Subj : Childhood Leukemia...  2.
To   : Mark Hofmann
From : Ardith Hinton
Date : Fri Mar 02 2018 02:36:56

Hi, Mark!  Recently you wrote in a message to Ardith Hinton:

MH>  Very thankful to be finished with Interim Maintenance II
MH>  as of the Monday before Thanksgiving.


         Ah.  No doubt that's a great relief....  :-)



MH>  It was a bit more challenging than I had thought.


         These things are always a bit more challenging than one expected.  You 
do your darndest to learn all you can about what might go wrong so you can spot 
it right away & get help promptly if necessary, but... [wry grin].

         We've had our share of problems which weren't in the textbooks either. 
I see you're well equipped for the role of father to this child, however.  As a 
teacher I met others who worked with "special needs" children & then went on to 
have one of their own whereas you worked in a hospital.  It seems to me that we 
prepared ourselves in advance even if we didn't realize it at the time....  :-)



MH>  We start Maintenance on December 12th.  Starts of with some
MH>  treatments, but at least after that, we are clear for 3 months
MH>  (other than a daily oral med - and another weekly one).

MH>  Will be very happy to see him start to have a normal life again.


         Yes... whatever "normal" is (Hinton family/oncology parent joke).  ;-)

         IIRC that is the stage where you no longer have to wait in the parking 
lot (& fend off little old ladies with lap dogs who want to lick the kid's face 
while they assure you they know all about immune suppression, because they have 
the same problem) when your wife is shopping for groceries.  Although it's true 
that the immune system tends to be somewhat less efficient beyond middle age it 
is a far cry from being told to avoid crowds & various ill-informed individuals 
when the neutrophil count is below 1000 or what have you... [wry grin].

         Anyway, I hear you.  Looking back... I gather you got this surprise on 
April Fool's Day.  I could tell you the exact date & time we got it too.  But I 
think what matters is that while you may not be out of the woods yet things are 
looking up.  In my experience most kids achieve remission within days.  Not all 
are able to maintain it, but the longer you & your loved ones hang in there the 
better the chances are that it will be ancient history in a decade or two.  :-)




--- timEd/386 1.10.y2k+
 * Origin: Wits' End, Vancouver CANADA (1:153/716)

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