[HN Gopher] How to sequence your genome at home
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       How to sequence your genome at home
        
       Author : sprague
       Score  : 120 points
       Date   : 2021-06-07 14:03 UTC (8 hours ago)
        
 (HTM) web link (blog.booleanbiotech.com)
 (TXT) w3m dump (blog.booleanbiotech.com)
        
       | sterlind wrote:
       | I might actually try this! I have a disabling genetic disorder
       | (hypermobile Ehlers-Danlos syndrome) for which the genes
       | responsible haven't yet been identified, but there are a few
       | dozen genes of interest. Since the diagnosis is clinical, my
       | geneticist didn't order testing for me, so I've stayed curious.
       | 
       | I'd probably approach it by ordering primers for my regions of
       | interest, doing PCR to amplify them, then running it through the
       | flongle in a single shot.
       | 
       | Of course anything this DIY would be useless for diagnosis or
       | research - you want Sanger sequencing for accurate transcription
       | of each gene, and whole-genome sequencing for identifying
       | candidate mutations - but it's enough motivation to try such a
       | fun little project. Also I can potentially play along at home
       | with the results of the HEDGE study, which is trying to find the
       | cause of hEDS.
        
         | forgotpwagain wrote:
         | Have you looked into Nebula Genomics? They will do 30X coverage
         | WGS for $299, and will give you the underlying data so you can
         | analyze it on your own (in addition to their analyses).
         | 
         | Link: https://nebula.org/whole-genome-sequencing-dna-test/
        
         | abz10 wrote:
         | I have this as well - I only found out a month ago after
         | decades of searching and dozens of doctors, hundreds of tests,
         | across 4 countries, all telling me there is nothing wrong. It
         | should have been super obvious in retrospect. The vast majority
         | of people who have hEDS will never know it. I highly recommend
         | everyone check themselves for it. It could easily be 1% of the
         | population. I only found out when my sister recently came down
         | with CFS/ME in much the same way I did so I searched for
         | genetic causes of CFS/ME. It can affect your whole life in a
         | way you don't even know isn't normal, because everyone around
         | you is telling you it is normal.
        
         | tito wrote:
         | As a middle ground between DIY and leaving it unknown you could
         | also hire a contract lab to do this with you. As an experiment
         | in this, I found a contract lab, ordered PCR primers, and sent
         | in McDonalds burgers and McFish samples to do species
         | identification. (Result: $300 all in, nothing too exciting,
         | Bovine and iirc Alaskan Cod).
         | 
         | The "human sample" bit might be tricky. Doing this today I
         | would check out https://www.scienceexchange.com/
         | 
         | Oh and obviously if you're in the Bay Area go to BioCurious
         | (https://biocurious.org/) or Counter Culture Labs
         | (https://www.counterculturelabs.org/) for all your DIY bio
         | dreams
        
           | amelius wrote:
           | > and sent in McDonalds burgers and McFish samples
           | 
           | Doesn't cooking/frying destroy the DNA?
        
             | whoisburbansky wrote:
             | From [1], it seems like cooking doesn't completely destroy
             | DNA, but does make it so you get smaller segments post-PCR.
             | Maybe species identification is okay with small segments?
             | 
             | 1. https://pubmed.ncbi.nlm.nih.gov/18791146/
        
           | [deleted]
        
         | ipaddr wrote:
         | As someone who recently found out my birth mothers side is
         | filled with Ehlers-Danlos syndrome relatives this interests me.
         | 
         | I have my dna from 23andme what markers should I be looking
         | for? How does it affect you personally, what is disabling about
         | it for you?
         | 
         | Do you have a french background?
        
           | abz10 wrote:
           | Not OP; but have hEDS. CFS with brain fog is the most
           | disabling part. Chronic back pain is the second. Post
           | exertion malease means if I accidentally overexert myself I
           | can be stuck in bed for days recovering. Bad posture due to
           | loose ligaments.
           | 
           | There is also an increased anxiety with high functioning
           | autistic behavior. It causes insomnia and noise intolerance.
           | It seems to reduce the sex hormones. There also seems to be a
           | link to higher IQ.
           | 
           | I have a distant West German background on the affected side.
        
         | new299 wrote:
         | NGS (Illumina style) is high enough quality to identify
         | mutations. You can get a whole human genome for as little as
         | 150 Euros (Dante labs has an offer at this price in 2020). Much
         | cheaper per genome than suggested in the post, and you just
         | send in the sample.
         | 
         | To get a comparable genome using the method suggested in the
         | blog post will be much much expensive, in part because you have
         | to buy all the equipment. But also because it's Nanopore
         | sequencing which has a much higher baseline error rate.
        
       | colordrops wrote:
       | I've been wary about submitting my DNA to a company so this is
       | very intriguing. Is there enough data and/or a community and open
       | software to support things like ancestry and disease profiles
       | locally?
        
         | caymanjim wrote:
         | I've been curious about what my DNA says, and went so far as to
         | buy a 23andme kit years ago. I never sent it in, because I
         | don't like the idea of some company retaining that kind of
         | deeply personal data about me. It's useless to resist, though;
         | my sister and some cousins submitted theirs, and that's enough
         | to destroy any real sense of anonymity I might have. I don't
         | have any particular concern; it's just one of the myriad ways
         | that privacy no longer exists.
        
           | weaksauce wrote:
           | > I don't have any particular concern
           | 
           | we don't have even the slightest idea of where it could go
           | right now. look 30 years ago and DNA wasn't a thing that
           | people were worried about and now it's catching sloppy
           | criminals. the technology opens up new, unexpected
           | opportunities
        
             | adenadel wrote:
             | I get your point, but your timeline is pretty far off. The
             | first human gene therapy happened in 1990 so DNA has been a
             | thing for awhile.
        
               | Retric wrote:
               | The first use of DNA in a criminal case only goes back to
               | 1987. As such 30 years ago people generally weren't
               | really aware of generic testing or any of it's
               | implications.
        
               | weaksauce wrote:
               | I am talking about DNA wrt crimes... it was first
               | proposed as possible in 85 and in the early 90s used for
               | it. I'd say my timeline was fairly ok for an off the cuff
               | recollection of events.
        
         | teachingassist wrote:
         | It's tricky to organise, but in theory, yes, you can interpret
         | your own results.
         | 
         | Ancestry/23andme-type medical results are (in my opinion)
         | almost entirely a nice write-up and display of public databases
         | of research on SNPs, e.g.
         | https://www.ncbi.nlm.nih.gov/snp/docs/entrez_help/,
         | https://www.snpedia.com/
         | 
         | You could (for example) submit the data you get to Promethease
         | which will do the processing for you. Promethease is now owned
         | by MyHeritage, so I'm not sure how their terms are looking -
         | I'd be a little cautious about using that.
        
         | riedel wrote:
         | Would be rather interesting to create sth like bloom filters
         | from ones DNA to find relatives. In contrast to phone numbers
         | the DNA space here might really be big enough for private
         | "contact" discovery to work ...
        
           | beaugunderson wrote:
           | 23andMe does this already; I've found relatives from some
           | distant parts of the family this way!
        
         | gremloni wrote:
         | I don't know if it's relevant anymore but I ran my SNP data
         | through promethase years ago. It has a ridiculous amount of
         | information.
        
         | amelius wrote:
         | Good question. I'm always afraid most of the useful medical
         | data will be kept secret by these giant corporations, but let's
         | hope this is not already the case.
        
         | jltsiren wrote:
         | There is plenty of open software and data in genomics. The hard
         | part is knowing what to do, using the software correctly, and
         | interpreting the results. Bioinformatics is still mostly
         | research-level work, so you'll need years of experience and
         | lots of trial and error to get anything done.
        
           | andai wrote:
           | I'd wager for most people, DNA still isn't a thing they're
           | worried about.
        
         | searine wrote:
         | Most of bioinformatics/computational biology is open source and
         | so are most of the data sets. The companies that do this
         | definitely have a 'special sauce' for ancestry, but most all of
         | the disease annotations are public (see dbSNP).
         | 
         | As for the paranoia about DNA companies, you are an anonymous
         | drop in the ocean of sequenced DNA. There are laws against
         | using it to inform insurance coverage. Sequencing yourself at
         | one these companies and opting in for use in research is
         | actually really important to collecting the sample sizes
         | necessary to discover new causative variants for disease.
        
       | searine wrote:
       | Oxford nanopore isn't that great for resequencing a human genome.
       | Human DNA is too big and the minIon or flongle is too small and
       | error prone. MinIons are best used for long reads for niche
       | experiments like assembly or for field work, in my experience.
       | 
       | It is much cheaper, easier, and more accurate to use a service
       | like Nebula Genomics. 300 dollars for an exome is an incredible
       | deal. When looking for deleterious mutations, it is actually
       | really important to have a highly accurate methodology, otherwise
       | you may find errors you think are true deleterious mutations.
        
         | aantix wrote:
         | Nebula offers "Deep Whole Genome Sequencing - We decode 100% of
         | your DNA at 30x"
         | 
         | Is the 30x coverage sufficient for finding all deleterious
         | mutations? Or is the 100x option needed?
        
           | aabaker99 wrote:
           | Coverage isn't directly relevant to whether a mutation is
           | deleterious or not. Coverage is about getting accurate reads
           | in the face of short-read sequencing. Modern sequencing will
           | chop up DNA into 200-nucleotide-long fragments and then align
           | those fragments against the reference genome. Because of the
           | variation between individuals, sequencing errors, and the
           | fact that there are only 4 nucleotides, one sequencing read
           | may not be enough to unambiguously determine which DNA is
           | present at what position in the genome. Coverage at a
           | particular genomic coordinate or locus is the number of reads
           | which have been aligned to that position.
           | 
           | Depending on the circumstances, clinical use of genomes
           | requires 100x-500x coverage. Depending on your purposes, you
           | may accept less sequencing depth/coverage. If I was just a
           | hobbyist wanting some idea about my genome, 30x would be
           | sufficient for me.
        
             | aantix wrote:
             | My son has been diagnosed with oppositional defiance
             | disorder.
             | 
             | His symptoms greatly subside when he takes Niacin
             | (1000mg/2x/day) along with magnesium l-threonate (2x/day).
             | 
             | Was wondering if there was an issue with B vitamin
             | metabolism.
             | 
             | Was going to run the data through Promethease, but wasn't
             | sure if the additional fidelity would help my search for a
             | possible diagnosis.
        
           | adenadel wrote:
           | 30X is considered standard for germline whole genome
           | sequencing and higher coverage is typically used for
           | detecting somatic variation. That being said, all detection
           | is statistical and there are regions of the genome that are
           | inherently hard to sequence.
        
       | miley_cyrus wrote:
       | Sequencing a genome is the easy part -- the difficulty is making
       | sense of all of the data in a clinical/medical sense. I got my
       | DNA sequenced/analyzed by https://www.nagenomics.com and found
       | some interesting things that matched personal/family medical
       | history.
        
         | jrhawley wrote:
         | This is definitely true. Even looking at risk SNP databases for
         | a particular disease is fraught with caveats. You really need
         | someone with experience in the field, like a medical
         | geneticist, to interpret the data you get. 23andMe and Ancestry
         | can at least provide that for people, but I don't necessarily
         | like giving up that data to a company to hold for me. But
         | that's cool you were able to find some known markers of your
         | personal medical history
        
       | dcolkitt wrote:
       | For anyone wondering if there's any real benefit to having your
       | genome sequence, here's my anecdote. Thanks to Promethease, I
       | found out at a young age that I had hereditary hemochromatosis.
       | This condition basically results in the slow over-accumulation of
       | iron over a period of decades. The symptoms are so non-specific
       | that without genetic testing, it's very rarely diagnosed until
       | major damage has been done.
       | 
       | However if detected early, the treatment is dead simple. Regular
       | phlebotomies to keep iron in line. One trip to the blood bank
       | every few months means that the disease has literally zero impact
       | on health or quality of life. Without genenome sequencing, I
       | likely would have lost 10-20 years of life, and even more in
       | terms of quality adjusted years. And this isn't some freak corner
       | case. As many as 1 in 200 Northern Europeans have the genetic
       | condition.
        
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