         | In my opinion, everyone should be leery of tick bites.
        
           | gknoy wrote:
           | > 8 years of oral antibiotics
           | 
           | Holy cow. That is a frightening amount of time to have to
           | take those.
        
             | wildmanx wrote:
             | And a prime recipe for antibiotic resistance to develop.
             | 
             | If an MD prescribed antibiotics for that long a continuous
             | time period, they should lose their license.
        
         | PragmaticPulp wrote:
         | > It was hard to diagnose and a few of the doctors I worked
         | with along the years still don't believe its true.
         | 
         | Did they offer alternative explanations or did they simply
         | stonewall you and deny your reported symptoms?
         | 
         | One of the lessons I learned far too late in life was to not
         | waste time with doctors who don't believe your reported
         | symptoms.
         | 
         | On some level I understand how it happens -- Doctors inevitably
         | see a number of hypochondriacs and people with psychosomatic
         | illnesses who need to be handled delicately to avoid further
         | entrenching their perceived illnesses. However, when you're
         | having legitimate symptoms and your own doctor tries to deny
         | the symptoms without offering further diagnostics, it's time to
         | cut ties and move on.
         | 
         | It can take a few tries to find a good doctor.
        
           | retzkek wrote:
           | I've generally had better experiences with DOs than MDs when
           | it comes to listening and working with me to understand how
           | and what I feel. On the other hand some people may prefer the
           | more "clinical" (not sure if that's the best word) approach
           | of MDs. So just something to keep in mind if you're unhappy
           | with your current doctor.
           | 
           | edit: For those not aware, a DO is fully licensed to practice
           | medicine (in the US at least), no different from an MD. Don't
           | confuse them with chiropractors (DC) or similar. https://en.w
           | ikipedia.org/wiki/Osteopathic_medicine_in_the_Un...
        
             | NortySpock wrote:
             | DO: Doctor of Osteopathy , an osteopathic physician
             | 
             | Thought I'd de-acronym-it for you; and yes, my MD father
             | tells me a DO is just as good as an MD.
        
           | LorenPechtel wrote:
           | And they're far too eager to dismiss it as psychomatic if it
           | doesn't fit their pigeonholes.
        
         | inter_netuser wrote:
         | This cannot be repeated enough: "few of the doctors I worked
         | with along the years still don't believe its true"
         | 
         | a medical opinion is just that. an _opinion_. consensus often
         | takes decades to change.
        
           | chubot wrote:
           | Yeah I think of it almost as a mathematical problem. There
           | are simply more ways for a human body to go wrong than any
           | number of doctors possibly can comprehend :) There is a very
           | very long tail of diseases and disorders.
           | 
           | So it's not just easy to find something that ONE doctor has
           | never heard of or seen, but you can find many that ALL
           | doctors are unfamiliar with!
        
           | gilbetron wrote:
           | We, as patients, pass around these apocryphal stories around,
           | but don't look at the opposite experience of doctors. Doctors
           | constantly, and I mean multiple times per day, get patients
           | in that tell them their symptoms are due to disease or
           | condition or complex X. Time and again, the patient is
           | completely wrong. No, you don't have cancer, your lymph node
           | hurts because it is fighting off an infection, and besides if
           | it was cancer, the node wouldn't hurt. No, you don't have
           | lyme disease, you're sore because you started gardening again
           | and you are 50. No, you don't have an ulcer, you're just
           | eating too much ice cream before going to bed.
           | 
           | As humans, we forget about the times we were wrong, and also
           | don't share those stories. "I went to the doctor thinking I
           | was dying of cancer, but it turns out I'm allergic to
           | mushrooms" is much less likely to be passed around as a story
           | than, "No doctors would listen to me until one did and tested
           | me and found out I have Lyme disease."
        
             | inter_netuser wrote:
             | Hilarious you brought this up: "No, you don't have an
             | ulcer, you're just eating too much ice cream before going
             | to bed."
             | 
             | Reflux is a very common food allergy symptom and milk is
             | one of the most common allergen, if not THE most common.
             | 
             | I've had 3 or 4 scopes that showed some mild inflammation,
             | and GIs were simply lost. I've managed to locate a 90 year
             | old allergist who probably began practicing before there
             | was benadryl. After recounting the symptoms I was told
             | "it's milk. it's always milk". I was taken aback, how can
             | anyone be so sure? Literally 5 minutes later that was
             | confirmed by a skin-prick test.
             | 
             | Most physicians are garbage. The allergist was quite
             | thorough.
             | 
             | The billing rate to dismiss you in 30 seconds pays about
             | the same as a 30 min appointment. The incentives just
             | aren't there.
        
               | gilbetron wrote:
               | I agree with the systemic problem that our healthcare
               | system doesn't want to get to the bottom of symptoms. It
               | drives me crazy, especially the "most cancer is treatable
               | if caught early, but no we won't give you a diagnostic
               | test to actually catch cancer early". I have direct
               | experience with this, pushing through multiple doctors
               | that ended with my thyroid cancer diagnosis.
               | 
               | My doctor at the time was actually really good, not
               | because he was good at diagnosing, but he had enough
               | experience to recognize his inability to do so and would
               | always send me to an expert. He literally was 100% wrong
               | about all of my major diagnoses (my hurt knee actually
               | was a torn ACL, my abdominal pain actually was a hernia,
               | my throat nodule actually was cancer), but he always sent
               | me to a specialist to be sure. And he knew really good
               | specialists. "I don't think it is X, but lets have a
               | specialist verify" was his common refrain.
               | 
               | But, yeah, the system sucks now.
        
           | Dumblydorr wrote:
           | A doctor's opinion on disease isn't merely an opinion, it's
           | an educated guess based on experience and qualifications. New
           | diseases and research are constantly appearing, thousands of
           | articles are written each year. We can't expect doctors to
           | know everything, but we can expect them to have more informed
           | opinions, on average, than non-doctors.
           | 
           | I say this because there's a rising trend of anti-
           | intellectualism and distrust of doctors in the US, which
           | leads to massive self inflicted wounds in Covid and vaccines.
           | Doctors aren't infallible, but they're far better than random
           | online sources.
        
             | nitrogen wrote:
             | _trend of anti-intellectualism and distrust of doctors_
             | 
             | As someone who knows a practicing doctor who is also anti-
             | vax, these are orthogonal issues. Sometimes, distrusting a
             | _specific_ doctor is the more intellectual approach.
        
               | inter_netuser wrote:
               | You'd be surprised how many physicians and nurses refuse
               | vaccination. You'll just never hear about it. AMA is one
               | powerful beast, I wish I had a union like that.
               | 
               | However, sometimes fun little things like this happen
               | that show their true colors:
               | 
               | "Starting in early 2003, the United States government
               | started a program to vaccinate _500,000_ volunteer health
               | care professionals throughout the country. Recipients
               | were healthcare workers who would be _first-line
               | responders in the event of a bioterrorist attack_. Many
               | healthcare workers refused, worried about vaccine side
               | effects, and healthcare systems refused to participate.
               | Fewer than _40,000 actually received the vaccine_.[29] "
               | 
               | https://en.wikipedia.org/wiki/Smallpox_vaccine
               | 
               | over 90% refused.
        
               | wbl wrote:
               | The smallpox vaccine has a non-trivial amount of danger
               | and the only smallpox in the world is guarded very
               | closely.
        
               | arn wrote:
               | That doesn't mean distrust of vaccination in general - at
               | least by doctors. It was for a potential bioterrorist
               | attack. It perhaps more reflects the low likelihood or
               | belief that there would be a small pox attack.
               | 
               | Meanwhile, 96% of physicians are vaccinated against COVID
               | - https://www.ama-assn.org/press-center/press-
               | releases/ama-sur...
        
               | inter_netuser wrote:
               | If you assume the low likelyhood of the attack was the
               | reason, that means 90% of those physicians could be
               | lying. The stated reason for refusal was concerns about
               | side effects. It's in the quote.
               | 
               | What you stated as a fact, 96% vaccination rate, is
               | actually a self-reported survey.
               | 
               | Why do a survey when public health CDC records could
               | simply be matched with the physician licensing
               | registrars?
               | 
               | Seems an automatic search like that would save physicians
               | their valuable time, aren't they very busy with a
               | pandemic right now? Instead of hard data from CDC, we get
               | self-reported, likely anonymous, self-reported survey.
               | 
               | What do they have to hide?
        
               | arn wrote:
               | It's always cost-benefit. Relative risk of side effect
               | directly relates to likelihood.
               | 
               | Risk of side effects vs benefit of vaccine.
               | 
               | I am not likely to take an HIV vaccine, since my personal
               | chance of contracting HIV is incredibly low. So any side
               | effect isn't "worth it" -- even a sore arm. But that
               | doesn't mean I'm anti-vaccine.
               | 
               | I also don't wear a bullet proof vest around because it's
               | too heavy ("side effect"). Does that mean I'm anti-bullet
               | proof vest? No. But I would wear a bullet proof vest in a
               | war zone -- even if it's heavy.
               | 
               | If there was a widespread small pox outbreak in the U.S.,
               | I'm certain more than 10% of physicians would take the
               | vaccine. Does that mean they were lying before? No.
        
               | inter_netuser wrote:
               | did you read my comment?
               | 
               | covid 96% status is from an anonymous survey.
               | 
               | Why not just get CDC to provide actual hard data? Surely
               | they keep vaccination records?
               | 
               | Should vaccination status of physician, as verified by
               | the CDC, be public data?
        
               | arn wrote:
               | Because even if I did point to official stats, you would
               | say they are just lying?
               | 
               | A few months prior to the AMA survey, Long Term Care
               | Facilities reported a 75% vaccination rate amongst
               | physicians at their facilities. So presumably higher now.
               | 
               | https://www.cdc.gov/mmwr/volumes/70/wr/mm7030a2.htm
        
               | nitrogen wrote:
               | _The stated reason for refusal was concerns about side
               | effects._
               | 
               | As another comment already mentioned, smallpox vaccines
               | (at least historically) tended to have undesirable side
               | effects, like permanent scars. Smallpox vaccination is
               | probably not a good proxy for vaccination overall. It's
               | not worth getting vaccinated for smallpox unless you
               | expect a decent risk of exposure.
               | 
               |  _What do they have to hide?_
               | 
               | Privacy should be the default.
        
               | inter_netuser wrote:
               | they have a monopoly license, these things come with
               | strings.
               | 
               | Do you want to go to anti-vaxx doctor?
        
             | mwigdahl wrote:
             | I'd qualify that: "...we can expect them to have more
             | informed opinions, on average, _for any random condition_,
             | than non-doctors."
             | 
             | The thing I think you're missing is that the resources to
             | do good, deep research on a condition do exist, and the
             | sufferer has very strong motivation to do that research and
             | become very well informed in the etiology and treatment
             | options. The doctor, less so. They have a lot of patients
             | and a lot of demands on their time.
             | 
             | Will a good doctor put in the effort, do the research, and
             | come up with a superior treatment plan? Certainly! But not
             | all doctors will do this.
             | 
             | If you use the allegory of the pig and the chicken, the
             | sufferer is the pig, the doctor is the chicken. It is
             | reasonable that the average pig will put in more work and
             | be better informed about their own condition than the
             | average chicken.
        
               | PebblesRox wrote:
               | For anyone else who isn't familiar with the Pig and
               | Chicken story:
               | 
               | https://en.m.wikipedia.org/wiki/The_Chicken_and_the_Pig
        
               | wildmanx wrote:
               | The English language has a serious deficiency in the term
               | "research".
               | 
               | You can do "research" by spending your days in a lab,
               | formulating hypotheses, doing experiments, reading
               | related academic work, drawing conclusions, publishing
               | their findings.
               | 
               | You can do "research" by googling, reading blog posts and
               | wikipedia articles, watching Youtube videos, following
               | telegram links and possibly reading a popular-science
               | book.
               | 
               | These two things are very different activities and
               | produce very different bodies of knowledge. "Do your own
               | research!" is a common sentiment in Covid skeptic
               | circles. It doesn't mean being in a lab. It means
               | following links in your Google bubble. That doesn't
               | necessarily produce useful knowledge. Properly trained
               | researchers are aware of things like confirmation bias,
               | selection bias, recollection bias. The "I did my own
               | research crowd" is not and suffers seriously from it.
               | 
               | Using the term with the doctor is blurring the line
               | between both versions. They don't stand in the lab and
               | "do their own research", but they are more educated in
               | the medical field than the common patient and have
               | context.
        
             | inter_netuser wrote:
             | Indeed, there is plenty of distrust. If they are doing such
             | a great job though, why the distrust?
             | 
             | I don't know a single person with a significant chronic
             | condition in the US who would say the health system and all
             | their physicians are amazing and great. Usually you hear
             | the exact opposite.
             | 
             | However, stories about that gem of a doctor they finally
             | found over the years are very common. Most physician suck,
             | not sure why.
             | 
             | Loss of trust is indeed very unfortunate, counterproductive
             | and indeed leads to unnecessary suffering.
             | 
             | Physicians are highly educated professionals in a legally
             | protected rent-seeking monopoly, backed by a powerful trade
             | union, AMA, and the corresponding social
             | status/wealth/authority that comes with all that. Seems to
             | me it's only fair that the onus is _entirely_ on them to
             | win that trust back. I 'm not holding my breath though.
             | 
             | Medicine is just another business. Remember that next time
             | you see a doctor.
        
               | wildmanx wrote:
               | > I don't know a single person with a significant chronic
               | condition in the US who would say the health system and
               | all their physicians are amazing and great. Usually you
               | hear the exact opposite.
               | 
               | > However, stories about that gem of a doctor they
               | finally found over the years are very common. Most
               | physician suck, not sure why.
               | 
               | Great example of reporting bias. Nobody goes around
               | telling everybody "all is fine". That's not news and
               | nobody wants to hear it. Something needs to be special,
               | out of the ordinary, a sensation even. "All my doctors
               | suck, listen to my 10-minute rant about my odyssey" is
               | what people _think_ will be interesting.
               | 
               | Ever heard a news anchor say "Nothing remarkable happened
               | today. Have a good evening." Of course not. They will
               | report something, no matter how unimportant, ridiculous,
               | sensationalist.
        
       | mimined wrote:
       | I'm a bit confused here... I thought a vaccine that protected you
       | from Lyme disease already existed? I grew up in Latvia, and it
       | was pretty common to get that jab. You have to get boosters every
       | 5 years or so (which I haven't really done since I moved away)
       | but they're supposed to protect you from the encephalitis ticks?
       | Sorry if the terminology is wrong here.
       | 
       | I was surprised to know that they didn't bother with that in the
       | UK. Then I got even more surprised when I learned that there's
       | actually a lot of ticks in Scotland. I don't understand why this
       | isn't spoken about more. Back at school they taught you at
       | primary school what to do if ou het bitten, how to take it out,
       | where to bring it for tests etc.
        
         | vient wrote:
         | Tick-borne encephalitis and Lyme disease are different things.
         | You are right that there is a vaccine against the first one,
         | while Lyme vaccine has an interesting history[1].
         | 
         | [1] https://en.wikipedia.org/wiki/Lyme_disease#Vaccination
        
         | bkanber wrote:
         | There used to be a human vaccine for Lyme, but it was pulled
         | from market about 20 years ago. Interestingly, this Lyme
         | vaccine was one of the first victims of the modern anti-vax
         | movement.
        
       | d4rkp4ttern wrote:
       | Are tick repellents any good? Any recommendations?
        
         | wepple wrote:
         | Permethrin on your clothes ( _not_ on your skin), and deet.
         | 
         | But you'll still get them if you're outside, and should do
         | daily tick checks anyway.
        
           | Workaccount2 wrote:
           | Note that permethrin is very toxic to cats. You may want to
           | be careful if you have them around.
        
       | quotz wrote:
       | Took around 5 unlatched ones off me this summer, about 5 more
       | latched and unlatched from my dog and a few off my gf. We live
       | close to a national park. Apparently the dog lyme vaccine is the
       | same as the one that was approved for humans in the 90s. I wanted
       | to buy it and shot myself with it. Theres some folks who say its
       | fine.
        
       | yodsanklai wrote:
       | https://en.wikipedia.org/wiki/Chronic_Lyme_disease
       | 
       | > Chronic Lyme disease (CLD) is the name used by some people with
       | "a broad array of illnesses or symptom complexes for which there
       | is no reproducible or convincing scientific evidence of any
       | relationship to Borrelia burgdorferi infection" to describe their
       | condition and their beliefs about its cause.
       | 
       | (TLDR; lot of misinformation about Lyme disease)
        
         | inter_netuser wrote:
         | Take a look:
         | https://www.frontiersin.org/files/Articles/628045/fneur-12-6...
         | 
         | These are spirochetes in the brain/spine of a dead patient who
         | had proven lyme diagnosis, has been given the standard
         | treatment in the past, never recovered, developed dementia,
         | died.
         | 
         | Full study:
         | https://www.frontiersin.org/articles/10.3389/fneur.2021.6280...
         | 
         | The wikipedia article you are quoting is outdated
         | misinformation, please stop spreading it.
         | 
         | the wiki article is indeed misinformation.
        
           | yodsanklai wrote:
           | I'd encourage anyone interested to do their own research. The
           | scientific consensus today is what is stated in the linked
           | wikipedia article. There are lot of myths around Lyme
           | disease.
           | 
           | https://eu.delawareonline.com/story/sponsor-
           | story/nemours/20...
           | 
           | Myth #5: Lyme disease can have debilitating, lifelong
           | effects.
           | 
           | Fact: When treated with antibiotics, Lyme disease, at any
           | stage of presentation, is curable.
           | 
           | Myth #6: My child will be at risk for chronic Lyme disease
           | once he's infected with Lyme.
           | 
           | Fact: Although some people report lingering or recurrent
           | symptoms after Lyme disease, there is no evidence that
           | chronic Lyme disease exists. Prolonged courses of antibiotics
           | are not needed and can do more harm than good. Follow the
           | recommendations of trusted sources such as the Centers for
           | Disease Control and the Pediatric Infectious Diseases
           | Society.
           | 
           | Myth #7: Alternative therapies are valuable treatment options
           | for my child's Lyme disease infection.
           | 
           | Fact: Lyme disease is a hot topic on the internet with many
           | people sharing both successes and horror stories about
           | alternative treatments, but keep in mind that it is hard to
           | verify the legitimacy of internet sources. Instead, talk to
           | your child's pediatrician, or consult with a pediatric
           | infectious diseases physician at an academic medical center.
        
             | darkerside wrote:
             | Garbage misinformation.
             | 
             | Myth #5: Lyme disease can have debilitating, lifelong
             | effects.
             | 
             | Fact: When treated with antibiotics, Lyme disease, at any
             | stage of presentation, is curable.
             | 
             | The fact provided in response assumes that people are
             | getting antibiotic treatment, which is not always the case.
             | If you go untreated, then you can have lifelong
             | debilitating effects. I don't think even the author of the
             | article would dispute that. So why is the author using
             | weaselly arguments to imply that you can't? Seems like an
             | attempt to confirm a biased judgement.
        
             | akyu wrote:
             | >The scientific consensus today is what is stated in the
             | linked wikipedia article.
             | 
             | Simply saying this doesn't make it true. This is not true
             | and that Wikipedia article is outdated.
        
               | yodsanklai wrote:
               | Just like saying it's not true doesn't make it untrue.
               | Which is why I'd encourage everybody to do their own
               | research, and at least know that there are a lot of
               | controversies around this topic.
        
               | inter_netuser wrote:
               | Please do YOUR research and read the paper that went thru
               | peer review and was published.
               | 
               | once YOU read that paper, please post YOUR peer review
               | summary here.
               | 
               | enough with appeals to authority. wikipedia is not even
               | an authoritative source to begin with.
        
               | freshpots wrote:
               | Are you also a big fan of the scam Dr. Sponaugle and the
               | multitude of forums about chronic Lyme, and consider
               | those charlatans scammers the truth?
               | 
               | https://www.vice.com/en/article/m7jk9q/rick-sponaugle-
               | pots-c...
               | 
               | Edit: Is Lyme-literate another term you and your internet
               | friends use?
               | 
               | Look at the case against him: https://mqa-
               | internet.doh.state.fl.us/MQASearchServices/Healt...
               | 
               | Scam Dr's like this are causing the FUD you are
               | spreading.
        
               | inter_netuser wrote:
               | Take a look here: https://www.frontiersin.org/files/Artic
               | les/628045/fneur-12-6...
               | 
               | These are spirochetes in the brain/spine of a dead
               | patient.
               | 
               | She had proven lyme diagnosis in the past, has been given
               | the standard treatment and had good response(!), only to
               | relapse, never recover and went on to develop
               | neurological issues years later, and died.
               | 
               | The brain was donated and autopsied.
               | 
               | Full study: https://www.frontiersin.org/articles/10.3389/
               | fneur.2021.6280...
               | 
               | Are you saying the lead scientist on this paper, from the
               | Tulane National Primate Research Center is a scammer? (ht
               | tps://en.wikipedia.org/wiki/Tulane_National_Primate_Resea
               | r...)
               | 
               | Seems like a big accusation.
        
               | DetroitThrow wrote:
               | I had recently read a paper by a professor in Stanford
               | Psychiatry that made very exaggerated claims that would
               | go on to not be replicated to the degree originally made,
               | which I had expected as the treatment used was not a
               | major improvement on the existing methods and that
               | researchers from even prestigious universities might be
               | incentivized to not investigate or report the full truth
               | if they might benefit from it in some way.
               | 
               | While it's interesting that the treatment was
               | "successful" and that symptoms continued, this isn't
               | really a strong statement of support for something like
               | Chronic Lyme Disease or at least its widespread
               | presentation - much more likely a statement of support
               | for Lyme Disease bacteria not always being treated by the
               | regimen, or potentially even that it's easy for someone
               | to get a second infection and have no significant
               | immunity.
        
               | giantg2 wrote:
               | I think even the article makes a mention that there is
               | not scientific consensus on many aspects of Lyme disease.
               | It seems it is one of many topics that have studies that
               | may contradict other studies, or explore additional
               | angles.
        
               | DetroitThrow wrote:
               | The article seems to indicate that consensus does not
               | support Chronic Lyme Disease, instead preferring Post
               | Treatment Lyme Disease as a pathology (which doesn't seem
               | unlikely if the disease causes nervous system damage). It
               | also mentions reinfection has been recorded. I'm only
               | really seeing one data point being posted to counter that
               | idea, and that doesn't seem to exclude the reinfection
               | scenario.
               | 
               | I guess the hope for promoters of CLD would be that it's
               | possible to treat the currently irreversible PTLD
               | symptoms using antibiotics, rather than accept something
               | akin to a fibromyalgia diagnosis.
        
               | giantg2 wrote:
               | Ah, I didn't see that this was strictly a comment about
               | chronic Lyme. It seems pretty well settled, but that
               | single conflicting case does leave the door open for
               | further study, even if only to determine how a fluke
               | happened.
        
             | coding123 wrote:
             | Yeah did you read his links?
             | 
             | https://www.frontiersin.org/articles/10.3389/fneur.2021.628
             | 0...
             | 
             | Pretty damning.
        
             | garyrob wrote:
             | I know where you're coming from. I believe it is the
             | appropriate attitude in discussing misinformation with, for
             | example, covid.
             | 
             | BUT I really did do my own research with respect to Lyme,
             | reading deeply into the peer-reviewed literature, and I
             | came to the conclusion that the "scientific consensus" was
             | formed by people too lazy or misguided to read it
             | themselves.
             | 
             | For example, the consensus was that Lyme couldn't persist
             | in humans after antibiotic treatment. But it DOES persist
             | in other animals including primates. They could easily
             | discover that because they could euthanize those other
             | animals to see if it was there in their tissues, and it
             | was. They couldn't do that with humans. The conclusion is
             | OBVIOUSLY not that it can't happen in humans, but rather
             | that we haven't proved it could. The "scientific consensus"
             | got those outcomes confused, and assumed it couldn't.
             | 
             | But consider this quote from the OP article: "In May, her
             | research team published their strongest evidence to date of
             | persistent Lyme symptoms. In a unique finding, they
             | discovered Lyme bacteria in the tissues of a deceased
             | 69-year-old woman who contracted the disease, was treated
             | multiple times with antibiotics, and still couldn't clear
             | the infection from her body."
             | 
             | I was impressed by related evidence a couple years ago,
             | such as an examination of the brains of people who had died
             | of Alzheimer's. I don't remember the exact number, but
             | something like 25% of those brains contained Lyme
             | spirochetes. Note that there is a theory gaining traction
             | recently that Alzheimer's is caused by the brain's attempts
             | to manage active infections.
             | 
             | There is much, much more to say, and a LOT of research that
             | goes in the opposite direction of what you're assuming in
             | your post.
             | 
             | An anecdote: researchers tested hundreds of FDA-approved
             | drugs in test tubes to see which ones worked best at
             | killing Lyme spirochetes. Disulfiram won. My wife, who had
             | lost her career as a retinal surgeon and researcher due to
             | a chronic illness we thought might be chronic Lyme, took
             | disulfiram under the care of her doctor who had treated
             | Lyme patients for decades, and who was one of the first to
             | try disulfiram in patients.
             | 
             | After the treatment, her illness disappeared. Our older son
             | also had the same illness, which led to him taking a year
             | off from school because he just couldn't function. He had
             | been taking antibiotics for a couple years. At one point we
             | stopped the antibiotics, and he felt great for a week,
             | worse the next week, and in week 3 he was all the way back
             | to being pretty nonfunctional with the symptoms attributed
             | to "chronic Lyme". He, too, took disulfiram and was cured.
             | 
             | Note that we had long spent summers on Little Deer Isle,
             | Maine, known for its deer and deer ticks.
        
               | Quinner wrote:
               | A decade ago Lyme disease landed me in the hospital with
               | carditis and neurological issues. I still worry that my
               | brain doesn't work as well as it used to, but I don't
               | have symptoms severe enough to make me seek out
               | additional treatment (yet).
               | 
               | It should be noted that while there is some evidence that
               | Disulfiram has effectiveness against Lyme, it's not yet
               | well-studied and the incidence of significant side
               | effects, particularly neurological side effects, during
               | treatment is high enough that I wouldn't risk it. Both
               | the risks and benefits haven't been studied enough to
               | quantify, though I'm glad it worked well for your family.
               | 
               | Source on high incidence of side effects:
               | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7184924/
        
               | garyrob wrote:
               | "It should be noted that while there is some evidence
               | that Disulfiram has effectiveness against Lyme, it's not
               | yet well-studied and the incidence of significant side
               | effects, particularly neurological side effects, during
               | treatment is high enough that I wouldn't risk it."
               | 
               | Oh man, don't I know it. My post was about the question
               | of whether chronic Lyme actually exists, not whether
               | taking disulfiram is a good idea.
               | 
               | Both my wife and son had a VERY difficult time with the
               | disulfiram treatment. My son, in particular, ended up in
               | the ER one night, basically having a psychotic break.
               | That was the day he stopped taking the disulfiram.
               | 
               | BUT it happens that he was almost at the end of the
               | recommended treatment duration anyway, and EVERY
               | indication is that both he and my wife were completely
               | cured by it. This was probably about 2 years ago, and so
               | it's very encouraging that there is no evidence of any
               | recurrence.
               | 
               | As I mentioned, my wife and son were early in the
               | treatment experiments, and they had high doses. The
               | doctor who treated them has now treated a good number of
               | people and has much more experience with different doses.
               | With a lower dose for the same amount of time, cures are
               | less reliable. But there are experiments with low doses
               | for longer times.
               | 
               | I worry that you may have Lyme spirochetes in your brain
               | that may predispose you to Alzheimer's. So it might not
               | be a bad idea to look into more treatment even if you can
               | deal with your current state.
               | 
               | If you do, I'd recommend talking to my wife and son's
               | doctor, https://lymediseaseassociation.org/blogs/lda-
               | guest-blogs/ken...
        
               | DetroitThrow wrote:
               | >Note that there is a theory gaining traction recently
               | that Alzheimer's is caused by the brain's attempts to
               | manage active infections.
               | 
               | I think it's always been noted that Alzheimer's risk can
               | increase significantly after certain infections. I don't
               | think this really takes out the genetic component and
               | other environmental components to be contributors,
               | though, and I've not heard much on the front of it being
               | the primary contributor of Alzheimer's risk.
        
           | computer23 wrote:
           | Inter_netuser: That Frontiers paper is about as reliable as
           | Big Foot hunters claiming they finally found him. The authors
           | Brian Fallon and Monica Embers have been trying to prove
           | chronic Lyme beliefs for many years.
           | 
           | They are funded by their antiscience movement:
           | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4489928/
           | 
           | The Frontiers paper is a single case report that admits that
           | the woman's Lyme ELISA (and hence total antibodies to Lyme)
           | was negative when she started experiencing dementia. Without
           | antibodies against Lyme, it would be a mistake to claim that
           | she had "chronic Lyme" (which isn't real regardless.) The
           | paper is consistent with someone who had lyme disease (a not-
           | uncommon illness) and then years later was diagnosed with
           | dementia, but you can't say Lyme caused the dementia.
           | 
           | There is a scientific consensus against chronic Lyme based on
           | decades of research.
           | 
           | It's disturbing that chronic Lyme has become a dangerous
           | social phenomenon based on conspiracy theories, fake
           | diagnoses, and fake treatments.
           | 
           | https://www.thecut.com/2019/07/what-happens-when-lyme-
           | diseas...
        
           | jacksonkmarley wrote:
           | From that study:
           | 
           | > These results however do not clarify whether the Borrelia
           | infection had anything to do with her progressive
           | neurodegenerative disorder
        
             | inter_netuser wrote:
             | Impossible to do this reliably on a single patient with
             | multiple conditions and advanced age. One could take a
             | guess, but the error bar would be 0.0-1.0
             | 
             | This study set out to prove chronic persistence of the
             | pathogen despite standard treatments, which is rather hard
             | to dispute.
        
               | jacksonkmarley wrote:
               | Being able to detect Borrelia Spirochetes is not
               | equivalent to linking them with chronic symptoms.
        
               | nicoburns wrote:
               | I think the key thing is that it disproves the idea that
               | the bacteria which cause the disease are reliably
               | eliminated by antibiotics, which is typically a key point
               | that those in the "it's not cause by lyme" camp rely on.
               | 
               | Doesn't prove that it is lyme, but it shifts the balance
               | of probablities considerably.
        
               | jacksonkmarley wrote:
               | I don't have an opinion on what the "it's not caused by
               | lyme" camp rely on, but the wikipedia page complained
               | about above actually already references another study
               | that found spirochetes in animals after antibiotic
               | treatment.
               | 
               | No doubt the language in that wikipedia page is pretty
               | triggering if you already believe chronic lyme disease is
               | a thing though.
        
               | inter_netuser wrote:
               | The human study was literally done because denial of
               | chronic lyme persisted despite multiple reliable studies
               | in animal models.
               | 
               | It's quite disgusting and begets further questions as to
               | why such attitudes towards Lyme exist in the first place.
        
               | darkerside wrote:
               | Most CDC / IDSA folks will tell you that a course of
               | antibiotics will rid the body of Lyme in all cases. The
               | presence of spirochetes here should be enough for them to
               | stop using that language. But it likely won't because
               | there appears to be a systemic organizational bias
               | against Lyme as a chronic condition, and I'm not sure
               | why.
        
               | rdedev wrote:
               | Kind of reminds me of Alzheimer's disease and the
               | pervasive insistence that it's cause by misfokded
               | protiens even though so many treatments following that
               | assumption failed to cure it. Sometimes an idea is just
               | hard to introduce or root out in academia
        
               | [deleted]
        
               | megous wrote:
               | Presence 4 years or so later. So, maybe the patient was
               | infected again some time after initial treatment?
        
               | darkerside wrote:
               | Occam's Razor applies.
               | 
               | You're not wrong, but they continue to lean on the
               | "evidence doesn't support" angle. At some point that
               | looks like bias.
        
               | inter_netuser wrote:
               | The study is a follow-up study on primates that confirmed
               | the exact same thing, only to be dismissed "because not
               | in humans duuuuh"
               | 
               | Now we have human brain autopsies. Plenty of denial right
               | in this thread.
               | 
               | And then people wonder why people don't trust physicians
               | and do not vaccinate.
        
         | kortex wrote:
         | The recalcitrance of the broader medical research community to
         | acknowledge that spirochetes can persist after antibiotics and
         | continue to wreak havoc, is truly astounding. You'd think after
         | all the "whoops, my bad" moments in history - handwashing,
         | thalidomide, GRID/AIDS, to name a few, they would learn to be a
         | bit more conservative in their stance, e.g. "we have not found
         | _direct_ evidence of chronic Lyme, but it has a plausible
         | mechanism and widespread reports. "
         | 
         | I've already seen the needle shift from "Lyme is impossible
         | after antibiotics" to "well I guess some cases escape first
         | round of treatment."
        
       | zz865 wrote:
       | Lyme is just one of the horrible diseases ticks carry. Would be
       | nice to cull most of the deer in the North East. A few decades
       | ago they were rare, now they're everywhere.
        
         | pcmaffey wrote:
         | Or reintroduce wolves.
        
         | jankotek wrote:
         | Better to eradicate ticks.
        
           | somehnacct3757 wrote:
           | The deer themselves are a problem in the northeast. They are
           | greatly overpopulated and eat the native understory,
           | preventing the next generation of trees from growing past
           | adolescence. As the existing trees slowly die, there will be
           | none younger to replace them.
           | 
           | This also clears out the competition to the benefit of non-
           | native plants, which the deer don't eat. Some of these plants
           | are invasive, such as japanese barberry, and render large
           | areas untraversable. Not to mention the bramble is an
           | excellent home for rodents, another major tick carrier.
           | 
           | If you want to reduce ticks, deer are a critical element of
           | their lifecycle.
        
             | gilbetron wrote:
             | Don't forget to give part of the blame for the forest woes
             | on worms:
             | https://www.canr.msu.edu/news/the_dirt_about_earthworms
        
             | jf22 wrote:
             | I'm sure deer populations have been higher in the past and
             | the forests survived.
        
               | giantg2 wrote:
               | There have been times of higher deer population. The
               | population was much higher in PA when my dad was a kid.
               | It currently sits around 30 deer per square mile, which 3
               | times higher than pre colonial times.
        
               | zz865 wrote:
               | There used to be Wolves and Mountain lions to keep the
               | deer under control.
        
               | echelon wrote:
               | There's nothing unethical with culling an overpopulated
               | species. We do it to deer, wolves, etc. all the time via
               | hunting permits.
               | 
               | As long as wild biology subsists on killing and eating,
               | there's no problem with humans doing the same in order to
               | restore balance.
               | 
               | It also helps to reintroduce natural predators when
               | possible. But in absence of that strategy, humans can do
               | the job too.
        
               | somehnacct3757 wrote:
               | In my area there are over 120 deer per square mile
               | currently. This number was historically 10, when
               | predators existed. Studies have shown that around 30 deer
               | per square mile is when biodiversity starts to suffer.
               | 
               | I live in the forest and manage my lot with guidance from
               | foresters and nearby park rangers. It may take a hundred
               | years for these current trees to die, but there's nothing
               | to replace them. You can walk the understory and see
               | knee-high trees that can't grow further because the deer
               | prune their leaves.
        
               | bjoli wrote:
               | 120 deer per square mile?!
               | 
               | In thought the moose problem in Sweden was big. That is
               | just ridiculous. We have a moose population that is waaay
               | higher than ever before because we killed most large
               | predators, and the people responsible for keeping the
               | population down (hunters) want a much larger population
               | than is environmentally defensible.
        
             | giantg2 wrote:
             | The mice are the main component to the lyme lifecycle.
             | There is a researcher working to give mice immunity using
             | crispr.
             | 
             | Generally, the deer are only overpopulating (at least to
             | the extent you describe) in areas that aren't hunted, which
             | also tend to be highly populated. It seems many people
             | enjoy seeing the deer in their backyards and don't want
             | their almost-pets to be killed, especially if it means it
             | might have to be done on their land. How do you propose
             | dealing with that opposition?
        
               | gkilmain wrote:
               | Definitely. I bought tick tubes which target the mice.
               | I've had one on me since putting them out in late April.
               | I think they're working but need more time to test.
        
               | technothrasher wrote:
               | > Generally, the deer are only overpopulating (at least
               | to the extent you describe) in areas that aren't hunted
               | 
               | Central Massachusetts has a very active deer hunting
               | community. I never have any trouble filling my freezer
               | with free venison every fall. But the deer population is
               | still _four times_ the sustainable level as set by the
               | state Wildlife dept and local conservation groups.
               | 
               | Hunting isn't necessarily enough to control the
               | population.
        
               | giantg2 wrote:
               | It depends on a number of factors. Access is a huge one
               | where I'm at. Public lands can be basically hunted out
               | while the deer have moved onto private lands where nobody
               | hunts and created huge herds (30+).
               | 
               | If your area doesn't have the access issue, then I would
               | guess it could be an issue with the number of hunters -
               | if there aren't enough, then they can't harvest the
               | number required to bring down the population (or the
               | limits make it difficult - seems like that's the case the
               | way they handle doe permits). Many states have a program
               | that allows hunters to donate their deer to a food bank
               | through a participating butcher. This can make a big
               | impact in areas that allow more harvests (MD allows 10
               | doe per year/season without any special permits).
        
               | somehnacct3757 wrote:
               | Show them a close-up of a deer's face in an ad campaign,
               | lol. They're covered in ticks, it's like a Ren & Stimpy
               | zoom shot.
               | 
               | You could also get more ppl into gardening. Gardeners end
               | up hating deer after their gardens get raided once or
               | twice.
        
               | quesera wrote:
               | Both small mammal and large mammal hosts are required in
               | the deer tick lifecycle.
               | 
               | White-footed mice are the most common host for the small
               | mammal portion (but there are many options), and deer are
               | the most common host for the large mammal portion.
               | 
               | Deer are easier to count and control than
               | mice/voles/moles/chipmunks/etc.
               | 
               | So controlling deer populations is more likely to be
               | successful in breaking the deer tick lifecycle.
               | 
               | So sayeth a publication from researchers at the
               | University of Connecticut, at least.
               | 
               | I'm sympathetic with the almost-pet Bambi-loving crowd.
               | But Lyme is real and not at all cuddly. Bring back the
               | wolves!
        
               | giantg2 wrote:
               | Coyotes have been introduced in the east in the past.
               | They generally don't kill healthy adult deer (maybe), but
               | they do kill a decent number of fawns. They aren't enough
               | to fully control the population, especially in the
               | suburbs.
               | 
               | The advantage of going after the mice is that they can
               | use crispr to give them immunity. It could be used on
               | deer, but would probably have more push back. Tick tubes
               | have already been shown to be effective at the small
               | mammal level.
               | 
               | It will likely require a combination to control.
        
               | cmrdporcupine wrote:
               | Eastern red fox populations need to be higher. They're
               | amazing mouse hunters.
        
         | exhilaration wrote:
         | Ticks are on all small mammals - field mice [1], rabbits, etc.
         | Culling the deer won't be enough.
         | 
         | [1] Check out these tick tubes:
         | https://blogs.cornell.edu/nysipm/2019/06/28/dont-make-your-o...
        
           | patall wrote:
           | Ticks and Lyme are also transmitted by birds (i.e https://www
           | .sciencedaily.com/releases/2021/01/210127093213.h...).
           | Especially migrating birds are a big issue as more and more
           | 'tropic' ticks end up north.
        
         | magpi3 wrote:
         | There are deer feeders that kill ticks. This solution seems
         | more humane then trying to kill most of the deer.
        
           | rory wrote:
           | _Most_ may be too far, but I also see a bunch of postings
           | that a cull is needed to slow the spread of CWD.
        
         | driverdan wrote:
         | Mice are the bigger problem, not deer.
        
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