Subj : Childhood Leukemia...  1.
To   : Mark Hofmann
From : Ardith Hinton
Date : Fri Mar 02 2018 02:36:56

Hi, Mark!  Recently you wrote in a message to Ardith Hinton:

AH>  That part hasn't changed, apparently. Her treatment lasted
AH>  for 2 1/2 years... but I was also told it took 3 1/2 years
AH>  for boys.

MH>  Basically the same, but depending on certain test results,
MH>  the treatment times in the Maintenance Phase can be less.


          Ah.  I guess there's more flexibility now that the doctors have been 
using +/- the same protocols for over twenty years.  In our day the time frame 
was quite rigid AFAIK, but since then they've fine-tuned a lot of things.  :-)



 [re prednisone]
MH>  He was on the steroid for the first 29 days in a row.  In
MH>  addition to all the things you noted, he also was eating
MH>  like crazy.


          Our daughter didn't feel much like eating during the first few weeks
.... she survived chiefly on milk, juice, and formula.  While I was in hospital 
with her nothing went to waste, though.  Fortunately she would leave enough on 
her plate to enable me to keep body & soul together until Dallas arrived after 
work.  I understand prednisone does tend to cause food cravings, typically for 
salty foods &/or carbohydrates.  Maybe our daughter's cravings were different. 
In any case I was surprised... and rather amused... when I found out that some 
local pizza restaurants cheerfully made deliveries to the hospital.  Teenagers 
are more likely to be there on their own than younger children, of course, and 
more likely to have independent means by which to pay for such luxuries.  :-))



MH>  This then means going to the bathroom like crazy and he
MH>  ended up with a rash that wouldn't heal until he was off
MH>  the steroid.


          Uh... you mean something akin to diaper rash?  We had a very similar 
problem during the third week, in part because of the stool softener which was 
routinely administered during treatment to keep things moving along.  It was a 
difficult time for us.  But I gather the alternatives could be worse... you do
*not* want caustic chemicals eroding your child's innards, where you can't see 
what's going on & where the damage would be a lot more difficult to fix.

          Because prednisone inhibits the immune response, it is often used in 
the treatment of arthritis & asthma as well as leukemia.  The downside in such 
situations as yours, however, is that it slows the healing of wounds.

          What you gain on the swings you lose on the roundabouts, or so it is 
said.  Our daughter had a stubborn case of "cradle cap" which disappeared when 
she lost her hair.  Glad to know the rash has cleared up, at any rate....  :-)




--- timEd/386 1.10.y2k+
 * Origin: Wits' End, Vancouver CANADA (1:153/716)

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